National Institutes of Health investment in studies of HIV disclosure to children

The goals of this manuscript will be to review current and past National Institutes of Health (NIH) funding on maternal and child HIV disclosure research and lay out current research gaps in these areas. Examples of work funded by NIH will highlight how the disclosure needs of families affected by HIV have changed over the past 30 years as well as highlight what we have learned. The review will include the recent NICHD RFA that focused specifically on disclosure of HIV status to children in low and middle-income country settings. A brief description of findings from these NIH-funded grants will be provided. The authors will then describe current research gaps and challenges as they relate to research on HIV disclosure both in the U.S. and internationally.

[1]  W. Nyandiko,et al.  Disclosure of HIV status to children in resource-limited settings: a systematic review , 2013, Journal of the International AIDS Society.

[2]  E. Eng,et al.  Patterns of Disclosure of HIV Status to Infected Children in a Sub-Saharan African Setting , 2011, Journal of developmental and behavioral pediatrics : JDBP.

[3]  W. Marelich,et al.  Pilot trial of a disclosure intervention for HIV+ mothers: the TRACK program. , 2011, Journal of consulting and clinical psychology.

[4]  Burton O. Cowgill,et al.  Parents’ Disclosure of Their HIV Infection to Their Children in the Context of the Family , 2010, AIDS and Behavior.

[5]  E. Eng,et al.  Telling children they have HIV: lessons learned from findings of a qualitative study in sub-Saharan Africa. , 2010, AIDS patient care and STDs.

[6]  L. Mofenson,et al.  Growing up with HIV: children, adolescents, and young adults with perinatally acquired HIV infection. , 2010, Annual review of medicine.

[7]  Policy Statement—AAP Publications Retired and Reaffirmed , 2009, Pediatrics.

[8]  S. Marhefka,et al.  Ethical Issues Concerning Disclosures of HIV Diagnoses to Perinatally Infected Children and Adolescents , 2008, The Journal of Clinical Ethics.

[9]  D. Murphy.  HIV-positive Mothers' Disclosure of Their Serostatus to Their Young Children: A Review , 2008, Clinical child psychology and psychiatry.

[10]  S. Marhefka,et al.  Disclosure of an HIV Diagnosis to Children: History, Current Research, and Future Directions , 2007, Journal of developmental and behavioral pediatrics : JDBP.

[11]  Burton O. Cowgill,et al.  Do children know their parent's HIV status? Parental reports of child awareness in a nationally representative sample. , 2006, Ambulatory pediatrics : the official journal of the Ambulatory Pediatric Association.

[12]  D. Murphy,et al.  Young Children's Reactions to Mothers’ Disclosure of Maternal HIV+ Serostatus , 2006 .

[13]  D. Murphy,et al.  Regrets and Advice from Mothers who have Disclosed their HIV + Serostatus to their Young Children , 2003 .

[14]  D. Murphy,et al.  Stigma and Ostracism Associated with HIV/AIDS: Children Carrying the Secret of Their Mothers' HIV+ Serostatus , 2002 .

[15]  W. Steers,et al.  Maternal disclosure of mothers' HIV serostatus to their young children. , 2001, Journal of family psychology : JFP : journal of the Division of Family Psychology of the American Psychological Association.

[16]  L. Mofenson,et al.  Disclosure of Illness Status to Children and Adolescents with HIV Infection , 2013, Pediatric Clinical Practice Guidelines & Policies.