A study of the challenges related to DIY assistive technology in the context of children with disabilities

The term Do It Yourself Assistive Technology (DIY-AT) refers to the creation and adaptation of AT by non-professionals, including people with disabilities and their families, friends and caregivers. Previous research has argued that the development of technologies and services that enable people to make their own DIY-AT will lead to the rapid and low cost development of assistive devices that are tailored to meet the complex needs of individual people with disabilities. We present the results of a qualitative study that explored challenges related to the process of making DIY-AT for children with disabilities. A series of eleven semi-structured interviews with a broad range of stakeholders involved in the current use, provision and adaptation of AT for children with disabilities revealed a number of challenges relating to the prevalence and scope of ongoing DIY-AT practice, barriers to participation, and the challenges faced by makers and users of DIY-AT.

[1]  Lieven De Couvreur,et al.  Design for (every)one: co-creation as a bridge between universal design and rehabilitation engineering , 2011 .

[2]  J. Ziviani,et al.  Barriers to the use of assistive technology for children with multiple disabilities. , 2004, Occupational therapy international.

[3]  B Phillips,et al.  Predictors of assistive technology abandonment. , 1993, Assistive technology : the official journal of RESNA.

[4]  L. Given,et al.  The SAGE encyclopedia of qualitative research methods , 2011 .

[5]  Melissa Dawe,et al.  Desperately seeking simplicity: how young adults with cognitive disabilities and their families adopt assistive technologies , 2006, CHI.

[6]  Donna M Cowan,et al.  The User's Perspective on the Provision of Electronic Assistive Technology: Equipped for Life? , 1999 .

[7]  V. Braun,et al.  Using thematic analysis in psychology , 2006 .

[8]  David Werner Disabled Village Children. A Guide for Community Health Workers, Rehabilitation Workers, and Families. First Edition. , 1987 .

[9]  Eric Paulos,et al.  Rise of the expert amateur: DIY projects, communities, and cultures , 2010, NordiCHI.

[10]  S. Imamura Disabled village children. A guide for community health workers, rehabilitation workers, and families, D Werner (Ed.). The Hesperian Foundation, Palo Alto (California) (1987), 672 pp , 1990 .

[11]  M. Scherer The change in emphasis from people to person: introduction to the special issue on Assistive Technology , 2002, Disability and rehabilitation.

[12]  Phil Parette,et al.  Family-Centered Decision Making in Assistive Technology , 1999 .

[13]  Gerhard Nussbaum,et al.  AsTeRICS, a Flexible Assistive Technology Construction Set , 2012, DSAI.

[14]  M. Battaglia,et al.  An interdisciplinary approach to evaluating the need for assistive technology reduces equipment abandonment , 2006, Multiple sclerosis.

[15]  T. Hasselbring,et al.  Use of computer technology to help students with special needs. , 2000, The Future of children.

[16]  Lisa Anthony,et al.  Analyzing user-generated youtube videos to understand touchscreen use by people with motor impairments , 2013, CHI.

[17]  Amy Hurst,et al.  Making "making" accessible , 2013, IDC.

[18]  Amy Hurst,et al.  Empowering individuals with do-it-yourself assistive technology , 2011, ASSETS.

[19]  Marti L. Riemer-Reiss,et al.  Factors Associated with Assistive Technology Discontinuance among Individuals with Disabilities , 2000 .

[20]  Pierre Sens,et al.  Stream Processing of Healthcare Sensor Data: Studying User Traces to Identify Challenges from a Big Data Perspective , 2015, ANT/SEIT.

[21]  M J Scherer,et al.  Outcomes of assistive technology use on quality of life. , 1996, Disability and rehabilitation.

[22]  Neil Gershenfeld,et al.  FAB: The Coming Revolution on Your Desktop--from Personal Computers to Personal Fabrication , 2005 .

[23]  Rogerio DePaula,et al.  A Framework for the Adoption of Assistive Technology , 2002 .

[24]  Lieven De Couvreur,et al.  The role of flow experience in codesigning open-design assistive devices , 2011 .

[25]  Ben Leduc-Mills,et al.  Evaluating accessibility in fabrication tools for children , 2013, IDC.