Social Behavior

The social construction of illness is a major research perspective in medical sociology. This article traces the roots of this perspective and presents three overarching constructionist findings. First, some illnesses are particularly embedded with cultural meaning—which is not directly derived from the nature of the condition—that shapes how society responds to those afflicted and influences the experience of that illness. Second, all illnesses are socially constructed at the experiential level, based on how individuals come to understand and live with their illness. Third, medical knowledge about illness and disease is not necessarily given by nature but is constructed and developed by claims-makers and interested parties. We address central policy implications of each of these findings and discuss fruitful directions for policy-relevant research in a social constructionist tradition. Social constructionism provides an important counterpoint to medicine’s largely deterministic approaches to disease and illness, and it can help us broaden policy deliberations and decisions.

[1]  L. Prior,et al.  Doing things with illness. The micro politics of the CFS clinic. , 2001, Social science & medicine.

[2]  P. Conrad,et al.  Another Piece to an Unfinished Puzzle@@@Having Epilepsy: The Experience and Control of Illness. , 1983 .

[3]  Joy Hirsch Magnetic appeal: MRI and the myth of transparency , 2009 .

[4]  S. Bell,et al.  Sociological Perspectives on the Medicalization of Menopause , 1990, Annals of the New York Academy of Sciences.

[5]  A. Strauss Chronic illness and the quality of life , 1975 .

[6]  A. Aalborg,et al.  Barriers to routine gynecological cancer screening for White and African-American obese women , 2006, International Journal of Obesity.

[7]  Chandak Sengoopta,et al.  Disciplining reproduction: modernity, American life sciences, and “the problems of sex” , 2000, Medical History.

[8]  C. Freytag The Wounded Storyteller: Body Illness, and Ethics , 1996, Nature Medicine.

[9]  H. Floyd,et al.  Bodies in Protest: Environmental Illness and the Struggle Over Medical Knowledge , 1997 .

[10]  Riessman Ck Women and medicalization: a new perspective. , 1983 .

[11]  R. Lichtenstein,et al.  Health policy approaches to population health: the limits of medicalization. , 2007, Health affairs.

[12]  P. Brown,et al.  Popular epidemiology and toxic waste contamination: lay and professional ways of knowing. , 1992, Journal of health and social behavior.

[13]  H. Becker,et al.  Outsiders: Studies in the Sociology of Deviance. , 1964 .

[14]  Peter Conrad,et al.  The Medicalization of Society: On the Transformation of Human Conditions into Treatable Disorders , 2007 .

[15]  Michael Oliver,et al.  DEFINING IMPAIRMENT AND DISABILITY: ISSUES AT STAKE , 1996 .

[16]  S. Markens,et al.  THE PROBLEMATIC OF “EXPERIENCE” , 1996 .

[17]  B. Turner,et al.  Medical power and social knowledge , 1987 .

[18]  V. Brown,et al.  Toxic Exposures: Contested Illnesses and the Environmental Health Movement [Book Review] , 2007 .

[19]  M. Bury Chronic illness as biographical disruption. , 1982, Sociology of health & illness.

[20]  J. Lorber,et al.  Gender and the social construction of illness , 1997 .

[21]  V. Pitts,et al.  Illness and Internet Empowerment: Writing and Reading Breast Cancer in Cyberspace , 2004, Health.

[22]  J. Gusfield Categories of Ownership and Responsibility in Social Issues: Alcohol Abuse and Automobile Use , 1975 .

[23]  R. Linton The Study of Man , 1937 .

[24]  Julius A. Roth,et al.  The experience and management of chronic illness , 1987 .

[25]  Colin Barnes,et al.  Exploring Disability: A Sociological Introduction , 1999 .

[26]  M. Hardey Doctor in the house: the Internet as a source of lay health knowledge and the challenge to expertise , 1999 .

[27]  M. Foucault,et al.  Discipline and Punish: The Birth of the Prison. , 1978 .

[28]  Brenda Silverman,et al.  Good Days, Bad Days: The Self in Chronic Illness and Time , 1993 .

[29]  G. M. Miyashiro,et al.  [The illness narratives: suffering, healing and the human condition]. , 1991, Cadernos de saude publica.

[30]  J. Gusfield Moral Passage: The Symbolic Process in Public Designations of Deviance , 1967 .

[31]  Patricia Radin "To me, it's my life": medical communication, trust, and activism in cyberspace. , 2006, Social science & medicine.

[32]  Phenomenology and the Social Sciences , 1962 .

[33]  J. Wakefield,et al.  The Loss of Sadness: How Psychiatry Transformed Normal Sorrow into Depressive Disorder , 2007 .

[34]  Peter Conrad,et al.  The experience of illness: Recent and new directions , 1987 .

[35]  John I. Kitsuse,et al.  Constructing Social Problems , 1977 .

[36]  J. Krantz,et al.  The birth of the clinic. An archaeology of medical perception , 1975, Medical History.

[37]  H. Blumer,et al.  Symbolic Interactionism: Perspective and Method , 1988 .

[38]  Henrik Loodin,et al.  The politics of life itself Biomedicine, power, and subjectivity in the twenty-first century , 2009 .

[39]  S. Zickmund,et al.  Living with Diabetes , 2008, The Diabetes educator.

[40]  S. M. Suibhne Asylums: Essays on the Social Situation of Mental Patients and other Inmates , 2009 .

[41]  A. Fearnley Inclusion: The Politics of Difference in Medical Research , 2008 .

[42]  J. Angrist,et al.  Consequences of Employment Protection? The Case of the Americans with Disabilities Act , 1998, Journal of Political Economy.

[43]  J Popay,et al.  Public health research and lay knowledge. , 1996, Social science & medicine.

[44]  C. Vassy,et al.  [The awareness of dying]. , 1993, Soins; la revue de reference infirmiere.

[45]  K. Barker,et al.  A ship upon a stormy sea: the medicalization of pregnancy. , 1998, Social science & medicine.

[46]  Ray Moynihan The Rise of Viagra: How the Little Blue Pill Changed Sex in America , 2005, BMJ : British Medical Journal.

[47]  Marla Gold Mortal Secrets: Truth and Lies in the Age of AIDS , 2004, Annals of Internal Medicine.

[48]  J. Brown,et al.  The experience of asthma. , 1992, Social science & medicine.

[49]  Howard Waitzkin,et al.  The Politics of Medical Encounters: How Patients and Doctors Deal With Social Problems , 1991 .

[50]  P. D'Antonio Deviance and Medicalization: From Badness to Sickness , 1996, Nursing History Review.

[51]  E. Riska GENDERING THE MEDICALIZATION THESIS , 2003 .

[52]  B. Mintzes,et al.  For and against: Direct to consumer advertising is medicalising normal human experience: For. , 2002, BMJ : British Medical Journal.

[53]  K. Brownell,et al.  Obesity metaphors: how beliefs about the causes of obesity affect support for public policy. , 2009, The Milbank quarterly.

[54]  E. Goffman Stigma; Notes On The Management Of Spoiled Identity , 1964 .

[55]  P. Brown,et al.  Naming and framing: the social construction of diagnosis and illness. , 1995, Journal of health and social behavior.

[56]  James Mathers,et al.  Illness as Metaphor , 1981 .

[57]  B. Werble Outsiders Studies in the Sociology of Deviance. , 1966 .

[58]  Z. Gussow,et al.  Status, Ideology, and Adaptation to Stigmatized Illness: A Study of Leprosy , 1968 .

[59]  A. C. Haddon,et al.  The Study of Man , 1898, Nature.

[60]  Barbara A. Lee,et al.  A Decade of the Americans with Disabilities Act: Judicial Outcomes and Unresolved Problems , 2003 .

[61]  Katie J. Ward,et al.  The 'expert patient': empowerment or medical dominance? The case of weight loss, pharmaceutical drugs and the Internet. , 2005, Social science & medicine.

[62]  J. Cockburn For her own good. 150 years of the experts' advice to women , 1979, Medical History.

[63]  Simon J Williams,et al.  Sleep and society : sociological ventures into the (un)known... , 2013 .

[64]  P. Berger,et al.  The Social Construction of Reality , 1966 .

[65]  E. Armstrong Conceiving Risk, Bearing Responsibility: Fetal Alcohol Syndrome and the Diagnosis of Moral Disorder , 2003 .

[66]  E. Freidson Claims Examined. (Book Reviews: Profession of Medicine. A Study of the Sociology of Applied Knowledge) , 1970 .

[67]  I. Hacking The Social Construction of What , 1999 .

[68]  Phil Brown,et al.  Embodied health movements: new approaches to social movements in health. , 2004, Sociology of health & illness.

[69]  Stefan Timmermans,et al.  Postmortem: How Medical Examiners Explain Suspicious Deaths , 2006 .

[70]  J. Dumit Illnesses you have to fight to get: facts as forces in uncertain, emergent illnesses. , 2006, Social science & medicine.

[71]  I. K. Zola Missing Pieces: A Chronicle of Living With a Disability , 1982 .

[72]  K. Barker Electronic Support Groups, Patient-Consumers, and Medicalization: The Case of Contested Illness∗ , 2008, Journal of health and social behavior.

[73]  Heather Hartley,et al.  The ‘Pinking’ of Viagra Culture: Drug Industry Efforts to Create and Repackage Sex Drugs for Women , 2006 .

[74]  Steven A. Haas,et al.  Towards a sociology of disease. , 2008, Sociology of health & illness.

[75]  Thomas I. Mackie,et al.  Estimating the costs of medicalization. , 2010, Social science & medicine.

[76]  Peter Conrad,et al.  The discovery of hyperkinesis: notes on the medicalization of deviant behavior. , 1975, Social problems.

[77]  L. Eisenberg Disease and illness Distinctions between professional and popular ideas of sickness , 1977, Culture, medicine and psychiatry.

[78]  R. J. Evenson The Fibromyalgia Story: Medical Authority and Women's Worlds of Pain (review) , 2005 .

[79]  D. Wallwork Handbook of Medical Sociology. , 1963 .

[80]  S. Epstein Impure Science: AIDS, Activism, and the Politics of Knowledge , 1998, Nature Medicine.

[81]  I. K. Zola,et al.  Medicine as an Institution of Social Control , 1972, The Sociological review.

[82]  R. Weitz Living with the stigma of AIDS , 1990 .