Participation and quality of life in children with Duchenne muscular dystrophy using the International Classification of Functioning, Disability, and Health

[1]  S. Carlson,et al.  Trends by age in youth physical activity: Youth Media Campaign Longitudinal Survey. , 2011, Medicine and science in sports and exercise.

[2]  D. Livesey,et al.  The relationship between motor performance and peer relations in 9- to 12-year-old children. , 2011, Child: care, health and development.

[3]  Catherine Klersy,et al.  Quality of Life in Duchenne Muscular Dystrophy: The Subjective Impact on Children and Parents , 2011, Journal of child neurology.

[4]  E. Zanoteli,et al.  Duchenne muscular dystrophy: quality of life among 95 patients evaluated using the Life Satisfaction Index for Adolescents. , 2011, Arquivos de neuro-psiquiatria.

[5]  S. Pandya,et al.  Change in Natural History of Duchenne Muscular Dystrophy With Long-term Corticosteroid Treatment: Implications for Management , 2010, Journal of child neurology.

[6]  A. Nicorici,et al.  Relationship Between Clinical Outcome Measures and Parent Proxy Reports of Health-Related Quality of Life in Ambulatory Children With Duchenne Muscular Dystrophy , 2010, Journal of child neurology.

[7]  Jay J. Han,et al.  The 6‐minute walk test as a new outcome measure in Duchenne muscular dystrophy , 2010, Muscle & nerve.

[8]  A. Bundy,et al.  Health-related Quality of Life in Boys With Duchenne Muscular Dystrophy: Agreement Between Parents and Their Sons , 2010, Journal of child neurology.

[9]  Craig McDonald,et al.  Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care , 2010, The Lancet Neurology.

[10]  Jay J. Han,et al.  New Clinical End Points in Rehabilitation Medicine: Tools for Measuring Quality of Life , 2009, The American journal of hospice & palliative care.

[11]  A. Colver.  Quality of life and participation , 2009, Developmental medicine and child neurology.

[12]  D. Revicki,et al.  The linkage between pediatric quality of life and health conditions: establishing clinically meaningful cutoff scores for the PedsQL. , 2009, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.

[13]  D. Drotar,et al.  Pain and activity limitations in children with Duchenne or Becker muscular dystrophy , 2008, Developmental medicine and child neurology.

[14]  M. Sampaolesi,et al.  New therapies for Duchenne muscular dystrophy: challenges, prospects and clinical trials. , 2007, Trends in molecular medicine.

[15]  C. Angelini.  The role of corticosteroids in muscular dystrophy: A critical appraisal , 2007, Muscle & nerve.

[16]  Tasha M Burwinkle,et al.  Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales , 2007, Health and quality of life outcomes.

[17]  M. Grootenhuis,et al.  Living with muscular dystrophy: health related quality of life consequences for children and adults , 2007, Health and quality of life outcomes.

[18]  J. Tidball,et al.  The role of free radicals in the pathophysiology of muscular dystrophy. , 2007, Journal of applied physiology.

[19]  A. Jette,et al.  Association of environmental factors with levels of home and community participation in an adult rehabilitation cohort. , 2006, Archives of physical medicine and rehabilitation.

[20]  V. Hinton,et al.  Social Behavior Problems in Boys with Duchenne Muscular Dystrophy , 2006, Journal of developmental and behavioral pediatrics : JDBP.

[21]  M. Law,et al.  Successful Participation: The Lived Experience among Children with Disabilities , 2006, Canadian journal of occupational therapy. Revue canadienne d'ergotherapie.

[22]  F. Boyer,et al.  Factors relating to carer burden for families of persons with muscular dystrophy. , 2006, Journal of rehabilitation medicine.

[23]  K. Bushby,et al.  Duchenne Muscular Dystrophy: Advances in Therapeutics , 2006, Neurology.

[24]  S. Mawson,et al.  Measurement in Duchenne muscular dystrophy: considerations in the development of a neuromuscular assessment tool. , 2006, Developmental medicine and child neurology.

[25]  M. Law,et al.  Patterns of participation in recreational and leisure activities among children with complex physical disabilities , 2006, Developmental medicine and child neurology.

[26]  A. Jette,et al.  Beyond function: predicting participation in a rehabilitation cohort. , 2005, Archives of physical medicine and rehabilitation.

[27]  J. Fock,et al.  Functional ability and muscle force in healthy children and ambulant Duchenne muscular dystrophy patients. , 2005, European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society.

[28]  Malcolm Kohler,et al.  Quality of life, physical disability, and respiratory impairment in Duchenne muscular dystrophy. , 2005, American journal of respiratory and critical care medicine.

[29]  Rune J Simeonsson,et al.  Diagnosis to Function: Classification for Children and Youths , 2005, Journal of developmental and behavioral pediatrics : JDBP.

[30]  C. L. Webb.  Parents' perspectives on coping with Duchenne muscular dystrophy. , 2005, Child: care, health and development.

[31]  Sandra A Walsh,et al.  Use of step activity monitoring for continuous physical activity assessment in boys with Duchenne muscular dystrophy. , 2005, Archives of physical medicine and rehabilitation.

[32]  C. Eiser,et al.  The measurement of health-related quality of life (QOL) in paediatric clinical trials: a systematic review , 2004, Health and quality of life outcomes.

[33]  A. Riley,et al.  Evidence that school-age children can self-report on their health. , 2004, Ambulatory pediatrics : the official journal of the Ambulatory Pediatric Association.

[34]  G. Chard.  International Classification of Functioning, Disability and Health , 2004 .

[35]  R. Fitzpatrick,et al.  Agreement between adolescent self-report and parent reports of health and well-being: results of an epidemiological study. , 2003, Child: care, health and development.

[36]  C. McDonald.  Physical activity, health impairments, and disability in neuromuscular disease. , 2002, American journal of physical medicine & rehabilitation.

[37]  D. Vivo,et al.  Neuromuscular Disorders of Infancy, Childhood, and Adolescence: A Clinician's Approach , 2002 .

[38]  R. Forsyth,et al.  Participation in childhood. , 2002, Child: care, health and development.

[39]  P. Camfield,et al.  Duchenne Muscular Dystrophy—Parental Perceptions , 2002, Clinical pediatrics.

[40]  C. Eiser,et al.  The measurement of quality of life in children: past and future perspectives. , 2001, Journal of developmental and behavioral pediatrics : JDBP.

[41]  Michael Seid,et al.  PedsQL™ 4.0: Reliability and Validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in Healthy and Patient Populations , 2001, Medical care.

[42]  G. Ahlström,et al.  Activities of daily living and quality of life in persons with muscular dystrophy. , 2001, Journal of rehabilitation medicine.

[43]  C. Eiser,et al.  A review of measures of quality of life for children with chronic illness , 2001, Archives of disease in childhood.

[44]  M. Dijkers,et al.  Measures of social outcomes in disability research. , 2000, Archives of physical medicine and rehabilitation.

[45]  G. J. Mellenbergh,et al.  Social functioning in children with a chronic illness. , 2000, Journal of child psychology and psychiatry, and allied disciplines.

[46]  J. Varni,et al.  The PedsQL: measurement model for the pediatric quality of life inventory. , 1999, Medical care.

[47]  R. Abresch,et al.  Quality of life. Issues for persons with neuromuscular diseases. , 1998, Physical medicine and rehabilitation clinics of North America.

[48]  R. Abresch,et al.  Profiles of neuromuscular diseases. Becker's muscular dystrophy. , 1995, American journal of physical medicine & rehabilitation.

[49]  W B Kinney,et al.  Predicting life satisfaction among adults with physical disabilities. , 1992, Archives of physical medicine and rehabilitation.

[50]  B. A. Gagliardi.  The Impact of Duchenne Muscular Dystrophy on Families , 1991, Orthopedic nursing.

[51]  Eric P. Hoffman,et al.  Dystrophin: The protein product of the duchenne muscular dystrophy locus , 1987, Cell.

[52]  W. Gordon,et al.  Impact of impairment on activity patterns of children. , 1987, Archives of physical medicine and rehabilitation.

[53]  R. Witte.  The psychosocial impact of a progressive physical handicap and terminal illness (Duchenne muscular dystrophy) on adolescents and their families. , 1985, The British journal of medical psychology.

[54]  V. Dubowitz,et al.  Quantitation of muscle function in children: A prospective study in duchenne muscular dystrophy , 1982, Muscle & nerve.

[55]  M. Brooke,et al.  Clinical trial in duchenne dystrophy. I. The design of the protocol , 1981, Muscle & nerve.

[56]  L. Mâsse,et al.  Physical activity in the United States measured by accelerometer. , 2008, Medicine and science in sports and exercise.

[57]  M. Law,et al.  Measuring children's participation in recreation and leisure activities: construct validation of the CAPE and PAC. , 2007, Child: care, health and development.

[58]  Wanda I Colón.  Validity of the newly translated and culturally-adapted Spanish version of the children's assessment of participation and enjoyment & preferences for activities of children , 2007 .

[59]  Bernard Dan,et al.  Pathophysiology of duchenne muscular dystrophy: current hypotheses. , 2007, Pediatric neurology.

[60]  C. Forrest,et al.  Elementary school-aged children's reports of their health: A cognitive interviewing study , 2004, Quality of Life Research.

[61]  U. Ekelund,et al.  Physical activity levels and patterns of 9- and 15-yr-old European children. , 2004, Medicine and science in sports and exercise.

[62]  Susan Vitale,et al.  Health and Quality of Life Outcomes , 2004 .

[63]  R. Abresch,et al.  Profiles of neuromuscular diseases. Duchenne muscular dystrophy. , 1995, American journal of physical medicine & rehabilitation.

[64]  A. M. Gordon,et al.  Disorders of Muscle , 1986 .

[65]  M. Province,et al.  Clinical trials in Duchenne dystrophy. Standardization and reliability of evaluation procedures. , 1984, Physical therapy.

[66]  A. Ossipov,et al.  Duchenne muscular dystrophy , 2004 .