Research with children: a critical review of the guidelines

The development of research with children highlights a number of ethical issues for the research process concerning consent, confidentiality and protection from harm. This article aims to analyse the extent to which these issues have been considered within the published guidance for research involving children. Several key principles emerged: there is consensus that it is unethical not to conduct research with children; consent should be obtained from both the child and the parent or guardian; where the child does not have sufficient understanding of what is involved and the implications of such involvement, the assent of the child should be sought; children involved in research should be made aware that, where information concerning risks to themselves or others emerges, confidentiality cannot be guaranteed; and finally researchers must consider the potential impact of research participation on the child, building methods of providing support to children into the research proposal.

[1]  Acs Task Force on Professionalism Code of professional conduct. , 2003 .

[2]  Marc Taylor,et al.  Research governance framework for health and social care. , 2002, Health & social care in the community.

[3]  M. Broome,et al.  The consent process and children. , 1992, Research in nursing & health.

[4]  J. Masson Doing research with children and young people , 2004 .

[5]  I. Hutchby,et al.  Children And Social Competence: Arenas Of Action , 1998 .

[6]  S. Mclean The Legal Context , 2005 .

[7]  M. Madlom Guidelines for the ethical conduct of medical research involving children , 2000, Archives of disease in childhood.

[8]  A. James Doing Research with Children and Young People , 2005 .

[9]  N. McIntosh,et al.  Guidelines for the ethical conduct of medical research involving children. Royal College of Paediatrics, Child Health: Ethics Advisory Committee. , 2000, Archives of disease in childhood.

[10]  L. Weathers,et al.  Children's consent to treatment , 1994, BMJ.

[11]  Lily Lee Ethical Issues Related to Research Involving Children , 1991, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.

[12]  David Jones Listening to children. , 2002, Child abuse & neglect.

[13]  P. Alderson Children's consent to surgery , 1993 .

[14]  T. Waterston,et al.  The Convention on the Rights of the Child , 2006, The Lancet.

[15]  Ann Mahon,et al.  Researching Children: Methods and Ethics , 1996 .

[16]  E. Forman,et al.  Guidelines for Research , 1991 .

[17]  J. Tripp,et al.  Consent, rights, and choices in health care for children and young people , 2003 .

[18]  Priscilla Alderson,et al.  Listening to children: Children, Social Research and Ethics , 1995 .

[19]  V. Morrow,et al.  The Ethics of Social Research with Children: An Overview† , 1996 .