A systematic critique of diabetes on the world wide web for patients and their physicians

PURPOSE The web, a widely accessed medium for patients to obtain health information, has special relevance for patients with diabetes. This paper critiques the publicly available web sites for diabetes, and it establishes criteria for excellence in these sites. METHODS A web search for diabetes mellitus based on Google, Yahoo, and the directory Mendosa provided the basis for the study. We defined and evaluated three major categories for each site: usability, content, and reliability. Usability was defined by design, ease of navigation, interactivity, and internal search capability. Content was based on the quality of general information about diabetes, discussions about monitoring blood glucose, meal planning, exercise, complications, medications, alternative therapies, resources, and support systems. Reliability was defined by the presence of the HON code, identification of an author, and the availability of experts. RESULTS The focused Mendosa search produced 47 web sites. The majority were published by commercial organizations. Five sites were found to have the best usability. Other sites were cluttered or inundated with distracting information from advertisements. Content was generally excellent but limited by an absence of specific advice and information about controlling associated risk factors for cardiovascular disease. Only 17% of sites met all criteria for reliability. The sites that best met the criteria for quality were the American Diabetes Association (www.diabetes.org) and the Joslin Diabetes Center (www.joslin.org). CONCLUSIONS Despite the large numbers of publicly available web sites for diabetes, only a few met criteria for quality. The physician's input and ongoing evaluation of these quality measures are essential to assure that patients get meaningful and relevant information from the web about managing diabetes.

[1]  B. Davis,et al.  Cardiovascular events and their reduction with pravastatin in diabetic and glucose-intolerant myocardial infarction survivors with average cholesterol levels: subgroup analyses in the cholesterol and recurrent events (CARE) trial. The Care Investigators. , 1998, Circulation.

[2]  Terje R Pedersen,et al.  Cholesterol Lowering With Simvastatin Improves Prognosis of Diabetic Patients With Coronary Heart Disease: A subgroup analysis of the Scandinavian Simvastatin Survival Study (4S) , 1997, Diabetes Care.

[3]  J. Sowers,et al.  Type 2 diabetes mellitus: greater cardiovascular risks and greater benefits of therapy. , 1999, Archives of internal medicine.

[4]  D W Bates,et al.  The use of information technology in improving medical performance. Part II. Physician-support tools. , 2000, MedGenMed : Medscape general medicine.

[5]  J. Powell,et al.  Empirical studies assessing the quality of health information for consumers on the world wide web: a systematic review. , 2002, JAMA.

[6]  Joshua J Seidman,et al.  Design and Testing of a Tool for Evaluating the Quality of Diabetes Consumer-Information Web Sites , 2003, Journal of medical Internet research.

[7]  Detection The sixth report of the Joint National Committee on Prevention, Detection, Evaluation, and Treatment of High Blood Pressure (JNC VI) , 1997 .

[8]  R. Holman,et al.  Tight blood pressure control and risk of macrovascular and microvascular complications in type 2 diabetes: UKPDS 38. UK Prospective Diabetes Study Group. , 1998 .

[9]  A R Jadad,et al.  Promoting partnerships: challenges for the internet age , 1999, BMJ.

[10]  W. P. Munroe,et al.  Economic evaluation of pharmacist involvement in disease management in a community pharmacy setting. , 1997, Clinical therapeutics.

[11]  D W Bates,et al.  The use of information technology in improving medical performance. Part III. Patient-support tools. , 2000, MedGenMed : Medscape general medicine.

[13]  John Renner,et al.  Criteria for assessing the quality of health information on the Internet. , 1997, American journal of public health.

[14]  D H Gustafson,et al.  Access to health information and support: a public highway or a private road? , 1998, JAMA.

[15]  William R. Hersh,et al.  Filtering Web pages for quality indicators: an empirical approach to finding high quality consumer health information on the World Wide Web , 1999, AMIA.

[16]  D. Gustafson,et al.  Impact of a patient-centered, computer-based health information/support system. , 1999, American journal of preventive medicine.

[17]  J. Biermann,et al.  Evaluation of cancer information on the Internet , 1999, Cancer.

[18]  Thomas Bodenheimer,et al.  Improving primary care for patients with chronic illness: the chronic care model, Part 2. , 2002, JAMA.

[19]  M. Laakso,et al.  Mortality from coronary heart disease in subjects with type 2 diabetes and in nondiabetic subjects with and without prior myocardial infarction. , 1998, The New England journal of medicine.

[20]  S. Goodrich,et al.  A Piece of My Mind , 2014 .

[21]  V. Salomaa,et al.  Impact of Diabetes on Mortality After the First Myocardial Infarction , 1998, Diabetes Care.

[22]  S. Inzucchi Oral antihyperglycemic therapy for type 2 diabetes: scientific review. , 2002, JAMA.

[23]  P. Impicciatore,et al.  Reliability of health information for the public on the world wide web: systematic survey of advice on managing fever in children at home , 1997, BMJ.

[24]  Thomas Bodenheimer,et al.  Improving primary care for patients with chronic illness. , 2002, JAMA.

[25]  T. Deutsch,et al.  Application of computers in diabetes care--a review. II. Computers for decision support and education. , 1995, Medical informatics = Medecine et informatique.

[26]  R. Glasgow,et al.  Feasibility and Use of an Internet Support Service for Diabetes Self-Management , 1998, The Diabetes educator.

[27]  Gbogboade Ademiluyi,et al.  Evaluating the reliability and validity of three tools to assess the quality of health information on the Internet. , 2003, Patient education and counseling.

[28]  L. Weed New connections between medical knowledge and patient care , 1997, BMJ.

[29]  Don Fallis,et al.  Research Paper: Indicators of Accuracy of Consumer Health Information on the Internet: A Study of Indicators Relating to Information for Managing Fever in Children in the Home , 2002, J. Am. Medical Informatics Assoc..

[30]  A R Jadad,et al.  Rating health information on the Internet: navigating to knowledge or to Babel? , 1998, JAMA.

[31]  E. Kimes,et al.  Evaluation of Vancomycin TDM Strategies: Prediction and Prevention of Kidney Injuries Based on Vancomycin TDM Results , 2023, Journal of Korean medical science.

[32]  B L Humphreys,et al.  Medicine and health on the Internet: the good, the bad, and the ugly. , 1998, JAMA.

[33]  Joshua J Seidman,et al.  Conceptual Framework for a New Tool for Evaluating the Quality of Diabetes Consumer-Information Web Sites , 2003, Journal of medical Internet research.

[34]  A. Jacobson,et al.  What attracts patients with diabetes to an internet support group? A 21‐month longitudinal website study , 2001, Diabetic medicine : a journal of the British Diabetic Association.

[35]  M. Winker,et al.  Guidelines for medical and health information sites on the internet: principles governing AMA web sites. American Medical Association. , 2000, JAMA.

[36]  D. Gustafson,et al.  An Evidence-Based Approach to Interactive Health Communication: A Challenge to Medicine in the Information Age , 1998 .

[37]  U. Josefsson,et al.  Patients creating self-help on the internet -lessons for future design of internet based healthcare resources , 2004, 37th Annual Hawaii International Conference on System Sciences, 2004. Proceedings of the.

[38]  S M Detwiler Quality of health information on the internet. , 2001, JAMA.

[39]  Russell E. Glasgow,et al.  Who Participates in Internet-Based Self-Management Programs? A Study Among Novice Computer Users in a Primary Care Setting , 2000, The Diabetes educator.

[40]  F. Marcus,et al.  Prognosis of patients with diabetes mellitus after acute myocardial infarction. , 1984, The American journal of cardiology.

[41]  K. Flegal,et al.  Prevalence of Diabetes, Impaired Fasting Glucose, and Impaired Glucose Tolerance in U.S. Adults: The Third National Health and Nutrition Examination Survey, 1988–1994 , 1998, Diabetes Care.

[42]  P. Wilson,et al.  The impact of diabetes on survival following myocardial infarction in men vs women. The Framingham Study. , 1988, JAMA.

[43]  R. Weinshilboum,et al.  The sixth report of the Joint National Committee on prevention, detection, evaluation, and treatment of high blood pressure. , 1997, Archives of internal medicine.

[44]  D H Gustafson,et al.  Introduction to evaluation of interactive health communication applications. Science Panel on Interactive Communication and Health. , 1999, American journal of preventive medicine.

[45]  D. Cabrol,et al.  [Clinical practice recommendations. Risk of premature birth with intact membranes. Conclusions (2002)]. , 2003, Gynecologie, obstetrique & fertilite.

[46]  R. Glasgow,et al.  Brief, Computer-Assisted Diabetes Dietary Self-Management Counseling: Effects on Behavior, Physiologic Outcomes, and Quality of Life , 2000, Medical care.

[47]  G D Lundberg,et al.  Assessing, controlling, and assuring the quality of medical information on the Internet: Caveant lector et viewor--Let the reader and viewer beware. , 1997, JAMA.

[48]  D Blumenthal,et al.  The future of quality measurement and management in a transforming health care system. , 1997, JAMA.

[49]  Lee Rainie,et al.  The online health care revolution: how the web helps americans take better care of themselves , 2000 .

[50]  S. Grundy,et al.  Diabetes and cardiovascular disease: a statement for healthcare professionals from the American Heart Association. , 1999, Circulation.

[51]  R. Kravitz,et al.  Health information on the Internet: accessibility, quality, and readability in English and Spanish. , 2001, JAMA.

[52]  Teven,et al.  MORTALITY FROM CORONARY HEART DISEASE IN SUBJECTS WITH TYPE 2 DIABETES AND IN NONDIABETIC SUBJECTS WITH AND WITHOUT PRIOR MYOCARDIAL INFARCTION , 2000 .