Direct-to-Consumer Recruitment Methods via Traditional and Social Media to Aid in Research Accrual for Clinical Trials for Rare Diseases: Comparative Analysis Study

[1]  Gillian Ferry,et al.  It is unprecedented: trial management during the COVID-19 pandemic and beyond , 2020, Trials.

[2]  L. Simmons,et al.  Navigating Nonessential Research Trials During COVID‐19: The Push We Needed for Using Digital Technology to Increase Access for Rural Participants? , 2020, The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association.

[3]  Artemio Ramirez,et al.  A novel approach to conducting clinical trials in the community setting: utilizing patient-driven platforms and social media to drive web-based patient recruitment , 2019, BMC Medical Research Methodology.

[4]  J. Ball,et al.  The Use of Narratives to Deliver Information in Direct-To-Consumer Prescription Drug Commercials: A Content Analysis , 2019, Journal of health communication.

[5]  Janelle Applequist,et al.  The introduction of the medicinal partner in direct-to-consumer advertising: Viagra’s contribution to pharmaceutical fetishism and patient-as-consumer discourse in healthcare , 2018, Qualitative Research in Medicine and Healthcare.

[6]  J. Ball,et al.  An Updated Analysis of Direct-to-Consumer Television Advertisements for Prescription Drugs , 2018, The Annals of Family Medicine.

[7]  Christopher Whitaker,et al.  The Use of Facebook in Recruiting Participants for Health Research Purposes: A Systematic Review , 2017, Journal of medical Internet research.

[8]  J. L. Bender,et al.  Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment , 2017, Journal of medical Internet research.

[9]  Cristina M. Burroughs,et al.  Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study , 2017, Journal of Medical Internet Research.

[10]  Barry Watson,et al.  The Step approach to Message Design and Testing (SatMDT): A conceptual framework to guide the development and evaluation of persuasive health messages. , 2016, Accident; analysis and prevention.

[11]  Tim Ramsay,et al.  Unsuccessful trial accrual and human subjects protections: An empirical analysis of recently closed trials , 2015, Clinical trials.

[12]  Thomas M. Guterbock,et al.  Beyond Traditional Advertisements: Leveraging Facebook’s Social Structures for Research Recruitment , 2014, Journal of medical Internet research.

[13]  J. Walters,et al.  Exploring the viability of using online social media advertising as a recruitment method for smoking cessation clinical trials. , 2014, Nicotine & tobacco research : official journal of the Society for Research on Nicotine and Tobacco.

[14]  Susannah L. Rose.  Patient Advocacy Organizations: Institutional Conflicts of Interest, Trust, and Trustworthiness , 2013, Journal of Law, Medicine & Ethics.

[15]  D. Oliver,et al.  Research Recruitment Using Facebook Advertising: Big Potential, Big Challenges , 2013, Journal of Cancer Education.

[16]  S. Garland,et al.  Web-Based Recruiting for Health Research Using a Social Networking Site: An Exploratory Study , 2012, Journal of medical Internet research.

[17]  Shuo Wang,et al.  Challenges of Internet Recruitment: A Case Study with Disappointing Results , 2005, Journal of medical Internet research.

[18]  Robyn Gallagher,et al.  Principles of recruitment and retention in clinical trials. , 2003, International journal of nursing practice.

[19]  Jeffrey P. Krischer,et al.  An automated communication system in a contact registry for persons with rare diseases: scalable tools for identifying and recruiting clinical research participants. , 2009, Contemporary clinical trials.

[20]  PhD Dr. Catarina I. Kiefe MD,et al.  A state-of-the-art conference on implementing evidence in health care , 2006, Journal of General Internal Medicine.