Socio-Technical Aspirations for Children with Special Needs

Society’s expectations and assistance for children with special needs is rooted in its cultural, societal, and political backdrop. Previous work on the role of culture on assistive or adaptive technology design for children with special needs identified a three-part framework: lifestyle, socio-technical infrastructure, and monetary and informational resources. Through our work in India, we proposed a fourth dimension to this framework: socio-technical aspirations. We defined socio-technical aspirations as the individual- or community-driven ambition and desire to own or use a specific technology for personal benefit or societal acceptance or both. In Finland, we interviewed four parents of children enrolled in a rehabilitation program, with the aim to understand their expectations from and current usage of technology. Findings from Finland reveal a desire for technology for children with special needs to be more engaging than what is currently available. We also identified several attributes that can contribute to socio-technical aspirations in a given context, including but not limited to: the level of inclusiveness supported in the school, which directly affects how technology is viewed with respect to the social acceptance it provides; the socio-technical aspirations of the child and how they are perceived and met by the parents and teachers; and previous technology experience of the various stakeholders involved in raising a child with special needs, which determines their attitude toward technology for not only for themselves but also for the child. In this article, we validate the dimension of socio-technical aspirations to strengthen our case for incorporating stakeholder’s socio-technical aspirations for technology designed or adapted for children with special needs.

[1]  Ronald Inglehart,et al.  Mapping Global Values , 2006 .

[2]  Sumita Sharma Collaborative Educational Applications for Underserved Children : Experiences from India , 2018 .

[3]  M. Jahnukainen,et al.  Finnish reform of the funding and provision of special education: the views of principals and municipal education administrators , 2016 .

[4]  J. Pinto-Martin,et al.  The challenge of screening for autism spectrum disorder in a culturally diverse society , 2008, Acta paediatrica.

[5]  J. Narayan UTILISING EXISTING RESOURCES FOR INCLUSIVE EDUCATION OF CHILDREN WITH DISABILITIES IN INDIA , 2006 .

[6]  Gregory D. Abowd,et al.  Understanding the challenges and opportunities for richer descriptions of stereotypical behaviors of children with asd: a concept exploration and validation , 2010, ASSETS '10.

[7]  B. Leventhal,et al.  The Autism Diagnostic Observation Schedule—Generic: A Standard Measure of Social and Communication Deficits Associated with the Spectrum of Autism , 2000, Journal of autism and developmental disorders.

[8]  Agata Rozga,et al.  Towards in-home collection of behavior specimens: Within the cultural context of autism in Pakistan , 2012, 2012 6th International Conference on Pervasive Computing Technologies for Healthcare (PervasiveHealth) and Workshops.

[9]  Marjo Virnes,et al.  Robotics in special needs education , 2008, IDC.

[10]  G. Arbanas Diagnostic and Statistical Manual of Mental Disorders (DSM-5) , 2015 .

[11]  Kentaro Toyama,et al.  Design, Needs, and Aspirations in International Development , 2017, ICT4D.

[12]  Per Henning Uppstad,et al.  Critically Reviewing GraphoGame Across the World: Recommendations and Cautions for Research and Implementation of Computer‐Assisted Instruction for Word‐Reading Acquisition , 2019, Reading Research Quarterly.

[13]  H. Pesonen,et al.  The Implementation of New Special Education Legislation in Finland , 2015 .

[14]  S. Johansson A Critical and Contextual Approach to Inclusive Education: Perspectives from an Indian Context. , 2014 .

[15]  Gregory D. Abowd,et al.  Towards a framework to situate assistive technology design in the context of culture , 2011, ASSETS.

[16]  Paul Dourish,et al.  Postcolonial computing: a lens on design and development , 2010, CHI.

[17]  Fanny Pettersson,et al.  On the issues of digital competence in educational contexts – a review of literature , 2018, Education and Information Technologies.

[18]  Markku Turunen,et al.  'Wow! You're Wearing a Fitbit, You're a Young Boy Now!": Socio-Technical Aspirations for Children with Autism in India , 2018, ASSETS.

[19]  V. Patel,et al.  The discovery of autism: Indian parents’ experiences of caring for their child with an autism spectrum disorder , 2012, Transcultural psychiatry.

[20]  James E. Driskell,et al.  Games, Motivation, and Learning: A Research and Practice Model , 2002 .

[21]  K. Eklund,et al.  Supporting struggling readers with digital game-based learning , 2019, Educational Technology Research and Development.

[22]  Hwajung Hong,et al.  Graphical Social Scenarios: Toward Intervention and Authoring for Adolescents with High Functioning Autism , 2009, AAAI Fall Symposium: Virtual Healthcare Interaction.

[23]  Gregory D. Abowd,et al.  Socially computed scripts to support social problem solving skills , 2012, CHI.

[24]  Jacob O. Wobbrock,et al.  In the shadow of misperception: assistive technology use and social interactions , 2011, CHI.

[25]  V. Braun,et al.  Using thematic analysis in psychology , 2006 .

[26]  Tamara C Daley From symptom recognition to diagnosis: children with autism in urban India. , 2004, Social science & medicine.

[27]  Gregory D. Abowd,et al.  Towards designing social question-and-answer systems for behavioral support of individuals with autism , 2015, 2015 9th International Conference on Pervasive Computing Technologies for Healthcare (PervasiveHealth).

[28]  "He Is Intelligent but Different": Stakeholders' Perspectives on Children on the Autism Spectrum in an Urban Indian School Context. , 2014 .

[29]  E. Schopler,et al.  Toward objective classification of childhood autism: Childhood Autism Rating Scale (CARS) , 1980, Journal of autism and developmental disorders.

[30]  Gregory D. Abowd,et al.  REACT: intelligent authoring of social skills instructional modules for adolescents with high-functioning Autism , 2011, ASAC.

[31]  Erkki Sutinen,et al.  Technology in Finnish Special Education - Toward Inclusion and Harmonized School Days , 2007, Informatics Educ..

[32]  Fred D. Davis,et al.  A Theoretical Extension of the Technology Acceptance Model: Four Longitudinal Field Studies , 2000, Management Science.

[33]  D. Mcgoldrick THE UNITED NATIONS CONVENTION ON THE RIGHTS OF THE CHILD , 1991 .

[34]  Pranee Liamputtong,et al.  Handbook of Research Methods in Health Social Sciences , 2018 .

[35]  Kathleen Koenig,et al.  Unstrange minds: Remapping the world of autism , 2007 .

[36]  Markku Turunen,et al.  Gesture-based Interaction for Individuals with Developmental Disabilities in India , 2016, ASSETS.

[37]  Nakull Gupta,et al.  Tell Me About Autism: Autism Resources for India , 2014, ACM DEV-5 '14.

[38]  Scott P. Robertson,et al.  Proceedings of the SIGCHI Conference on Human Factors in Computing Systems , 1991 .

[39]  Gregory D. Abowd,et al.  SocialMirror: motivating young adults with autism to practice life skills in a social world , 2012, CSCW.

[41]  G. Hofstede Dimensionalizing cultures: The Hofstede model in context , 2011 .

[42]  Joyojeet Pal,et al.  The challenges of technology research for developing regions , 2006, IEEE Pervasive Computing.

[43]  H. Lyytinen,et al.  GraphoLearn India: The Effectiveness of a Computer-Assisted Reading Intervention in Supporting Struggling Readers of English , 2018, Front. Psychol..

[44]  Kala Parasuram,et al.  Variables that affect teachers’ attitudes towards disability and inclusive education in Mumbai, India , 2006 .

[45]  Gregory D. Abowd,et al.  Designing a social network to support the independence of young adults with autism , 2012, CSCW.