Chronic Conditions and School Participation of First-Year University Students—HOUSE ULisbon Study

Students with chronic conditions (CC) tend to experience several barriers in terms of their school participation and performance. Therefore, the present study aims to explore the factors related to the time of diagnosis of CC (recent/non-recent), the barriers to participation and academic success (health condition, people’s attitude towards CC and school physical environment), the physical and mental health (physical/psychological symptoms and concerns) and school-related variables (relationship with teachers and peers), regarding the school participation of first-year students with CC. This work is part of the HOUSE-Colégio F3 Project, University of Lisbon, which includes 1143 first-year university students from 17 Faculties and Institutes of the University of Lisbon. In this specific study, only the subsample of 207 students with CC was considered, 72.4% of which were female, aged between 18 and 54 years (M = 20.00; SD = 4.83). The results showed that students with a recent diagnosis of CC and students with school participation affected by the CC were those who presented more negative indicators regarding barriers to school participation, physical and mental health, and school-related variables. A greater impact of CC in terms of school participation was associated with having a recent diagnosis, with people’s attitude towards CC and with the health condition as barriers, with more psychological symptoms and worse relationships with teachers and peers. This is a relevant message for the organization of health services for students with CC at the beginning of their university studies, especially since they are often displaced from home and managing their health conditions alone (in many cases, for the first time).

[1]  Kwok W. Ng,et al.  Chronic health conditions and school experience in school-aged children in 19 European countries , 2022, European Child & Adolescent Psychiatry.

[2]  Anna M. Baker,et al.  Medical Transition to a University Setting for Students with Chronic Illnesses , 2021, Journal of College Student Development.

[3]  M. Gaspar de Matos,et al.  Chronic Conditions, School Participation and Quality of Life of Portuguese Adolescents: Highlights from the Health Behavior in School aged Children study - HBSC 2018 , 2021, Child Indicators Research.

[4]  C. Márquez,et al.  What are their thoughts about inclusion? Beliefs of faculty members about inclusive education , 2021, Higher Education.

[5]  D. Cross,et al.  Bullying and psychosocial adjustment among children with and without asthma , 2021, Journal of Psychologists and Counsellors in Schools.

[6]  E. Afrifa-Yamoah,et al.  The psychosocial impact of rare diseases among children and adolescents attending mainstream schools in Western Australia , 2021, International Journal of Inclusive Education.

[7]  A. I. Putri,et al.  Non-Communicable Diseases-Related Stigma: A Mixed-Methods Systematic Review , 2020, International journal of environmental research and public health.

[8]  C. Otte,et al.  Comorbid depression in medical diseases , 2020, Nature Reviews Disease Primers.

[9]  A. Lin,et al.  Chronic health conditions, mental health and the school: A narrative review , 2020 .

[10]  Luke T. Russell,et al.  College students’ intentions to assist peers with chronic medical conditions , 2020, Journal of American college health : J of ACH.

[11]  K. Kirkpatrick Adolescents With Chronic Medical Conditions and High School Completion: The Importance of Perceived School Belonging , 2020, Continuity in education.

[12]  N. Kasparian,et al.  Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study. , 2019, School psychology.

[13]  A. Gloster,et al.  The Common Sense Model of Self-Regulation and Acceptance and Commitment Therapy: integrating strategies to guide interventions for chronic illness , 2019, Health psychology review.

[14]  Ana Cerqueira,et al.  Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos? , 2019 .

[15]  E. Anthoine,et al.  A systematic review of dimensions evaluating patient experience in chronic illness , 2019, Health and Quality of Life Outcomes.

[16]  Eric S. Davis,et al.  Preparing High School Students With Chronic Illnesses for College Transition: Lessons Learned From College Counselors , 2019, Professional School Counseling.

[17]  L. Rollins,et al.  School Absenteeism in Children and Adolescents. , 2018, American family physician.

[18]  M. Litt,et al.  Conceptualizing pain-related stigma in adolescent chronic pain: a literature review and preliminary focus group findings , 2018, Pain reports.

[19]  José Roberto Bezerra da Silva,et al.  Diagnosis of diabetes mellitus and living with a chronic condition: participatory study , 2018, BMC Public Health.

[20]  M. Boyle,et al.  Mental disorder in children with physical conditions: a pilot study , 2018, BMJ Open.

[21]  M. Richards,et al.  Research Review: Childhood chronic physical illness and adult emotional health – a systematic review and meta‐analysis , 2017, Journal of child psychology and psychiatry, and allied disciplines.

[22]  C. Wakefield,et al.  Understanding the school experiences of children and adolescents with serious chronic illness: a systematic meta-review. , 2017, Child: care, health and development.

[23]  K. Suorsa,et al.  Illness uncertainty and illness intrusiveness as predictors of depressive and anxious symptomology in college students with chronic illnesses , 2017, Journal of American college health : J of ACH.

[24]  E. Iverson,et al.  Living a secret: Disclosure among adolescents and young adults with chronic illnesses , 2017, Chronic illness.

[25]  V. Helgeson,et al.  Adjusting to Chronic Health Conditions , 2017, Annual review of psychology.

[26]  A. Marques,et al.  Adolescent’s subjective perceptions of chronic disease and related psychosocial factors: highlights from an outpatient context study , 2016, BMC Pediatrics.

[27]  J. C. Santos,et al.  Stigma , 2016, Global qualitative nursing research.

[28]  Jackie Williams-Reade,et al.  Quality of Life and School Absenteeism in Children With Chronic Illness , 2016, The Journal of school nursing : the official publication of the National Association of School Nurses.

[29]  A. While,et al.  Transition of care for adolescents from paediatric services to adult health services. , 2016, The Cochrane database of systematic reviews.

[30]  M. Kamburova,et al.  A Healthy School Environment as a Precondition for the Welfare of Students and Staff , 2015 .

[31]  Adem Sav,et al.  Burden of treatment for chronic illness: a concept analysis and review of the literature , 2015, Health expectations : an international journal of public participation in health care and health policy.

[32]  R. Brown Perceived Stigma Among People With Chronic Health Conditions , 2015, Research on aging.

[33]  M. Boyle,et al.  Trajectories of depressive symptoms during the transition to young adulthood: the role of chronic illness. , 2015, Journal of affective disorders.

[34]  E. Scherer,et al.  College Health Service Capacity to Support Youth With Chronic Medical Conditions , 2014, Pediatrics.

[35]  Gary R Maslow,et al.  College Freshmen with Chronic Illness: A Comparison With Healthy First-Year Students , 2014 .

[36]  H. Heymans,et al.  Psychosocial well-being in young adults with chronic illness since childhood: the role of illness cognitions , 2014, Child and Adolescent Psychiatry and Mental Health.

[37]  M. Law,et al.  The effect of the environment on participation of children and youth with disabilities: a scoping review , 2013, Disability and rehabilitation.

[38]  M. Jackson The special educational needs of adolescents living with chronic illness: a literature review , 2013 .

[39]  W. Vollebergh,et al.  Peer victimization and subjective health among students reporting disability or chronic illness in 11 Western countries. , 2013, European journal of public health.

[40]  D. Quinn,et al.  Development and psychometric evaluation of the Chronic Illness Anticipated Stigma Scale , 2013, Journal of Behavioral Medicine.

[41]  B. Bradley,et al.  Do health and education agencies in the United States share responsibility for academic achievement and health? A review of 25 years of evidence about the relationship of adolescents' academic achievement and health behaviors. , 2013, The Journal of adolescent health : official publication of the Society for Adolescent Medicine.

[42]  C. Halpern,et al.  Protective connections and educational attainment among young adults with childhood-onset chronic illness. , 2012, The Journal of school health.

[43]  D. Neumark-Sztainer,et al.  Psychosocial and Health Behavior Outcomes of Young Adults with Asthma or Diabetes. , 2012, Journal of community medicine & health education.

[44]  C. Forrest,et al.  Factors Promoting or Potentially Impeding School Success: Disparities and State Variations for Children with Special Health Care Needs , 2012, Maternal and Child Health Journal.

[45]  B. Compas,et al.  Coping with chronic illness in childhood and adolescence. , 2012, Annual review of clinical psychology.

[46]  C. Halpern,et al.  Growing up with a chronic illness: social success, educational/vocational distress. , 2011, The Journal of adolescent health : official publication of the Society for Adolescent Medicine.

[47]  C. Akré,et al.  Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents , 2011, European Journal of Pediatrics.

[48]  C. Halpern,et al.  Young adult outcomes of children growing up with chronic illness: an analysis of the National Longitudinal Study of Adolescent Health. , 2011, Archives of pediatrics & adolescent medicine.

[49]  A. Berchtold,et al.  Are adolescents with chronic conditions particularly at risk for bullying? , 2009, Archives of Disease in Childhood.

[50]  Faith Gibson,et al.  The experience of living with a chronic illness during adolescence: a critical review of the literature. , 2008, Journal of clinical nursing.

[51]  T. Macdonald Preventing Chronic Diseases: A Vital Investment , 2006 .

[52]  J. McComas,et al.  Barriers and Facilitators to Inclusive Education , 2002 .

[53]  L. Rangel,et al.  Surviving chronic physical illness: psychosocial outcome in adult life , 2000, Archives of disease in childhood.

[54]  K. Hanna,et al.  Experiences of College Students Who Are Newly Diagnosed With Type 1 Diabetes Mellitus , 2019, Journal of pediatric nursing.

[55]  T. Revenson,et al.  Chronic Illness and Mental Health , 2016 .

[56]  D. Young,et al.  Childhood chronic health conditions and educational attainment: a social ecological approach. , 2015, The Journal of adolescent health : official publication of the Society for Adolescent Medicine.

[57]  G. VandenBos APA dictionary of psychology, 2nd ed. , 2015 .

[58]  F. Cavallo,et al.  Health Behaviour in School-aged Children (HBSC) , 2014 .

[59]  Å. Mattsson Long-term physical illness in childhood: a challenge to psychosocial adaptation. , 1972, Pediatrics.

[60]  Hadley Cantril,et al.  The pattern of human concerns , 1965 .