Patient-centered Information Systems

Patient-centered information systems augment traditional approaches to health information management with specific functions designed to support patient participation in health care decision making and treatment activities. In addition to computer-based record systems and business management applications, patient-centered information systems must include functionality that support communication between clinician and patient, and that provide information and peer support in a timely fashion to the patient. Current progress in information systems demonstrates the existence and feasibility of consumer health informatics, patient access to computerized clinical records, and technical and organizational solutions to integrating computerized patient information systems. We are now proposing a model of patient-centered system that incorporates all those components, and provides a vision of the future.

[1]  Daniel R. Masys,et al.  Patient-Centered Access to Secure Systems Online (PCASSO): a secure approach to clinical data access via the World Wide Web , 1997, AMIA.

[2]  Holly Jimison,et al.  Health care providers and purchasers and evaluation of interactive health communication applications , 1999 .

[3]  C Safran,et al.  A computer-administered health screening interview for hospital personnel. , 1995, M.D. computing : computers in medical practice.

[4]  Jonathan M. Teich,et al.  Using information systems to measure and improve quality , 1999, Int. J. Medical Informatics.

[5]  L M Fagan,et al.  Toward an interim standard for patient-centered knowledge-access. , 1993, Proceedings. Symposium on Computer Applications in Medical Care.

[6]  Angela Coulter,et al.  Paternalism or partnership? , 1999, BMJ.

[7]  R. Lubic,et al.  THE FREE-STANDING BIRTH CENTRE , 1982, The Lancet.

[8]  D A Giuse,et al.  Increasing the availability of the computerized patient record. , 1996, Proceedings : a conference of the American Medical Informatics Association. AMIA Fall Symposium.

[9]  M. Funnell,et al.  Patient Empowerment: Results of a randomized controlled trial , 1995, Diabetes Care.

[10]  R D Zielstorff,et al.  Mapping nursing diagnosis nomenclatures for coordinated care. , 1998, Image--the journal of nursing scholarship.

[11]  E A Balas,et al.  Clinical trials of interactive computerized patient education: implications for family practice. , 1997, The Journal of family practice.

[12]  Jakob Nielsen,et al.  Usability engineering , 1997, The Computer Science and Engineering Handbook.

[13]  J Brug,et al.  The application and impact of computer-generated personalized nutrition education: a review of the literature. , 1999, Patient education and counseling.

[14]  Joseph L. Kannry,et al.  Research Paper: Portability Issues for a Structured Clinical Vocabulary: Mapping from Yale to the Columbia Medical Entities Dictionary , 1996, J. Am. Medical Informatics Assoc..

[15]  Ilias Iakovidis,et al.  Towards personal health record: current situation, obstacles and trends in implementation of electronic healthcare record in Europe , 1998, Int. J. Medical Informatics.

[16]  E. D. Ilsar,et al.  Remote home monitoring of health status of the elderly. , 1995, Medinfo. MEDINFO.

[17]  J Ingenerf,et al.  Taxonomic vocabularies in medicine: the intention of usage determines different established structures. , 1995, Medinfo. MEDINFO.

[18]  S. Jewell,et al.  Patient participation: what does it mean to nurses? , 1994, Journal of advanced nursing.

[19]  Daniel R. Masys,et al.  Protecting clinical data on Web client computers: the PCASSO approach , 1998, AMIA.

[20]  S. Edgman-Levitan,et al.  Through the patient's eyes. , 1997, Journal of healthcare design : proceedings from the ... Symposium on Healthcare Design. Symposium on Healthcare Design.

[21]  C Safran,et al.  Patient entries in the electronic medical record: an interactive interview used in primary care. , 1995, Proceedings. Symposium on Computer Applications in Medical Care.

[22]  Suzanne Austin Boren,et al.  Computerized management of diabetes: a synthesis of controlled trials , 1998, AMIA.

[23]  Nigel H. Lovell,et al.  A web-based approach for electrocardiogram monitoring in the home , 1999, Int. J. Medical Informatics.

[24]  Daniel R. Masys,et al.  PCASSO: a design for secure communication of personal health information via the internet , 1999, Int. J. Medical Informatics.

[25]  Joyce A. Mitchell,et al.  The clinical value of computerized information services. A review of 98 randomized clinical trials. , 1996, Archives of family medicine.

[26]  S. Moore,et al.  The Effects of a Special Computer Network on Caregivers of Persons with Alzheimer's Disease , 1995, Nursing research.

[27]  J. Brug,et al.  Computer-tailored interventions motivating people to adopt health promoting behaviours: introduction to a new approach. , 1999, Patient education and counseling.

[28]  W L Holzemer,et al.  A comparison of problem lists generated by physicians, nurses, and patients: implications for CPR systems. , 1995, Proceedings. Symposium on Computer Applications in Medical Care.

[29]  C. Safran,et al.  ClinQuery: a system for online searching of data in a teaching hospital. , 1989, Annals of internal medicine.

[30]  A R Jadad,et al.  Rating health information on the Internet: navigating to knowledge or to Babel? , 1998, JAMA.

[31]  Shirley Moore,et al.  Designing HeartCare: custom computerized home care for patients recovering from CABG surgery , 1998, AMIA.

[32]  Daniel Z. Sands,et al.  Guidelines for the Clinical Use of Electronic Mail with Patients , 1998 .

[33]  R. McCorkle,et al.  Describing the work of nursing: the case of postsurgical nursing interventions for men with prostate cancer. , 1999, Research in nursing & health.

[34]  Paul C. Tang,et al.  Informing patients: a guide for providing patient health information. , 1998, Journal of the American Medical Informatics Association : JAMIA.

[35]  J. Cahill,et al.  Patient participation--a review of the literature. , 1998, Journal of clinical nursing.

[36]  L. Radwin,et al.  Knowing the Patient: A Process Model for Individualized Interventions , 1995, Nursing research.

[37]  C Safran,et al.  Computer-based interview for screening blood donors for risk of HIV transmission. , 1990, JAMA.

[38]  Vimla L. Patel,et al.  Architecture for a Web-based clinical information system that keeps the design open and the access closed , 1998, AMIA.