Transitioning care for adolescents with spina bifida in the US: challenges for management

[1]  M. Quigley,et al.  Neonatal and infant mortality associated with spina bifida: A systematic review and meta-analysis , 2021, PloS one.

[2]  Zachary J. Tempel,et al.  Comparison of Follow-Up Length-Matched Single-Center Myelomeningocele Postnatal Closure Cohort to the Management of Myelomeningocele Study (MOMS) Trial Results , 2021, Pediatric Neurosurgery.

[3]  J. Fletcher,et al.  Prenatal Repair and Physical Functioning Among Children With Myelomeningocele: A Secondary Analysis of a Randomized Clinical Trial. , 2021, JAMA pediatrics.

[4]  A. Dumont,et al.  The Global Burden of Neural Tube Defects and Disparities in Neurosurgical Care. , 2021, World neurosurgery.

[5]  H. Pachón,et al.  A 2019 global update on folic acid‐preventable spina bifida and anencephaly , 2020, Birth defects research.

[6]  J. Fletcher,et al.  Prenatal Repair of Myelomeningocele and School-age Functional Outcomes , 2020, Pediatrics.

[7]  S. Bayat,et al.  Urological disorders are still the leading cause of inhospital death in patients with spina bifida. , 2019, Urology.

[8]  A. Flannery,et al.  Congress of Neurological Surgeons Systematic Review and Evidence-Based Guidelines for Pediatric Myelomeningocele: Executive Summary. , 2019, Neurosurgery.

[9]  D. Zarnow,et al.  Improved Postoperative Metrics with Modified Myofascial Closure in Fetal Myelomeningocele Repair. , 2019, Operative neurosurgery.

[10]  K. Jansen,et al.  Neurodevelopmental outcome of children with spina bifida aperta repaired prenatally vs postnatally: systematic review and meta‐analysis , 2019, Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology.

[11]  J. Brock,et al.  The Management of Myelomeningocele Study: full cohort 30‐month pediatric outcomes , 2017, American journal of obstetrics and gynecology.

[12]  L. Lindeke,et al.  Developing a Transition Care Coordination Program for Youth With Spina Bifida. , 2017, Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners.

[13]  M. Cain,et al.  All Incontinence is Not Created Equal: Impact of Urinary and Fecal Incontinence on Quality of Life in Adults with Spina Bifida , 2017, The Journal of urology.

[14]  Jennifer Williams,et al.  Describing the Prevalence of Neural Tube Defects Worldwide: A Systematic Literature Review , 2016, PloS one.

[15]  L. Sutton,et al.  Fetal Myelomeningocele Closure: Technical Considerations , 2014, Fetal Diagnosis and Therapy.

[16]  M. Winckel,et al.  A systematic review on bowel management and the success rate of the various treatment modalities in spina bifida patients , 2013, Spinal Cord.

[17]  L. Dias,et al.  Orthopaedic management of spina bifida—part II: foot and ankle deformities , 2011, Journal of children's orthopaedics.

[18]  J. Roach,et al.  Adult Consequences of Spina Bifida: A Cohort Study , 2011, Clinical orthopaedics and related research.

[19]  Brad E Dicianno,et al.  Hospitalizations of adults with spina bifida and congenital spinal cord anomalies. , 2010, Archives of physical medicine and rehabilitation.

[20]  P. Oakeshott,et al.  Expectation of life and unexpected death in open spina bifida: a 40‐year complete, non‐selective, longitudinal cohort study , 2009, Developmental medicine and child neurology.

[21]  L. Dias,et al.  Orthopedic management of spina bifida. Part I: hip, knee, and rotational deformities , 2009, Journal of children's orthopaedics.

[22]  G. Oakley The scientific basis for eliminating folic acid-preventable spina bifida: a modern miracle from epidemiology. , 2009, Annals of epidemiology.

[23]  S. Sawyer,et al.  Young people with chronic illness: the approach to transition , 2007, Internal medicine journal.

[24]  Lijing Ouyang,et al.  Health care expenditures of children and adults with spina bifida in a privately insured U.S. population. , 2007, Birth defects research. Part A, Clinical and molecular teratology.

[25]  M. Post,et al.  High prevalence of incontinence among young adults with spina bifida: description, prediction and problem perception , 2005, Spinal Cord.

[26]  T. Sadler,et al.  Embryology of neural tube development , 2005, American journal of medical genetics. Part C, Seminars in medical genetics.

[27]  R. D. Merz,et al.  First‐year mortality rates for selected birth defects, Hawaii, 1986–1999 , 2003, American journal of medical genetics. Part A.

[28]  Tadanori Tomita,et al.  Spina Bifida Outcome: A 25-Year Prospective , 2001, Pediatric Neurosurgery.

[29]  T. Webb Optimizing health care for adults with spina bifida. , 2010, Developmental disabilities research reviews.