Strengthening the Participation of Organisations of Persons with Disabilities in the Decision-Making of National Government and the United Nations: Further Analyses of the International Disability Alliance Global Survey

The participation of organisations of persons with disabilities (OPDs) is crucial at each stage of policy processes at the local, regional, and international levels. However, decision-making mechanisms have traditionally excluded OPDs, failing to consult with them on decisions that impact on their daily lives. The overall aim of this study was to examine the participation of persons with disabilities and OPDs in development programmes and policies by exploring recommendations from a sample of OPDs on ways to strengthen their participation with government and the UN. Secondary data analysis was conducted using a global survey on the participation of OPDs, administered by the International Disability Alliance to OPD representatives. Two open-ended items were analysed, which explored participants’ recommendations on ways to strengthen their participation with government and the UN. Data were analysed using the descriptive and interpretive qualitative methods. Respondents provided recommendations on how to strengthen their participation with their national government and the UN, focusing on several issues including accessibility, human rights, and the need for inclusion of all OPDs and all groups of persons with disabilities. The synergy between the Convention on the Rights of Persons with Disabilities and the Sustainable Development Goals presents opportunities for OPDs to increase their participation in development policies and programmes. It is vital, however, to dismantle the barriers to participation in decision-making by OPDs and persons with disabilities.

[1]  J. McVeigh,et al.  Scaling of Organisations of Persons with Disabilities: A Case Study in the People’s Democratic Republic of Lao , 2021, Disability, CBR & Inclusive Development.

[2]  T. Shakespeare,et al.  Triple jeopardy: disabled people and the COVID-19 pandemic , 2021, The Lancet.

[3]  L. Waddington,et al.  The Post-2020 European Disability Strategy , 2020 .

[4]  Adrià Albareda,et al.  Conceptualizing consultation approaches: identifying combinations of consultation tools and analyzing their implications for stakeholder diversity , 2020, Policy Sciences.

[5]  A. Schippers,et al.  Politically disabled: barriers and facilitating factors affecting people with disabilities in political life within the European Union , 2020 .

[6]  D. Ferri,et al.  International and European Disability Law and Policy: Text, Cases and Materials , 2019 .

[7]  Marguerite Schneider,et al.  Policy Development: An Analysis of Disability Inclusion in a Selection of African Union Policies , 2019, Development Policy Review.

[8]  Filippo Trevisan,et al.  Technology and Grassroots Inclusion in Global Governance: A Survey Study of Disability Rights Advocates and Effective Participation , 2019, HICSS.

[9]  M. Maclachlan,et al.  Access to assistive technology for people with intellectual disabilities: a systematic review to identify barriers and facilitators , 2018, Journal of intellectual disability research : JIDR.

[10]  A. Rasmussen,et al.  Public voices in the heavenly chorus? Group type bias and opinion representation , 2018, Journal of European Public Policy.

[11]  Coomara Pyaneandee Participation in Political and Public Life , 2018, International Disability Law.

[12]  Rosemary Joan Gowran,et al.  Assistive technology policy: a position paper from the first global research, innovation, and education on assistive technology (GREAT) summit , 2018, Disability and rehabilitation. Assistive technology.

[13]  R. Price Strengthening Participation of People with Disabilities in Leadership Roles in Developing Countries , 2018 .

[14]  R. Traustadóttir,et al.  The Inclusion of the Lived Experience of Disability in Policymaking , 2017 .

[15]  J. Beadle‐Brown,et al.  “More Honoured in the Breach than in the Observance”—Self-Advocacy and Human Rights , 2017 .

[16]  C. Halberstadt What We Are. , 2017, JAMA.

[17]  M. Maclachlan,et al.  Social Inclusion and Mental Health of Children with Physical Disabilities in Gaza, Palestine , 2017 .

[18]  M. Maclachlan,et al.  Assistive products and the Sustainable Development Goals (SDGs) , 2016, Globalization and Health.

[19]  S. Dickens International Day of Persons with Disabilities , 2016 .

[20]  Charles Normand,et al.  Promoting good policy for leadership and governance of health related rehabilitation: a realist synthesis , 2016, Globalization and Health.

[21]  Kateřina Vráblíková What Kind of Democracy? Participation, Inclusiveness and Contestation , 2016 .

[22]  M. Priestley,et al.  The political participation of disabled people in Europe: Rights, accessibility and activism , 2016 .

[23]  R. Haldar International Day of Persons with Disabilities, 3 December 2015 , 2015 .

[24]  S. Meyers Global Civil Society as Megaphone or Echo Chamber?: Voice in the International Disability Rights Movement , 2014 .

[25]  M. Maclachlan,et al.  Is Disability a Health Problem , 2013 .

[26]  Member States,et al.  Convention on the Rights of Persons with Disabilities and Optional Protocol , 2012 .

[27]  Hasheem Mannan,et al.  Core Concepts of Human Rights and Inclusion of Vulnerable Groups in the Disability and Rehabilitation Policies of Malawi, Namibia, Sudan, and South Africa , 2012 .

[28]  Kay Lehman Schlozman,et al.  The Unheavenly Chorus: Unequal Political Voice and the Broken Promise of American Democracy , 2012 .

[29]  M. Maclachlan,et al.  Social inclusion of people with disabilities in poverty reduction policies and instruments: initial impressions from Malawi and Uganda , 2011 .

[30]  Robert Elliott,et al.  Descriptive and interpretive approaches to qualitative research , 2005 .

[31]  L. Yardley,et al.  Research Methods for Clinical and Health Psychology , 2003 .

[32]  James I. Charlton Nothing About Us Without Us: Disability Oppression and Empowerment , 1998 .

[33]  C. Dolea,et al.  World Health Organization , 1949, International Organization.

[34]  Miriam Haselbacher What kind of democracy? Participation, Inclusiveness and Contestation , 2017 .

[35]  H. Hudebine,et al.  The United Nations Convention on the rights of persons with disabilities: Opportunities and tensions within the social inclusion and participation of persons with disabilities , 2015 .

[36]  M. Maclachlan,et al.  Facilitating Disability Inclusion in Poverty Reduction Processes: Group Consensus Perspectives from Disability Stakeholders in Uganda, Malawi, Ethiopia, and Sierra Leone , 2014 .

[37]  C. Vega,et al.  Convention on the Rights of Persons with Disabilities and Optional Protocol , 2013 .

[38]  Marguerite Schneider,et al.  EquiFrame: a framework for analysis of the inclusion of human rights and vulnerable groups in health policies. , 2011, Health and human rights.