Use of local public transport among people with cognitive impairments - a literature review

Being able to move around in the community including using different modes of transport is a prerequisite for being able to participate in activities outside home. This can be particular challenging for people with cognitive impairments. Still, research regarding public transport for people with cognitive impairments is scarce. In this narrative review scientific literature focusing on people with cognitive impairments and their needs in public transport, was identified and summarised. All aspects in the travel chain perspective were of interest. Literature search engines Scirus, Elin and Cinahl were used during the search. Thirty-four articles were included and analysed according to which part of the travel chain they covered in the used model. The results showed that the articles were unevenly allocated to the different parts of the model. Future studies based on real-world experiences are essential, and more user-centred approaches should be adopted. Moreover, there is a need for the development and evaluation of evidence-based rehabilitation. Finally, more research is needed to foster societal awareness of the problems and needs in the public transport of people with cognitive impairments taking the whole travel chain into consideration.

[1]  Photo-Bus-Route-Map: An Intervention to Produce Independence in Bus Travel for Mentally Retarded Adults. , 1984 .

[2]  L. Bedini,et al.  In search of lost leisure: the impact of caregiving on leisure travel , 2004 .

[3]  R. Risser,et al.  The Challenge of Using Public Transport: Descriptions by People with Cognitive Functional Limitations , 2009 .

[4]  S. Kanowski,et al.  Limitations in activities of daily living: towards a better understanding of subthreshold mental disorders in old age. , 2000, Comprehensive psychiatry.

[5]  John A. Michon,et al.  A critical view of driver behavior models: What do we know , 1985 .

[6]  D. O’Neill Deciding on driving cessation and transport planning in older drivers with dementia , 2010 .

[7]  Nina Waara,et al.  The need of information in public transport , 2001 .

[8]  Sherrilene Classen,et al.  International Older Driver Consensus Conference on Assessment, Remediation and Counseling for Transportation Alternatives: Summary and Recommendations. , 2005, Physical & occupational therapy in geriatrics.

[9]  E. D. Newbigging,et al.  Therapy methodology. Riding the bus: teaching an adult with a brain injury to use a transit system to travel independently to and from work. , 1996, Brain injury.

[10]  Kenneth J Ottenbacher,et al.  Preliminary results for the PAR-PRO: a measure of home and community participation. , 2006, Archives of physical medicine and rehabilitation.

[11]  M. Dijkers,et al.  Participation Objective, Participation Subjective: A Measure of Participation Combining Outsider and Insider Perspectives , 2004, The Journal of head trauma rehabilitation.

[12]  Lynne Mitchell,et al.  Making the outside World Dementia-Friendly: Design Issues and Considerations , 2003 .

[13]  Susanne Iwarsson,et al.  The home environment and disability-related outcomes in aging individuals: what is the empirical evidence? , 2008, The Gerontologist.

[14]  Geri Adler,et al.  Older Adults' Perspectives on Driving Cessation , 2006 .

[15]  Gerd Johansson,et al.  A suggested virtual reality methodology allowing people with cognitive disabilities to communicate their knowledge and experiences of public transport systems , 2008 .

[16]  Jean-François Dartigues,et al.  Driving Cessation and Self-Reported Car Crashes in Older Drivers: The Impact of Cognitive Impairment and Dementia in a Population-Based Study , 2008, Journal of geriatric psychiatry and neurology.

[17]  Stephen Fickas,et al.  Route-following assistance for travelers with cognitive impairments: A comparison of four prompt modes , 2008, Int. J. Hum. Comput. Stud..

[18]  S. Iwarsson,et al.  Two dimensions of participation in very old age and their relations to home and neighborhood environments. , 2008, The American journal of occupational therapy : official publication of the American Occupational Therapy Association.

[19]  R. Risser,et al.  Exploring the influence of online traveller information services on the use of public transport by older people and people with functional limitation : A mixed methods approach , 2013 .

[20]  Stephen Fickas,et al.  Validation of the Activities of Community Transportation model for individuals with cognitive impairments , 2009, Disability and rehabilitation.

[21]  R. Risser,et al.  Exploring Mobility in Public Environments among People with Cognitive Functional Limitations—Challenges and Implications for Planning , 2010 .

[22]  Agneta Ståhl,et al.  “Let’s go for a walk!”: identification and prioritisation of accessibility and safety measures involving elderly people in a residential area , 2008, European journal of ageing.

[23]  Jenny Rosenkvist Mobility in Public Environments and Use of Public Transport : exploring the situation for people with acquired cognitive functional limitations , 2008 .

[24]  J. Gladman,et al.  Randomised controlled trial of an occupational therapy intervention to increase outdoor mobility after stroke , 2004, BMJ : British Medical Journal.

[25]  Eric Becker,et al.  Digital cities of the future: Extending @home assistive technologies for the elderly and the disabled , 2011, Telematics Informatics.

[26]  Lynne Mitchell,et al.  The Accessibility of Public Spaces for People with Dementia: A new priority for the 'open city' , 2003 .

[27]  Susanne Iwarsson,et al.  Defining Profiles of Functional Limitations in Groups of Older Persons: How and Why? , 2011, Journal of aging and health.

[28]  John R. F. Gladman,et al.  The Use of Transport by Stroke Patients , 2001 .

[29]  Laura Fratiglioni,et al.  The impact of somatic and cognitive disorders on the functional status of the elderly. , 2002, Journal of clinical epidemiology.

[30]  Yunhwan Lee,et al.  Functional disability of older persons in long-term care facilities in Korea. , 2002, Archives of gerontology and geriatrics.

[31]  B. Taylor,et al.  The effects of driving cessation on the elderly with dementia and their caregivers. , 2001, Accident; analysis and prevention.

[32]  Claude Marin-Lamellet,et al.  Information and Orientation Needs of Blind and Partially Sighted People in Public Transportation: BIOVAM Project , 2001 .

[33]  S. Iwarsson,et al.  Post-stroke functional limitations and changes in use of mode of transport. , 2010, Scandinavian journal of occupational therapy.

[34]  G. Frisoni,et al.  Alzheimer's disease-associated disability: An ICF approach , 2005, Disability and rehabilitation.

[35]  J. Keogh,et al.  Community integration after traumatic brain injury: a systematic review of the clinical implications of measurement and service provision for older adults. , 2014, Archives of physical medicine and rehabilitation.

[36]  K. Anstey,et al.  Interventions to reduce the adverse psychosocial impact of driving cessation on older adults , 2006, Clinical interventions in aging.

[37]  L. Rapport,et al.  Barriers to Driving and Community Integration After Traumatic Brain Injury , 2006, The Journal of head trauma rehabilitation.

[38]  Gerhard Fischer,et al.  Socio-technical environments supporting people with cognitive disabilities using public transportation , 2005, TCHI.

[39]  L. Reijnders,et al.  Social science and environmental behaviour , 2009 .

[40]  Clive G. Ballard,et al.  Association Between Mild Vascular Cognitive Impairment and Impaired Activities of Daily Living in Older Stroke Survivors Without Dementia , 2005, Journal of the American Geriatrics Society.

[41]  Michael D. Justiss,et al.  The Intersection of Driving With a Disability and Being a Public Transportation Passenger With a Disability , 2009 .

[42]  A Staahl ELDERLY AND FUNCTIONALLY IMPAIRED PERSONS' NEEDS OF PUBLIC TRANSPORT: PROBLEM INVENTORY AND PRESENT SITUATION , 1997 .

[43]  Doris Ma Fat,et al.  WHO Library Cataloguing-in-Publication Data , 2001 .

[44]  Sarah Tomaszewski Farias,et al.  The relationship between neuropsychological performance and daily functioning in individuals with Alzheimer's disease: ecological validity of neuropsychological tests. , 2003, Archives of clinical neuropsychology : the official journal of the National Academy of Neuropsychologists.

[45]  A. Arai,et al.  Functional status and active life expectancy among senior citizens in a small town in Japan. , 2004, Archives of gerontology and geriatrics.

[46]  B. Green,et al.  Writing narrative literature reviews for peer-reviewed journals: secrets of the trade. , 2006, Journal of chiropractic medicine.

[47]  J. Gladman,et al.  Using an interview study of transport use by people who have had a stroke to inform rehabilitation , 2004, Clinical rehabilitation.

[48]  Long-term cognitive functional limitations post stroke: objective assessment compared with self-evaluations and spouse reports , 2008, International journal of rehabilitation research. Internationale Zeitschrift fur Rehabilitationsforschung. Revue internationale de recherches de readaptation.

[49]  Bus training for developmentally disabled adults. , 1984, American journal of mental deficiency.

[50]  S. Fickas,et al.  A profile of community navigation in adults with chronic cognitive impairments , 2005, Brain injury.

[51]  Katharine Hunter-Zaworski,et al.  Bus Accessibility for People with Cognitive Disabilities , 1999 .

[52]  Agneta Ståhl,et al.  How do people with cognitive functional limitations post-stroke manage the use of buses in local public transport? , 2012 .

[53]  K. Laake,et al.  Association between impairments, self-care ability and social activities 1 year after stroke. , 1999, Disability and rehabilitation.

[54]  Gareth Wood Let's Go For A Walk , 2016 .

[55]  Anders Wretstrand,et al.  User needs and expectations relative to accessible transport: Framework for mobility planning , 2008 .

[56]  K. Asplund,et al.  Use of public transport by stroke survivors with persistent disability , 2012 .

[57]  Disease, impairment, disability and social handicap: a community based study of people aged 70 years and over. , 1994, Disability and rehabilitation.