Big Data and Disease Prevention: From Quantified Self to Quantified Communities

Big data is often discussed in the context of improving medical care, but it also has a less appreciated but equally important role to play in preventing disease. Big data can facilitate action on the modifiable risk factors that contribute to a large fraction of the chronic disease burden, such as physical activity, diet, tobacco use, and exposure to pollution. It can do so by facilitating the discovery of risk factors for disease at population, subpopulation, and individual levels, and by improving the effectiveness of interventions to help people achieve healthier behaviors in healthier environments. In this article, we describe new sources of big data in population health, explore their applications, and present two case studies illustrating how big data can be leveraged for prevention. We also discuss the many implementation obstacles that must be overcome before this vision can become a reality.

[1]  Ulf Ekelund,et al.  A systematic review of reliability and objective criterion-related validity of physical activity questionnaires , 2012, International Journal of Behavioral Nutrition and Physical Activity.

[2]  Darryl B. Hood,et al.  Does Distance Decay Modelling of Supermarket Accessibility Predict Fruit and Vegetable Intake by Individuals in a Large Metropolitan Area? , 2013, Journal of health care for the poor and underserved.

[3]  M. Carter,et al.  Adherence to a Smartphone Application for Weight Loss Compared to Website and Paper Diary: Pilot Randomized Controlled Trial , 2013, Journal of medical Internet research.

[4]  J. E. Lincoln,et al.  Actual causes of death in the United States. , 1994, JAMA.

[5]  Bradley C Martin,et al.  Smartphone medication adherence apps: potential benefits to patients and providers: response to Aungst. , 2013, Journal of the American Pharmacists Association : JAPhA.

[6]  S. Devore,et al.  Driving population health through accountable care organizations. , 2011, Health affairs.

[7]  D K Wagener,et al.  Geographic variations in US asthma mortality: small-area analyses of excess mortality, 1981-1985. , 1990, American journal of epidemiology.

[8]  Mitch Waldrop,et al.  Big data: Wikiomics , 2008, Nature.

[9]  Darcy A. Davis,et al.  Bringing Big Data to Personalized Healthcare: A Patient-Centered Framework , 2013, Journal of General Internal Medicine.

[10]  Scott Duncan,et al.  Using global positioning systems in health research: a practical approach to data collection and processing. , 2011, American journal of preventive medicine.

[11]  Misha Pavel,et al.  Advancing the Science of mHealth , 2012, Journal of health communication.

[12]  David Van Sickle,et al.  Monitoring and Improving Compliance and Asthma Control : Mapping Inhaler Use for Feedback to Patients , Physicians and Payers , 2013 .

[13]  Russ Burtner,et al.  INTERNATIONAL JOURNAL OF HEALTH GEOGRAPHICS REVIEW Open Access , 2022 .

[14]  S. Gortmaker,et al.  Health and economic burden of the projected obesity trends in the USA and the UK , 2011, The Lancet.

[15]  N. Christakis,et al.  The Spread of Obesity in a Large Social Network Over 32 Years , 2007, The New England journal of medicine.

[16]  Ester Cerin,et al.  Objectively-measured neighborhood environments and leisure-time physical activity in Chinese urban elders. , 2013, Preventive medicine.

[17]  J. Manyika Big data: The next frontier for innovation, competition, and productivity , 2011 .

[18]  Shelly Farnham,et al.  Educating the Next Generation of Data Scientists , 2013, Big Data.

[19]  Nancy Adler,et al.  Rigor, vigor, and the study of health disparities , 2012, Proceedings of the National Academy of Sciences.

[20]  Harvey V Fineberg,et al.  The paradox of disease prevention: celebrated in principle, resisted in practice. , 2013, JAMA.

[21]  D. Nemet,et al.  Health-related knowledge and preferences in low socio-economic kindergarteners , 2012, International Journal of Behavioral Nutrition and Physical Activity.

[22]  J. Gerberding,et al.  Actual causes of death in the United States, 2000. , 2004, JAMA.

[23]  J. Silvertown A new dawn for citizen science. , 2009, Trends in ecology & evolution.

[24]  Sarah Castro,et al.  Administrative Record Linkage as a Tool for Public Health Research , 2014 .

[25]  Jeremy Ginsberg,et al.  Detecting influenza epidemics using search engine query data , 2009, Nature.

[26]  M. Swan Crowdsourced Health Research Studies: An Important Emerging Complement to Clinical Trials in the Public Health Research Ecosystem , 2012, Journal of medical Internet research.

[27]  G. Kaplan,et al.  How big is big enough for epidemiology? , 2007, Epidemiology.

[28]  Declan Butler,et al.  When Google got flu wrong , 2013, Nature.

[29]  Audrey de Nazelle,et al.  Improving estimates of air pollution exposure through ubiquitous sensing technologies. , 2013, Environmental pollution.

[30]  T. Nurmagambetov,et al.  Costs of asthma in the United States: 2002-2007. , 2011, The Journal of allergy and clinical immunology.

[31]  Lindsey E. Dayer,et al.  Smartphone medication adherence apps: potential benefits to patients and providers. , 2013, Journal of the American Pharmacists Association : JAPhA.

[32]  Leslie J. Sim,et al.  Accelerating Progress in Obesity Prevention: Solving the Weight of the Nation , 2012 .

[33]  David A. Savitz,et al.  Design Issues in Small-Area Studies of Environment and Health , 2008, Environmental health perspectives.

[34]  Sheryl Magzamen,et al.  Remote Monitoring of Inhaled Bronchodilator Use and Weekly Feedback about Asthma Management: An Open-Group, Short-Term Pilot Study of the Impact on Asthma Control , 2013, PloS one.

[35]  Alexander J. Rothman,et al.  Toward a theory-based analysis of behavioral maintenance. , 2000, Health psychology : official journal of the Division of Health Psychology, American Psychological Association.

[36]  T. Davenport,et al.  Data scientist: the sexiest job of the 21st century. , 2012, Harvard business review.

[37]  Misha Pavel,et al.  Mobile Health: Revolutionizing Healthcare Through Transdisciplinary Research , 2013, Computer.

[38]  L. Akinbami,et al.  Trends in asthma prevalence, health care use, and mortality in the United States, 2001-2010. , 2012, NCHS data brief.

[39]  D. Donaire-Gonzalez,et al.  Comparison of Physical Activity Measures Using Mobile Phone-Based CalFit and Actigraph , 2013, Journal of medical Internet research.

[40]  Thomas J. Steenburgh,et al.  Motivating Salespeople: What Really Works , 2012, Harvard business review.