Model Formulation: The PING Personally Controlled Electronic Medical Record System: Technical Architecture

Despite progress in creating standardized clinical data models and interapplication protocols, the goal of creating a lifelong health care record remains mired in the pragmatics of interinstitutional competition, concerns about privacy and unnecessary disclosure, and the lack of a nationwide system for authenticating and authorizing access to medical information. The authors describe the architecture of a personally controlled health care record system, PING, that is not institutionally bound, is a free and open source, and meets the policy requirements that the authors have previously identified for health care delivery and population-wide research.

[1]  Chen-Tan Lin,et al.  Review Paper: The Effects of Promoting Patient Access to Medical Records: A Review , 2003, J. Am. Medical Informatics Assoc..

[2]  J. Fowles,et al.  Patients' interest in reading their medical record: relation with clinical and sociodemographic characteristics and patients' approach to health care. , 2004, Archives of internal medicine.

[3]  Amy Harmon As gene test menu grows, who gets to choose? , 2004, The New York times on the Web.

[4]  Eric Rescorla,et al.  HTTP Over TLS , 2000, RFC.

[5]  Kevin B. Johnson,et al.  Personal health records: evaluation of functionality and utility. , 2002, Journal of the American Medical Informatics Association : JAMIA.

[6]  Tim Moses,et al.  EXtensible Access Control Markup Language (XACML) version 1 , 2003 .

[7]  David W. Bates,et al.  A Consensus Action Agenda for Achieving the National Health Information Infrastructure , 2004, Journal of the American Medical Informatics Association.

[8]  I. Kohane,et al.  Public standards and patients' control: how to keep electronic medical records accessible but private. , 2001, BMJ : British Medical Journal.

[9]  Flora Malamateniou,et al.  Developing a virtual patient record using XML and web-based workflow technologies , 2003, Int. J. Medical Informatics.

[10]  T Hyslop,et al.  Use of cancer susceptibility testing among primary care physicians , 2003, Clinical genetics.

[11]  Ravi S. Sandhu,et al.  Role-Based Access Control Models , 1996, Computer.

[12]  R. Croyle,et al.  Physician use of genetic testing for cancer susceptibility: results of a national survey. , 2003, Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology.

[13]  Clement J. McDonald,et al.  Development of the Logical Observation Identifier Names and Codes (LOINC) vocabulary. , 1998, Journal of the American Medical Informatics Association : JAMIA.

[14]  Peter Szolovits,et al.  The Personal Internetworked Notary and Guardian , 2001, Int. J. Medical Informatics.