Transitioning care for adolescents with spina bifida in the US: challenges for management
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[1] M. Quigley,et al. Neonatal and infant mortality associated with spina bifida: A systematic review and meta-analysis , 2021, PloS one.
[2] Zachary J. Tempel,et al. Comparison of Follow-Up Length-Matched Single-Center Myelomeningocele Postnatal Closure Cohort to the Management of Myelomeningocele Study (MOMS) Trial Results , 2021, Pediatric Neurosurgery.
[3] J. Fletcher,et al. Prenatal Repair and Physical Functioning Among Children With Myelomeningocele: A Secondary Analysis of a Randomized Clinical Trial. , 2021, JAMA pediatrics.
[4] A. Dumont,et al. The Global Burden of Neural Tube Defects and Disparities in Neurosurgical Care. , 2021, World neurosurgery.
[5] H. Pachón,et al. A 2019 global update on folic acid‐preventable spina bifida and anencephaly , 2020, Birth defects research.
[6] J. Fletcher,et al. Prenatal Repair of Myelomeningocele and School-age Functional Outcomes , 2020, Pediatrics.
[7] S. Bayat,et al. Urological disorders are still the leading cause of inhospital death in patients with spina bifida. , 2019, Urology.
[8] A. Flannery,et al. Congress of Neurological Surgeons Systematic Review and Evidence-Based Guidelines for Pediatric Myelomeningocele: Executive Summary. , 2019, Neurosurgery.
[9] D. Zarnow,et al. Improved Postoperative Metrics with Modified Myofascial Closure in Fetal Myelomeningocele Repair. , 2019, Operative neurosurgery.
[10] K. Jansen,et al. Neurodevelopmental outcome of children with spina bifida aperta repaired prenatally vs postnatally: systematic review and meta‐analysis , 2019, Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology.
[11] J. Brock,et al. The Management of Myelomeningocele Study: full cohort 30‐month pediatric outcomes , 2017, American journal of obstetrics and gynecology.
[12] L. Lindeke,et al. Developing a Transition Care Coordination Program for Youth With Spina Bifida. , 2017, Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners.
[13] M. Cain,et al. All Incontinence is Not Created Equal: Impact of Urinary and Fecal Incontinence on Quality of Life in Adults with Spina Bifida , 2017, The Journal of urology.
[14] Jennifer Williams,et al. Describing the Prevalence of Neural Tube Defects Worldwide: A Systematic Literature Review , 2016, PloS one.
[15] L. Sutton,et al. Fetal Myelomeningocele Closure: Technical Considerations , 2014, Fetal Diagnosis and Therapy.
[16] M. Winckel,et al. A systematic review on bowel management and the success rate of the various treatment modalities in spina bifida patients , 2013, Spinal Cord.
[17] L. Dias,et al. Orthopaedic management of spina bifida—part II: foot and ankle deformities , 2011, Journal of children's orthopaedics.
[18] J. Roach,et al. Adult Consequences of Spina Bifida: A Cohort Study , 2011, Clinical orthopaedics and related research.
[19] Brad E Dicianno,et al. Hospitalizations of adults with spina bifida and congenital spinal cord anomalies. , 2010, Archives of physical medicine and rehabilitation.
[20] P. Oakeshott,et al. Expectation of life and unexpected death in open spina bifida: a 40‐year complete, non‐selective, longitudinal cohort study , 2009, Developmental medicine and child neurology.
[21] L. Dias,et al. Orthopedic management of spina bifida. Part I: hip, knee, and rotational deformities , 2009, Journal of children's orthopaedics.
[22] G. Oakley. The scientific basis for eliminating folic acid-preventable spina bifida: a modern miracle from epidemiology. , 2009, Annals of epidemiology.
[23] S. Sawyer,et al. Young people with chronic illness: the approach to transition , 2007, Internal medicine journal.
[24] Lijing Ouyang,et al. Health care expenditures of children and adults with spina bifida in a privately insured U.S. population. , 2007, Birth defects research. Part A, Clinical and molecular teratology.
[25] M. Post,et al. High prevalence of incontinence among young adults with spina bifida: description, prediction and problem perception , 2005, Spinal Cord.
[26] T. Sadler,et al. Embryology of neural tube development , 2005, American journal of medical genetics. Part C, Seminars in medical genetics.
[27] R. D. Merz,et al. First‐year mortality rates for selected birth defects, Hawaii, 1986–1999 , 2003, American journal of medical genetics. Part A.
[28] Tadanori Tomita,et al. Spina Bifida Outcome: A 25-Year Prospective , 2001, Pediatric Neurosurgery.
[29] T. Webb. Optimizing health care for adults with spina bifida. , 2010, Developmental disabilities research reviews.