Cancer patients' sources of information: use and quality issues

Appropriate information, offered at the right time, has been recognised as a key factor in enabling patients to cope with a diagnosis of cancer. This paper describes the sources of information that are currently being utilised by patients and the perceived quality of these sources. A sample of 430 patients were asked to indicate on a series of Likert scales their views of 19 commonly available sources of information.

[1]  Alberto Costa,et al.  Caring about women and cancer (CAWAC): a European survey of the perspectives and experiences of women with female cancers , 1999 .

[2]  I. Haslock.  Working for patients. , 1989, British journal of rheumatology.

[3]  S Galloway,et al.  Information needs of women during early treatment for breast cancer. , 1997, Journal of advanced nursing.

[4]  Bilodeau Ba,et al.  Information needs, sources of information, and decisional roles in women with breast cancer. , 1996 .

[5]  M. Whitehouse,et al.  A policy framework for commissioning cancer services , 1995, BMJ.

[6]  A. Derdiarian.  Informational needs of recently diagnosed cancer patients: Part II. Method and description , 1987, Cancer nursing.

[7]  A. Foltz,et al.  Reading level, learning presentation preference, and desire for information among cancer patients. , 1996, Journal of cancer education : the official journal of the American Association for Cancer Education.

[8]  L. Northouse.  The impact of breast cancer on patients and husbands , 1989, Cancer nursing.

[9]  S. Wilkinson.  Factors which influence how nurses communicate with cancer patients. , 1991, Journal of advanced nursing.

[10]  G. Morrow,et al.  Sources of information used by patients to learn about chemotherapy side effects. , 2000, Journal of cancer education : the official journal of the American Association for Cancer Education.

[11]  M. Mills,et al.  Patients with operable oesophageal cancer: their experience of information-giving in a regional thoracic unit. , 2000, Journal of clinical nursing.

[12]  E Eriksson,et al.  Informational and emotional support for cancer patients' relatives. , 2000, European journal of cancer care.

[13]  Clinical Nurse Specialism Conference on the theme ‘The route to improving practice’: organized by Professional Nurse; held at the Kensington Town Hall, London, England, 7–8 November 1996. , 1997 .

[14]  N. Lawson,et al.  The information and learning needs of the caregiving family of the adult patient with cancer. , 1995, European journal of cancer care.

[15]  A. Scriven,et al.  The quality and management of written information presented to women undergoing hysterectomy. , 1997, Journal of clinical nursing.

[16]  C. Warwick.  The new NHS: modern dependable , 1998 .

[17]  A Coulter,et al.  Evidence based patient information , 1998, BMJ.

[18]  S Redman,et al.  Cancer patient satisfaction with care , 1990, Cancer.

[19]  S Galloway,et al.  Informational needs of women with a recent diagnosis of breast cancer: development and initial testing of a tool. , 1997, Journal of advanced nursing.

[20]  S J Leinster,et al.  Information needs and sources of information for women with breast cancer: a follow-up study. , 1996, Journal of advanced nursing.

[21]  M. Mills,et al.  The importance of information giving for patients newly diagnosed with cancer: a review of the literature. , 1999, Journal of clinical nursing.

[22]  C E Rees,et al.  The information needs and source preferences of women with breast cancer and their family members: a review of the literature published between 1988 and 1998. , 2000, Journal of advanced nursing.

[23]  M. Adams.  Information and education across the phases of cancer care. , 1991, Seminars in oncology nursing.