Coping With Cancer: A Web-Based Educational Program for Early and Middle Adolescents

Educating patients is a primary responsibility of all nurses; however, because of time constraints and staff shortages, pediatric oncology nurses are often unable to adequately prepare patients for cancer treatment. Instead, patients frequently rely on the Internet as a source of information about cancer, some of which can be outdated and inaccurate. Adolescents regard the Internet as a valuable source of health information as it is easily accessible, less threatening, and confidential. Considering the need for accurate, readily available information for adolescents with cancer, the purpose of this study was to develop and validate an innovative, interactive Web-based educational program to prepare early and middle adolescents for cancer treatment. Titled “Coping With Cancer,” this program was developed by the investigator after conducting in-depth interviews of adolescent cancer survivors and their parents. Based on the transactional model of coping, the program focuses on enhancing the adolescent’s knowledge of cancer, cancer treatment, and healthy coping strategies. Coping With Cancer can be an effective resource for pediatric oncology nurses in providing ongoing education for adolescents with cancer.

[1]  H. Kyngäs,et al.  Coping with the onset of cancer: coping strategies and resources of young people with cancer. , 2001, European journal of cancer care.

[2]  D. Borzekowski,et al.  Adolescent cybersurfing for health information: a new resource that crosses barriers. , 2001, Archives of pediatrics & adolescent medicine.

[3]  P. Hinds Quality of life in children and adolescents with cancer. , 1990, Seminars in oncology nursing.

[4]  Chronic Disease Division Cancer facts and figures , 2010 .

[5]  M. Sandelowski,et al.  Three months in the symptom life of a teenage girl undergoing treatment for cancer. , 2006, Research in nursing & health.

[6]  F. Spicer Adolescence , 1909, The Hospital.

[7]  A Kreuger,et al.  Pain in paediatric oncology: interviews with children, adolescents and their parents , 1999, Acta paediatrica.

[8]  B. Brillhart Internet Education for Spinal Cord Injury Patients: Focus on Urinary Management , 2007, Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses.

[9]  J. Moskowitz,et al.  Coping: pitfalls and promise. , 2004, Annual review of psychology.

[10]  C. Sykes,et al.  A systematic review of computer-based softwares for educating patients with coronary heart disease. , 2007, Patient education and counseling.

[11]  C. Phillips,et al.  The Adolescent/Young Adult Experience , 2004, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.

[12]  D. Pinkel Childhood cancer mortality , 1996, The Lancet.

[13]  S. Folkman,et al.  Stress, appraisal, and coping , 1974 .

[14]  P. McGrath,et al.  American Academy of Pediatrics Report of the Subcommittee on Assessment and Methodologic Issues in the Management of Pain in Childhood Cancer. , 1990, Pediatrics.

[15]  L. Ries,et al.  Cancer incidence and survival among children and adolescents: United States SEER Program 1975-1995. , 1999 .

[16]  C. la Vecchia,et al.  Childhood cancer mortality in Europe, 1955--1995. , 2001, European journal of cancer.

[17]  L. O'mara,et al.  Talking With Others Who “Just Know”: Perceptions of Adolescents With Cancer Who Participate in a Teen Group , 2008, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.

[18]  M. Hare Comparing research priorities for pediatric oncology from two panels of experts. , 2005, Seminars in oncology nursing.

[19]  Yaling Lee,et al.  Uncertainty, Posttraumatic Stress, and Health Behavior in Young Adult Childhood Cancer Survivors , 2006, Nursing research.

[20]  D. Wantland,et al.  The Effectiveness of Web-Based vs. Non-Web-Based Interventions: A Meta-Analysis of Behavioral Change Outcomes , 2004, Journal of medical Internet research.

[21]  J. Klein,et al.  Health information-seeking behaviour in adolescence: the place of the internet. , 2005, Social science & medicine.

[22]  Michael D Cabana,et al.  Do the Leading Children's Hospitals have Quality Web Sites? A Description of Children's Hospital Web Sites , 2004, Journal of medical Internet research.

[23]  L. Robison,et al.  Psychological outcomes in long-term survivors of childhood leukemia, Hodgkin's disease, and non-Hodgkin's lymphoma: a report from the Childhood Cancer Survivor Study. , 2002, Pediatrics.

[24]  C. Kleiber,et al.  Effects of distraction on children's pain and distress during medical procedures: a meta-analysis. , 1999, Nursing research.

[25]  C. Decker,et al.  Information Needs of Adolescents With Cancer , 2004, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.

[26]  M. Landolt,et al.  Predictors of coping strategy selection in paediatric patients , 2002, Acta paediatrica.

[27]  Pamela M. Kato,et al.  Psychosocial Support for Patients in Pediatric Oncology: The Influences of Parents, Schools, Peers, and Technology , 2003, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.

[28]  P. Mouren [Treatment of pain]. , 1958, Marseille medical.

[29]  H. Kyngäs Patient education: perspective of adolescents with a chronic disease. , 2003, Journal of clinical nursing.

[30]  Klaus Krippendorff,et al.  Content Analysis: An Introduction to Its Methodology , 1980 .

[31]  Malcolm A. Smith,et al.  An Overview of Progress in Childhood Cancer Survival , 2004, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.

[32]  L. Degner,et al.  Expectations and beliefs about children's cancer symptoms: perspectives of children with cancer and their families. , 2003, Oncology nursing forum.

[33]  Lindsey A. Torre,et al.  Cancer Facts and Figures for Hispanics/Latinos 2015-2017 , 1905 .

[34]  R. Montemayor Early Adolescence and the Search for Self. , 1990 .

[35]  G. Walco,et al.  Procedural pain management in pediatric oncology: a review of the literature. , 1999, Cancer investigation.

[36]  T. McCready Procedure‐Related Cancer Pain in Children , 2003 .

[37]  M. C. Hooke,et al.  Symptom clusters in children with cancer. , 2007, Seminars in oncology nursing.

[38]  Carolyn A. Watters,et al.  Technology in pediatric pain management , 2006 .

[39]  K. Forte,et al.  Pain Management for the Child with Cancer in End-of-Life Care: APON Position Paper , 2002, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.

[40]  Jennifer N Stinson,et al.  e-Ouch: Usability Testing of an Electronic Chronic Pain Diary for Adolescents With Arthritis , 2006, The Clinical journal of pain.

[41]  Gilan El Saadawi,et al.  Caring Connection: Developing an Internet Resource for Family Caregivers of Children with Cancer , 2005, AMIA.

[42]  C. Eiser,et al.  Children's Behaviour Following Diagnosis of Acute Lymphoblastic Leukaemia , 2007, Clinical child psychology and psychiatry.

[43]  P. Hinds Adolescent-Focused Oncology Nursing Research , 2004 .

[44]  L. Linder Developmental diversity in symptom research involving children and adolescents with cancer. , 2008, Journal of pediatric nursing.

[45]  L. Walker,et al.  Brief report: Assessment of children's gastrointestinal symptoms for clinical trials. , 2002, Journal of pediatric psychology.

[46]  D. P. Hymovich The meaning of cancer to children. , 1995, Seminars in oncology nursing.