The effect of multiple recruitment contacts on response rates and patterns of missing data in a survey of bladder cancer survivors 6 months after cystectomy

[1]  M. Leo,et al.  Decision Regret Related to Urinary Diversion Choice Among Cystectomy Patients. , 2019, The Journal of urology.

[2]  T. N. Harrison,et al.  Development of a Goal Elicitation Measure to Support Choice about Urinary Diversion by Patients with Bladder Cancer. , 2019, The Journal of urology.

[3]  D. Aaronson,et al.  Factors That Influence Selectionof Urinary Diversion Among Bladder Cancer Patients in 3 Community-based Integrated Health Care Systems. , 2019, Urology.

[4]  C. McMullen,et al.  Recovering from Cystectomy: Patient Perspectives , 2019, Bladder cancer.

[5]  D. Pieper,et al.  The effect of a voucher incentive on a survey response rate in the clinical setting: a quasi-randomized controlled trial , 2018, BMC Medical Research Methodology.

[6]  H. Feigelson,et al.  Health care improvement and survivorship priorities of colorectal cancer survivors: findings from the PORTAL colorectal cancer cohort survey , 2018, Supportive Care in Cancer.

[7]  L. Temple,et al.  T he value of patient-reported outcomes in colon and rectal surgery , 2018, Seminars in Colon and Rectal Surgery.

[8]  E. Wilkins,et al.  Nonresponse bias in survey research: lessons from a prospective study of breast reconstruction. , 2018, The Journal of surgical research.

[9]  D. Wendler A pragmatic analysis of vulnerability in clinical research , 2017, Bioethics.

[10]  A. Sterrett,et al.  Optimizing patient-reported outcome and risk factor reporting from cancer survivors: a randomized trial of four different survey methods among colorectal cancer survivors , 2017, Journal of Cancer Survivorship.

[11]  M. Bollini,et al.  Methodologic Considerations for Collecting Patient-reported Outcomes from Unselected Surgical Patients , 2016, Anesthesiology.

[12]  K. Juel,et al.  Survey nonresponse among ethnic minorities in a national health survey – a mixed-method study of participation, barriers, and potentials , 2015, Ethnicity & health.

[13]  L. V. van de Poll-Franse,et al.  Response Rates for Patient-Reported Outcomes Using Web-Based Versus Paper Questionnaires: Comparison of Two Invitational Methods in Older Colorectal Cancer Patients , 2015, Journal of medical Internet research.

[14]  Chuan-Fen Liu,et al.  Survey nonresponders incurred higher medical utilization and lower medication adherence. , 2015, The American journal of managed care.

[15]  Jolene D. Smyth,et al.  Internet, Phone, Mail, and Mixed‐Mode Surveys , 2014 .

[16]  A. Abernethy,et al.  Assessing the value of patient-generated data to comparative effectiveness research. , 2014, Health affairs.

[17]  L. Temple,et al.  Reliability and validity of a survey to measure bowel function and quality of life in long-term rectal cancer survivors , 2014, Quality of Life Research.

[18]  G. Willis,et al.  Do Additional Recontacts to Increase Response Rate Improve Physician Survey Data Quality? , 2013, Medical care.

[19]  Matthew M Davis,et al.  Research Participation by Low‐Income and Racial/Ethnic Minority Groups: How Payment May Change the Balance , 2013, Clinical and translational science.

[20]  Bethany S. Gerstein,et al.  How patient centered are medical decisions?: Results of a national survey. , 2013, JAMA internal medicine.

[21]  L. Fraser,et al.  Patient-reported outcomes of cancer survivors in England 1–5 years after diagnosis: a cross-sectional survey , 2013, BMJ Open.

[22]  Karen R. Sepucha,et al.  Decision dissonance: evaluating an approach to measuring the quality of surgical decision making. , 2013, Joint Commission journal on quality and patient safety.

[23]  Amy P Abernethy,et al.  Recommendations for incorporating patient-reported outcomes into clinical comparative effectiveness research in adult oncology. , 2012, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[24]  Kerina H. Jones,et al.  The feasibility of collecting information from people with Multiple Sclerosis for the UK MS Register via a web portal: characterising a cohort of people with MS , 2012, BMC Medical Informatics and Decision Making.

[25]  A. Sheikh,et al.  Promoting recruitment of minority ethnic groups into research: qualitative study exploring the views of South Asian people with asthma. , 2011, Journal of public health.

[26]  C. McHorney,et al.  Survey Nonresponders to a Medication-beliefs Survey Have Worse Adherence and Persistence to Chronic Medications Compared With Survey Responders , 2011, Medical care.

[27]  G. Bonsel,et al.  Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L) , 2011, Quality of Life Research.

[28]  V. Hogan,et al.  Recruitment and retention of women in a large randomized control trial to reduce repeat preterm births: the Philadelphia Collaborative Preterm Prevention Project , 2010, BMC medical research methodology.

[29]  M. Paasche-Orlow,et al.  How to Achieve Informed Consent for Research from Spanish-Speaking Individuals with Low Literacy: A Qualitative Report , 2010, Journal of health communication.

[30]  J. Hardy,et al.  What do palliative care patients and their relatives think about research in palliative care?—a systematic review , 2010, Supportive Care in Cancer.

[31]  John T. Wei,et al.  Development and validation of the Bladder Cancer Index: a comprehensive, disease specific measure of health related quality of life in patients with localized bladder cancer. , 2010, The Journal of urology.

[32]  Alexia Iasonos,et al.  Adverse symptom event reporting by patients vs clinicians: relationships with clinical outcomes. , 2009, Journal of the National Cancer Institute.

[33]  M. Clarke,et al.  Methods to increase response to postal and electronic questionnaires. , 2009, The Cochrane database of systematic reviews.

[34]  W. Breitbart,et al.  Burden and benefit of psychosocial research at the end of life. , 2008, Journal of palliative medicine.

[35]  Allan A Johnson,et al.  Recruitment and retention of low-income minority women in a behavioral intervention to reduce smoking, depression, and intimate partner violence during pregnancy , 2007, BMC public health.

[36]  John T. Wei,et al.  Measuring health‐related quality of life outcomes in bladder cancer patients using the Bladder Cancer Index (BCI) , 2007, Cancer.

[37]  Dean Schillinger,et al.  Use of a modified informed consent process among vulnerable patients , 2006, Journal of General Internal Medicine.

[38]  Steve Barnett,et al.  Recruitment and Retention of Rural African Americans in Diabetes Research , 2005, The Diabetes educator.

[39]  B. Ferrell,et al.  Revision and Psychometric Testing of the City of Hope Quality of Life–Ostomy Questionnaire , 2004, Quality of Life Research.

[40]  D. Ransohoff,et al.  Interpretations of 'appropriate' minority inclusion in clinical research. , 2004, The American journal of medicine.

[41]  Deb Feldman-Stewart,et al.  Validation of a Decision Regret Scale , 2003, Medical decision making : an international journal of the Society for Medical Decision Making.

[42]  P. Angelos,et al.  Ethical considerations and barriers to research in surgical palliative care. , 2003, Journal of the American College of Surgeons.

[43]  J. Addington-hall Research sensitivities to palliative care patients. , 2002, European journal of cancer care.

[44]  M. Kaminski,et al.  Participation in a mail survey: role of repeated mailings and characteristics of nonrespondents among recent mothers. , 1999, Paediatric and perinatal epidemiology.

[45]  J. Calder Survey research methods , 1998, Medical education.

[46]  A. Paganini-Hill,et al.  Comparison of early and late respondents to a postal health survey questionnaire. , 1993, Epidemiology.

[47]  Robert M. Groves,et al.  UNDERSTANDING THE DECISION TO PARTICIPATE IN A SURVEY , 1992 .

[48]  R. Deyo,et al.  Adapting a clinical comorbidity index for use with ICD-9-CM administrative databases. , 1992, Journal of clinical epidemiology.

[49]  T. N. Harrison,et al.  Development of a goal elicitation measure to support bladder cancer patients’ choice about urinary diversion , 2019 .

[50]  Vidal Díaz de Rada Igúzquiza,et al.  Internet, Phone, Mail and Mixed-Mode Surveys: The Tailored Design Method. Don A. Dillman, Jolene D. Smyth y Leah Melani Christian. (New Jersey, John Wiley and Sons, 2014) , 2016 .

[51]  R. Hickman,et al.  Exploratory and Confirmatory Factor Analysis of the Decision Regret Scale in Recipients of Internal Cardioverter Defibrillators , 2012, Journal of Nursing Measurement.

[52]  D. Neumark-Sztainer,et al.  Do young adults participate in surveys that 'go green'? Response rates to a web and mailed survey of weight-related health behaviors. , 2011, International journal of child health and human development : IJCHD.

[53]  R. Groves Nonresponse Rates and Nonresponse Bias in Household Surveys , 2006 .

[54]  Penny Hopwood,et al.  A body image scale for use with cancer patients. , 2001, European journal of cancer.

[55]  S. Levitus,et al.  US Government Printing Office , 1998 .