Changes and challenges to patients' lifestyle patterns following treatment for head and neck cancer.

AIM This paper is a report of a study to explore the changes and challenges to patients' lifestyles following treatment for head and neck cancer. BACKGROUND Head and neck cancer affects some of the most basic aspects of daily functioning, such as eating and speaking. There has been a rapid increase in the number of studies on the quality of life for people with head and neck cancer, but most studies have used quantitative methodology. METHODS Using a qualitative approach, data were collected in 2004 using semi-structured interviews with a purposive sample of 10 participants who had completed treatment 6-12 months earlier for head and neck cancer. A thematic analysis was employed to interpret the findings. FINDINGS Following thematic analysis seven broad themes were identified, five of which covered areas of changes and challenges to participants' lifestyles following treatment. These were: physical changes, concerns about cancer, work and day-to-day tasks, interpersonal relationships and social functioning. The concerns and challenges experienced following treatment were not limited to one aspect of an individual's lifestyle but spanned a number of the themes identified, highlighting the complexity of needs following treatment for head and neck cancer. The other two themes concerned personal attributes that facilitated or inhibited posttreatment coping and specific information needs in the posttreatment period. CONCLUSION Specific posttreatment concerns and challenges cannot be viewed as unitary or discrete aspects of life, but should be considered within a biopsychosocial context, to address patients' needs holistically.

[1]  E. Rosenthal,et al.  Influence of social support on health‐related quality of life outcomes in head and neck cancer , 2007, Head & neck.

[2]  C. Nutting,et al.  Questionnaire analysis of the swallowing‐related outcomes following total laryngectomy , 2006, Clinical otolaryngology : official journal of ENT-UK ; official journal of Netherlands Society for Oto-Rhino-Laryngology & Cervico-Facial Surgery.

[3]  P. Parsons,et al.  Head and neck cancer: past, present and future , 2006, Expert review of anticancer therapy.

[4]  K. Komura,et al.  The appraisal of positive life changes following cancer diagnosis: An interview study , 2006, Palliative and Supportive Care.

[5]  G. Humphris,et al.  Psychological responses and support needs of patients following head and neck cancer. , 2006, International journal of surgery.

[6]  P. White,et al.  Altered body image: appearance-related concerns of people with visible disfigurement. , 2004, Journal of advanced nursing.

[7]  R. Newell,et al.  The information needs of head and neck cancer patients prior to surgery. , 2004, Annals of the Royal College of Surgeons of England.

[8]  M. Charlson,et al.  How do cancer patients who try to take control of their disease differ from those who do not? , 2004, European Journal of Cancer Care.

[9]  D. Ronis,et al.  Disability in patients with head and neck cancer. , 2004, Archives of otolaryngology--head & neck surgery.

[10]  R. Newell,et al.  A literature review of head and neck cancer patients information needs, experiences and views regarding decision-making. , 2004, European journal of cancer care.

[11]  Diana Harcourt,et al.  Body image and disfigurement: issues and interventions. , 2004, Body image.

[12]  M. Larsson,et al.  Lived experiences of eating problems for patients with head and neck cancer during radiotherapy. , 2003, Journal of clinical nursing.

[13]  S. Rogers,et al.  Fear of recurrence and possible cases of anxiety and depression in orofacial cancer patients. , 2003, International journal of oral and maxillofacial surgery.

[14]  Guo-Pei Yu,et al.  Head and neck cancer incidence trends in young Americans, 1973-1997, with a special analysis for tongue cancer. , 2002, Archives of otolaryngology--head & neck surgery.

[15]  P. Papanikolaou,et al.  Pain experience following radical treatment for head and neck cancer. , 2001, European journal of oncology nursing : the official journal of European Oncology Nursing Society.

[16]  A. Sherman,et al.  Coping with head and neck cancer during different phases of treatment , 2000, Head & neck.

[17]  G. Hordijk,et al.  Prediction of depressive symptomatology after treatment of head and neck cancer: The influence of pre‐treatment physical and depressive symptoms, coping, and social support , 2000, Head & neck.

[18]  R. Newell Psychological difficulties amongst plastic surgery ex-patients following surgery to the face: a survey. , 2000, British journal of plastic surgery.

[19]  J. Clarke Hermeneutic analysis: a qualitative decision trail. , 1999, International journal of nursing studies.

[20]  G. Humphris,et al.  Fear of Cancer Recurrence — A Literature Review and Proposed Cognitive Formulation to Explain Exacerbation of Recurrence Fears , 1997, Psycho-oncology.

[21]  J. M. van Doorne,et al.  Facial disfigurement after cancer resection: a problem with an extra dimension. , 1994, Journal of investigative surgery : the official journal of the Academy of Surgical Research.

[22]  O. Brodin,et al.  Anxiety and cancer-related worry of cancer patients at routine follow-up visits. , 1994, Acta oncologica.

[23]  M. Argyle The Psychology of Social Class , 1993 .

[24]  C. Baker Factors associated with rehabilitation in head and neck cancer , 1992, Cancer nursing.

[25]  J. V. Wood,et al.  It Could Be Worse: Selective Evaluation as a Response to Victimization , 1983 .

[26]  Beatrice A. Wright,et al.  Physical disability - a psychosocial approach, 2nd ed. , 1983 .

[27]  B. A. Wright,et al.  Physical Disability—a Psychological Approach , 1960 .