Stereotypes about caregiving and lessons from the Swedish panorama of care

This article analyzes the panorama of care provision in Sweden from the informal carers' perspective. We consider informal care, publicly financed services, for-profit agencies and voluntary organizations, using a survey conducted in 2009. Most cared-for persons with minor needs living in a separate household are helped also by others, but only a tenth use public services or other providers. About half of cared-for persons with major needs living in a separate household receive care also from other informal carers as well as public services. Only 1 in 10 of them relied on no one else beyond the carer interviewed. Among intra household carers—a minority of all persons cared for—it was common that the carer was alone in his/her commitment, without any contributions from public services or others. For the large majority of informal carers it is not a solitary undertaking as the commitment is often shared with family members and others and/or public services. The results suggest that ideal types about complementarity and substitution may understate the complex interplay between informal care and the public services (and potential other providers). The findings may suggest a need for more empirical research about ‘Care Cultures’ and expose simplistic representations of welfare societies; informal care plays a major—and increasing—role also in Sweden, a country with extensive public services.

[1]  Gun-Britt Trydegård Tradition, change and variation : past and present trends in public old-age care , 2000 .

[2]  E. Grassman,et al.  Helpful citizens and caring families: Patterns of informal help and caregiving in Sweden in a 17‐year perspective , 2012 .

[3]  M. Jegermalm Carers in the welfare state : on informal care and support for carers in Sweden , 2005 .

[4]  M. Nolan Gillian Parker and Dot Lawton, Different Types of Care, Different Types of Carer: Evidence from the General Household Survey , Her Majesty's Stationery Office, London, 121 pp., £12.50, ISBN 0 117 01783 3. , 1994, Ageing and Society.

[5]  A. Whitaker Family involvement in the institutional eldercare context. Towards a new understanding , 2009 .

[6]  E. Jeppsson-Grassman What is the role of the Third Sector in Nordic care for elderly people , 2006 .

[7]  M. Jegermalm Informal care and support for carers in Sweden: patterns of service receipt among informal caregivers and care recipients , 2004 .

[8]  E. Grassman,et al.  Links between informal caregiving and volunteering in Sweden: a 17-year perspective , 2013 .

[9]  J. Hinterlong Productive Engagement Among Older Americans: Prevalence, Patterns, and Implications for Public Policy , 2008, Journal of aging & social policy.

[10]  G. Esping-Andersen Welfare States in Transition , 1996 .

[11]  L. Johansson Caring for the next of kin : on informal care of the elderly in Sweden , 1991 .

[12]  B. Malmberg,et al.  Diversification of old-age care services for older people: Trade-offs between coverage, diversification and targeting in European countries , 2011 .

[13]  L. Hassing,et al.  The shifting balance of long-term care in Sweden. , 2002, The Gerontologist.

[14]  G. Sundström,et al.  Carers in Sweden: The public support they receive, and the support they desire , 2013 .

[15]  I. N. A. C. I. J. H. Fowler Book Review: Connected: The surprising power of our social networks and how they shape our lives. , 2009 .

[16]  Eva Jeppsson Grassman,et al.  Caregiving and Volunteering Among Older People in Sweden—Prevalence and Profiles , 2009, Journal of aging & social policy.

[17]  G. Sundström Demography of Aging in the Nordic Countries , 2009 .

[18]  E. Litwak,et al.  Helping the elderly : the complementary roles of informal networks and formal systems , 1986 .

[19]  Agnes Blome,et al.  Family and the Welfare State in Europe , 2009 .

[20]  H. Solheim,et al.  The Nordic countries , 1998 .

[21]  G. Esping‐Andersen,et al.  Why We Need A New Welfare State , 2002 .

[22]  G. Esping‐Andersen,et al.  The Three Worlds of Welfare Capitalism , 1990 .

[23]  Markus Kraus,et al.  Informal care provision in Europe: regulation and profile of providers. ENEPRI Research Report No. 96, November 2011 , 2011 .

[24]  C. Glendinning,et al.  Care Provision within Families and its Socio-Economic Impact on Care Providers , 2009 .