Using a Designathon to Develop an HIV Self-Testing Intervention to Improve Linkage to Care Among Youths in Nigeria: Qualitative Approach Based on a Participatory Research Action Framework.

BACKGROUND UNAIDS (Joint United Nations Programme on HIV and AIDS) and the Nigeria National HIV/AIDS Strategic Framework recommend HIV self-testing and youth-friendly services to enhance HIV testing, linkage to health services, and prevention. However, the voices of youths are seldom incorporated into interventions. We examined qualitative data generated from a series of participatory events in partnership with Nigerian youths focused on enhancing linkage to care. OBJECTIVE The aim of this study was to assess youth-initiated interventions developed during a designathon to improve linkage to care and sexually transmitted infection services. METHODS This study conducted a designathon informed by crowdsourcing principles and the participatory research action framework. A designathon is a multistage process including an open call, a sprint event, and follow-up activities. The open call solicited Nigerian youths (14-24 years old) to develop intervention strategies for linkage to care and youth-friendly health services. A total of 79 entries were received; from this, a subset of 13 teams responded to the open call and was invited to participate in a sprint event over 72 hours. Narratives from the open-call proposals were analyzed using grounded theory to identify emergent themes focused on youth-proposed interventions for linkage to care and youth-friendly services. RESULTS A total of 79 entries (through the web=26; offline=53) were submitted. Women or girls submitted 40 of the 79 (51%) submissions. The average age of participants was 17 (SD 2.7) years, and 64 of 79 (81%) participants had secondary education or less. Two main themes highlighted strategies for enhancing youths' HIV linkage to care: digital interventions and collaboration with youth influencers. A total of 76 participants suggested digital interventions that would facilitate anonymous web-based counseling, text prompt referrals, and related services. In addition, 16 participants noted that collaboration with youth influencers would be useful. This could involve working in partnership with celebrities, gatekeepers, or others who have a large youth audience to enhance the promotion of messages on HIV self-testing and linkage. The facilitators of youths' linkage included health facility restructuring, dedicated space for youths, youth-trained staff, youth-friendly amenities, and subsidized fees. Barriers to HIV linkage to care among youths included a lack of privacy at clinics and concerns about the potential for breaching confidentiality. CONCLUSIONS Our data suggest specific strategies that may be useful for enhancing HIV linkage to care for Nigerian youths, but further research is needed to assess the feasibility and implementation of these strategies. Designathons are an effective way to generate ideas from youths.

[1]  Jessica Parker,et al.  Understanding factors that promote uptake of HIV self-testing among young people in Nigeria: Framing youth narratives using the PEN-3 cultural model , 2022, PloS one.

[2]  C. Airhihenbuwa,et al.  Young people’s preferences for HIV self-testing services in Nigeria: a qualitative analysis , 2021, BMC Public Health.

[3]  Hongyun Fu,et al.  Sexual Health Influencer Distribution of HIV/Syphilis Self-Tests Among Men Who Have Sex With Men in China: Secondary Analysis to Inform Community-Based Interventions , 2020, Journal of medical Internet research.

[4]  Z. Iliyasu,et al.  Acceptability and correlates of HIV self-testing among university students in northern Nigeria , 2020, International journal of STD & AIDS.

[5]  J. Bauermeister,et al.  Engaging youth in mHealth: what works and how can we be sure? , 2020, mHealth.

[6]  T. Mastro,et al.  HIV comprehensive knowledge and prevalence among young adolescents in Nigeria: evidence from Akwa Ibom AIDS indicator survey, 2017 , 2020, BMC Public Health.

[7]  P. Sullivan,et al.  Electronic and other new media technology interventions for HIV care and prevention: a systematic review , 2020, Journal of the International AIDS Society.

[8]  J. Iwelunmor,et al.  Crowdsourcing Methods to Enhance HIV and Sexual Health Services: A Scoping Review and Qualitative Synthesis. , 2019, Journal of acquired immune deficiency syndromes.

[9]  B. Ferguson,et al.  Forward, Together: A Collaborative Path to Comprehensive Adolescent Sexual and Reproductive Health and Rights in Our Time. , 2019, The Journal of adolescent health : official publication of the Society for Adolescent Medicine.

[10]  J. Seeley,et al.  Exploring People’s Candidacy for Mobile Health–Supported HIV Testing and Care Services in Rural KwaZulu-Natal, South Africa: Qualitative Study , 2019, Journal of medical Internet research.

[11]  B. Dadvand,et al.  Re-conceptualising youth participation: A framework to inform action , 2018, Children and Youth Services Review.

[12]  S. Bernays,et al.  Nothing About Us Without RIGHTS—Meaningful Engagement of Children and Youth: From Research Prioritization to Clinical Trials, Implementation Science, and Policy , 2018, Journal of acquired immune deficiency syndromes.

[13]  P. Svedberg,et al.  Children and young people’s participation in developing interventions in health and well-being: a scoping review , 2018, BMC Health Services Research.

[14]  Kimberly A. Bender,et al.  A Systematic Review of Youth Participatory Action Research (YPAR) in the United States: Methodologies, Youth Outcomes, and Future Directions , 2018, Health education & behavior : the official publication of the Society for Public Health Education.

[15]  Paige L. Williams,et al.  The epidemiology of adolescents living with perinatally acquired HIV: A cross-region global cohort analysis , 2018, PLoS medicine.

[16]  Emily J Ozer Youth‐Led Participatory Action Research: Overview and Potential for Enhancing Adolescent Development , 2017 .

[17]  J. Tucker,et al.  Crowdsourcing designathon: a new model for multisectoral collaboration , 2017, BMJ Innovations.

[18]  J. Simoni,et al.  Opportunities and Challenges of Digital Technology for HIV Treatment and Prevention , 2015, Current HIV/AIDS Reports.

[19]  J. Bauermeister,et al.  Youth, Technology, and HIV: Recent Advances and Future Directions , 2015, Current HIV/AIDS Reports.

[20]  B. Brown,et al.  HIV self-testing in Nigeria: Public opinions and perspectives , 2015, Global public health.

[21]  B. Brown,et al.  Addressing the socio-development needs of adolescents living with HIV/AIDS in Nigeria: a call for action. , 2014, African journal of reproductive health.

[22]  Tessa Burton,et al.  Understanding and Engaging Key Influencers of Youth in High-Risk Urban Communities , 2012 .

[23]  M. Kretzschmar,et al.  Elimination of HIV by test and treat: a phantom of wishful thinking? , 2012, AIDS.

[24]  Laura A. Freberg,et al.  Who are the social media influencers? A study of public perceptions of personality , 2011 .

[25]  C. Johnman Research Methods in Health – Investigating Health and Health Services , 2010 .

[26]  J. Stephenson HIV and Youth , 2006 .

[27]  Nigeria.,et al.  Nigeria Demographic and Health Survey 2008 , 2004 .

[28]  Ann Bowling,et al.  Research Methods in Health: Investigating Health and Health Services , 1997 .

[29]  Emily J Ozer,et al.  Youth-Led Participatory Action Research: Developmental and Equity Perspectives. , 2016, Advances in child development and behavior.