Pain management at home in children with cancer: A daily diary study

With the transition of care of cancer patients from the hospital to the home setting, parents are largely responsible for children's pain management. Children's cancer pain is undermanaged, yet, there is little empirical data on the occurrence and management of cancer pain in the home setting. The purpose of the present study, therefore, was to employ a daily diary protocol to examine barriers to pain management of children's cancer pain by parents at home.

[1]  F. Sennhauser,et al.  Health and Quality of Life Outcomes Health-related Quality of Life in Children with Newly Diagnosed Cancer: a One Year Follow-up Study , 2022 .

[2]  Harald Merckelbach,et al.  Three traditional and three new childhood anxiety questionnaires: their reliability and validity in a normal adolescent sample. , 2002, Behaviour research and therapy.

[3]  Patricia Flatley Brennan,et al.  Patient-centered interventions. , 2002, Research in nursing & health.

[4]  M. Migdał,et al.  Rapid, Needle-Free Delivery of Lidocaine for Reducing the Pain of Venipuncture Among Pediatric Subjects , 2005, Pediatrics.

[5]  P. McGrath,et al.  Mothers' attitudes and behavior toward medicating children's pain , 1996, Pain.

[6]  J. Miró,et al.  Evaluation of reliability, validity, and preference for a pediatric pain intensity scale: the Catalan version of the faces pain scale – revised , 2004, Pain.

[7]  Janice Lander,et al.  Pain progression, intensity and outcomes following tonsillectomy , 1998, Pain.

[8]  C. L. Hicks,et al.  The Faces Pain Scale – Revised: toward a common metric in pediatric pain measurement , 2001, Pain.

[9]  W. Abdullah Pediatr Blood Cancer , 2004 .

[10]  Marilyn Hockenberry,et al.  Symptom Management Research in Children With Cancer , 2004, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.

[11]  M. Grey,et al.  Exploring Sociodemographic and Personality Characteristic Predictors of Parental Pain Perceptions , 2007, Anesthesia and analgesia.

[12]  M. Riggs,et al.  Pain Experience in Children With Advanced Cancer , 2012, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.

[13]  P. McGrath,et al.  Parents' management of children's pain following ‘minor’ surgery , 1996, Pain.

[14]  P. McGrath,et al.  A Randomized Trial of a Pain Education Booklet: Effects on Parents' Attitudes and Postoperative Pain Management , 1997 .

[15]  D. Kelly,et al.  'More than just money' -- widening the understanding of the costs involved in cancer care. , 2001, Journal of advanced nursing.

[16]  Lois Van Cleve,et al.  The Pain Experience of Children With Leukemia During the First Year After Diagnosis , 2004, Nursing research.

[17]  Michael Seid,et al.  PedsQL™ 4.0: Reliability and Validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in Healthy and Patient Populations , 2001, Medical care.

[18]  P. Hinds,et al.  The care of my child with cancer: parents' perceptions of caregiving demands. , 2002, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.

[19]  M. Stevens,et al.  Health related quality of life in the first year after diagnosis in children with brain tumours compared with matched healthy controls; a prospective longitudinal study. , 2008, European journal of cancer.

[20]  T. Voepel-Lewis,et al.  Pain relief in children following outpatient surgery. , 1999, Journal of clinical anesthesia.

[21]  K. Gil,et al.  Daily pain and symptoms in children with polyarticular arthritis. , 2003, Arthritis and rheumatism.

[22]  G. Affleck,et al.  The relationship of daily mood and stressful events to symptoms in juvenile rheumatic disease. , 2000, Arthritis care and research : the official journal of the Arthritis Health Professions Association.

[23]  H. Helgadóttir,et al.  Temperament and pain in 3 to 7-year-old children undergoing tonsillectomy. , 2004, Journal of pediatric nursing.

[24]  Z. Kain,et al.  Parental Postoperative Pain Management: Attitudes, Assessment, and Management , 2010, Pediatrics.

[25]  Leonard S Sender,et al.  Attitudes Regarding Analgesic Use and Pain Expression in Parents of Children With Cancer , 2012, Journal of pediatric hematology/oncology.

[26]  Leslie L. Robison,et al.  Pain in long-term adult survivors of childhood cancers and their siblings: A report from the Childhood Cancer Survivor Study , 2011, PAIN.

[27]  Z. Kain,et al.  Perioperative anxiety in children , 2010, Paediatric anaesthesia.

[28]  H. Abu‐Saad,et al.  Children's pain at home following (adeno)tonsillectomy , 2002, European journal of pain.

[29]  B. Ferrell,et al.  Pain as a metaphor for illness. Part II: Family caregivers' management of pain. , 1991, Oncology nursing forum.

[30]  Z. Kain,et al.  Pediatric Pain After Ambulatory Surgery: Where's the Medication? , 2009, Pediatrics.

[31]  H. Kokki,et al.  Parents' perceptions and use of analgesics at home after children's day surgery , 2003, Paediatric anaesthesia.