What do cognitively intact older people think about the use of electronic tracking devices for people with dementia? A preliminary analysis

ABSTRACT Background: The issue of using advanced tracking technologies such as Global Positioning Systems (GPS) is part of a wider debate on the acceptability of assistive technology to older people with dementia. The use of GPS can enhance the personal safety of older people by alerting caregivers to potential dangers or adverse events that might threaten the individual's health and safety, but at the same time it raises ethical concerns. This study examines the attitudes of cognitively intact older people toward the use of tracking devices for people with dementia. Methods: The analysis is based on quantitative data from a convenience sample (n = 42) and qualitative data gathered from two focus groups of cognitively intact older people in Israel. Results: Whereas cognitively intact older people clearly differentiate between themselves and people with dementia, they support the use of tracking devices when dementia is either formally diagnosed or its signs are evident. They value the safety of people with dementia above preserving their autonomy. Although they perceive the decision to use tracking devices as an intra-family issue, they expect guidance from professional caregivers of people with dementia. The acceptability of tracking devices is dependent on their appropriate weight, size and ease of use. Conclusions: Cognitively intact older people favor the idea of tracking people with dementia. To facilitate family decision-making on the use of tracking devices, structured meetings guided by professionals and including persons with dementia and their family caregivers are suggested.

[1]  K. Kelly,et al.  EXECUTIVE SUMMARY: PROFESSIONAL PARTNERS SUPPORTING FAMILY CAREGIVERS , 2008 .

[2]  M Greaves,et al.  Screening for thrombophilia in high-risk situations: systematic review and cost-effectiveness analysis. The Thrombosis: Risk and Economic Assessment of Thrombophilia Screening (TREATS) study. , 2006, Health technology assessment.

[3]  Anna Essén,et al.  The two facets of electronic care surveillance: an exploration of the views of older people who live with monitoring devices. , 2008, Social science & medicine.

[4]  S. O’Keeffe,et al.  Advance directives for truth disclosure. , 2005, Chest.

[5]  P. Olivier,et al.  Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence , 2009, International Psychogeriatrics.

[6]  J. Georges,et al.  Alzheimer's disease in real life – the dementia carer's survey , 2008, International journal of geriatric psychiatry.

[7]  R. Hauser,et al.  Do Older Adults Know Their Spouses' End-of-Life Treatment Preferences? , 2009, Research on aging.

[8]  F. Miskelly A novel system of electronic tagging in patients with dementia and wandering. , 2004, Age and ageing.

[9]  E. Papastavrou,et al.  Caring for a relative with dementia: family caregiver burden. , 2007, Journal of advanced nursing.

[10]  É. Azoulay,et al.  End-of-life family conferences: Rooted in the evidence , 2006, Critical care medicine.

[11]  Alan Bryman,et al.  Analyzing Qualitative Data , 1994 .

[12]  B. Elliott,et al.  Family decision-making in advanced dementia: narrative and ethics. , 2009, Scandinavian journal of caring sciences.

[13]  Noam Shoval,et al.  Who should make the decision on the use of GPS for people with dementia? , 2011, Aging & mental health.

[14]  C. McCreadie,et al.  The acceptability of assistive technology to older people , 2005, Ageing and Society.

[15]  R. McShane,et al.  Non-pharmacological interventions for wandering of people with dementia in the domestic setting. , 2007, The Cochrane database of systematic reviews.

[16]  Yaakov Stern,et al.  Disruptive behavior as a predictor in Alzheimer disease. , 2007, Archives of neurology.

[17]  Noam Shoval,et al.  Families’ and Professional Caregivers’ Views of Using Advanced Technology to Track People With Dementia , 2010, Qualitative health research.

[18]  F. Oswald,et al.  The use of advanced tracking technologies for the analysis of mobility in Alzheimer's disease and related cognitive diseases , 2008, BMC geriatrics.

[19]  Katie Brittain,et al.  Balancing rights and risks: Conflicting perspectives in the management of wandering in dementia , 2007 .

[20]  H O Dickinson,et al.  Effectiveness and acceptability of non‐pharmacological interventions to reduce wandering in dementia: a systematic review , 2007, International journal of geriatric psychiatry.

[21]  R. Kenward,et al.  The feasibility of electronic tracking devices in dementia: a telephone survey and case series , 1998, International journal of geriatric psychiatry.

[22]  Gail K. Auslander,et al.  Attitudes of Family and Professional Care-Givers towards the Use of GPS for Tracking Patients with Dementia: An Exploratory Study , 2009 .

[23]  B. L. Beattie,et al.  Disclosure of the diagnosis of dementia , 2007, Alzheimer's & Dementia.

[24]  M. Delazer,et al.  Decision making under risk and under ambiguity in Parkinson's disease , 2009, Neuropsychologia.

[25]  Vincent Rialle,et al.  What Do Family Caregivers of Alzheimer’s Disease Patients Desire in Smart Home Technologies? , 2009, Methods of Information in Medicine.

[26]  J. Bond,et al.  A systematic literature review of the effectiveness of non-pharmacological interventions to prevent wandering in dementia and evaluation of the ethical implications and acceptability of their use. , 2006, Health technology assessment.

[27]  D. Brudney Choosing for Another: Beyond Autonomy and Best Interests , 2009, The Hastings Center report.

[28]  L. Spencer,et al.  Qualitative data analysis for applied policy research , 2002 .