'You have to be almost dead before they ever really work on you in prison': A qualitative study of formerly incarcerated women's health care experiences during incarceration in Louisiana, U.S.

Globally, the rate of incarceration among women is rising, and in the U.S., women's incarceration has grown at twice the rate for men over the last four decades. Louisiana has the second highest rate of incarceration in the U.S. There is evidence that men in Louisiana prisons do not receive adequate healthcare, but little is known about their women counterparts. We aimed to document formerly incarcerated women's experiences with receiving healthcare during incarceration in Louisiana to inform policy and practice change. In partnership with two community-based organisations in New Orleans, Louisiana, between August 2016 and April 2018, we conducted semi-structured 1-hr interviews with 22 formerly incarcerated women who had been incarcerated in the state for at least one consecutive year. A convenience sample of participants was recruited through community-based organisations' re-entry and health programmes. Our interview guide included questions about experiences with accessing care, reproductive health needs, interactions with providers and preventive care during incarceration. We used applied thematic analysis techniques to interpret data. Over 90% of interviewees identified as Black. Their mean age was 50.7. The average length of incarceration was 8.4 years. Participants reported multiple barriers to accessing care including punishment for seeking care, long wait times, costs, lack of respect from providers and health concerns being dismissed. Participants reported limited mental health, preventive and dental services; an insufficient number of providers; and poor health outcomes as a result of delayed care. Overall, women did not have access to adequate, timely care during incarceration. Findings suggest a need for policy changes related to the provision of carceral healthcare services and external oversight of prison conditions and healthcare delivery. Further research into women's experiences of ageing during incarceration and tailored transitional health models is needed.

[1]  A. Hashmi,et al.  Qualitative exploration of the medical learner’s journey into correctional health care at an academic medical center and its implications for medical education , 2020, Advances in Health Sciences Education.

[2]  K. Matteson,et al.  Cervical Cancer Screening Access, Outcomes, and Prevalence of Dysplasia in Correctional Facilities: A Systematic Review. , 2019, Journal of women's health.

[3]  Ida Gremyr,et al.  “Brave Men” and “Emotional Women”: A Theory-Guided Literature Review on Gender Bias in Health Care and Gendered Norms towards Patients with Chronic Pain , 2018, Pain research & management.

[4]  Brian R. Wyant,et al.  “Prison Ain’t Free Like Everyone Thinks” , 2017, Qualitative health research.

[5]  Ashley Wennerstrom,et al.  Bringing it all back home: Understanding the medical difficulties encountered by newly released prisoners in New Orleans, Louisiana – a qualitative study , 2017, Health & social care in the community.

[6]  Sherman A. James O encontro mais estranho de todos: discriminação étnica e racial no sistema de saúde dos Estados Unidos , 2017 .

[7]  Kathleen M. MacQueen,et al.  Applied Thematic Analysis , 2011 .

[8]  J. Peipert,et al.  The influence of stress on the menstrual cycle among newly incarcerated women. , 2007, Women's health issues : official publication of the Jacobs Institute of Women's Health.

[9]  Kenneth Wells,et al.  Strategies for academic and clinician engagement in community-participatory partnered research. , 2007, JAMA.