A cluster randomized trial of a transition intervention for adolescents with congenital heart disease: rationale and design of the CHAPTER 2 study

[1]  E. Amsterdam.  A Report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines , 2015 .

[2]  Nandini Dendukuri,et al.  Lifetime Prevalence of Congenital Heart Disease in the General Population From 2000 to 2010 , 2014, Circulation.

[3]  B. McCrindle,et al.  Healthcare transition for youth with heart disease: a clinical trial , 2014, Heart.

[4]  C. Bull,et al.  Loss to specialist follow-up in congenital heart disease; out of sight, out of mind , 2012, Heart.

[5]  G. Sawicki,et al.  Referral patterns and perceived barriers to adult congenital heart disease care: results of a survey of U.S. pediatric cardiologists. , 2012, Journal of the American College of Cardiology.

[6]  A. Marelli,et al.  Structure and process measures of quality of care in adult congenital heart disease patients: a pan-Canadian study. , 2012, International journal of cardiology.

[7]  E. Foster,et al.  Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues: a scientific statement from the American Heart Association. , 2011, Circulation.

[8]  William Livingood,et al.  Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ--Transition Readiness Assessment Questionnaire. , 2011, Journal of pediatric psychology.

[9]  W. Budts,et al.  Adolescents' understanding of their congenital heart disease on transfer to adult-focused care. , 2010, The American journal of cardiology.

[10]  M. Abrahamowicz,et al.  Changing mortality in congenital heart disease. , 2010, Journal of the American College of Cardiology.

[11]  B. Mulder,et al.  Letter by Winter et al regarding article, "Children and adults with congenital heart disease lost to follow-up: who and when?". , 2010, Circulation.

[12]  M. Schwerzmann,et al.  Canadian Cardiovascular Society 2009 Consensus Conference on the management of adults with congenital heart disease: executive summary. , 2010, The Canadian journal of cardiology.

[13]  W. Budts,et al.  Transfer of adolescents with congenital heart disease from pediatric cardiology to adult health care: an analysis of transfer destinations. , 2010, Journal of the American College of Cardiology.

[14]  B. McCrindle,et al.  Transition to adult health care for adolescents and young adults with congenital heart disease: perspectives of the patient, parent and health care provider. , 2009, The Canadian journal of cardiology.

[15]  P. Moons,et al.  Attitude Toward and Current Practice of Transfer and Transition of Adolescents with Congenital Heart Disease in the United States of America and Europe , 2009, Pediatric Cardiology.

[16]  Helvi Kyngäs,et al.  The qualitative content analysis process. , 2008, Journal of advanced nursing.

[17]  Joseph Kay,et al.  Lapse of care as a predictor for morbidity in adults with congenital heart disease. , 2008, International journal of cardiology.

[18]  David Moher,et al.  Methods and processes of the CONSORT Group: example of an extension for trials assessing nonpharmacologic treatments. , 2008, Annals of internal medicine.

[19]  J. Lathlean,et al.  Shifting the Focus: Sequential Methods of Analysis With Qualitative Data , 2008, Qualitative health research.

[20]  O. Nielsen,et al.  Screening of adults with congenital cardiac disease lost for follow-up , 2007, Cardiology in the Young.

[21]  M. Kaufman,et al.  Transition to adult care for youth with special health care needs. , 2007, Paediatrics & child health.

[22]  A. Majeed,et al.  Trends in hospital admissions, in-hospital case fatality and population mortality from congenital heart disease in England, 1994 to 2004 , 2007, Heart.

[23]  Hsiu-Fang Hsieh,et al.  Three Approaches to Qualitative Content Analysis , 2005, Qualitative health research.

[24]  C. Warnes,et al.  The adult with congenital heart disease: born to be bad? , 2005, Journal of the American College of Cardiology.

[25]  B. McCrindle,et al.  Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. , 2004, Pediatrics.

[26]  A. Dore,et al.  Transition of care to adult congenital heart centres: what do patients know about their heart condition? , 2002, The Canadian journal of cardiology.

[27]  C A Warnes,et al.  Challenges posed by adults with repaired congenital heart disease. , 2001, Circulation.

[28]  J. Hoffman,et al.  Task force 1: the changing profile of congenital heart disease in adult life. , 2001, Journal of the American College of Cardiology.

[29]  D. Taylor,et al.  Adult patients' knowledge about their congenital heart disease. , 1997, The Canadian journal of cardiology.

[30]  S. Zeger,et al.  Longitudinal data analysis using generalized linear models , 1986 .