Developing the Chinese version of the new 5-level EQ-5D descriptive system: the response scaling approach

PurposeTo develop a Chinese version of the new, 5-level EQ-5D descriptive system (EQ-5D-5L) from the existing EQ-5D-3L by identifying Chinese label wording suitable for constructing EQ-5D-5L’s 5-point response scales.MethodsIn face-to-face interviews, perceived severity of selected Chinese labels when they were used to describe EQ-5D health problems was measured from 50 native Chinese speakers using a 0 (no problems) to 100 (the worst problems) visual analog scale. Selection of label wording was based on the severity scores and semantic similarity with label wording used in the existing English and Spanish EQ-5D-5L.ResultsThe severity scores supported the use of Chinese wording of ‘only a little’ (range of median: 12.5–17), ‘moderate’ (range of median: 50–53), and ‘severe’ (range of median: 82.5–90) as the descriptors for the intermediate functional levels of the five EQ-5D dimensions and the label wording of ‘very severe’ (median: 90) to describe the worst level of pain/discomfort and anxiety/depression.ConclusionsThe Chinese version of the EQ-5D-5L comprises descriptors with similar interpretations as those used its English and Spanish counterparts. The response scaling exercise is a useful method for cross-cultural adaptation of health-status instruments.

[1]  N. Bansback,et al.  The comparative responsiveness of the EQ-5D and SF-6D to change in patients with inflammatory arthritis , 2009, Quality of Life Research.

[2]  J. Ware,et al.  Testing the equivalence of translations of widely used response choice labels: results from the IQOLA Project. International Quality of Life Assessment. , 1998, Journal of clinical epidemiology.

[3]  X. Badia,et al.  A Model of Equivalence in the Cultural Adaptation of HRQoL Instruments: The Universalist Approach , 1998, Quality of Life Research.

[4]  J. Ware,et al.  International quality of life assessment (IQOLA) project , 1992, Quality of Life Research.

[5]  P. Villiger,et al.  Simple questionnaire for assessing core outcomes in inguinal hernia repair , 2011, The British journal of surgery.

[6]  D. Feeny,et al.  Self-Reported Health Status of the General Adult U.S. Population as Assessed by the EQ-5D and Health Utilities Index , 2005, Medical care.

[7]  G. Bonsel,et al.  Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L) , 2011, Quality of Life Research.

[8]  Murtuza Bharmal,et al.  Comparing the EQ-5D and the SF-6D descriptive systems to assess their ceiling effects in the US general population. , 2006, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.

[9]  N. Jones,et al.  Testing the validity of the Euroqol and comparing it with the SF-36 health survey questionnaire , 1993, Quality of Life Research.

[10]  M. Abrahamowicz,et al.  Are indirect utility measures reliable and responsive in rheumatoid arthritis patients? , 2005, Quality of Life Research.

[11]  T. Perneger,et al.  General population reference values for the French version of the EuroQol EQ-5D health utility instrument. , 2010, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.

[12]  T. Kohlmann,et al.  Comparing preference-based quality-of-life measures: results from rehabilitation patients with musculoskeletal, cardiovascular, or psychosomatic disorders , 2008, Quality of Life Research.

[13]  D. Kindig,et al.  Variation in Chinese population health related quality of life: Results from a EuroQol study in Beijing, China , 2005, Quality of Life Research.

[14]  H. Kim,et al.  Comparing the psychometric properties of the EQ-5D-3L and EQ-5D-5L in cancer patients in Korea , 2012, Quality of Life Research.

[15]  H. Sintonen,et al.  Intensive Care Med (2010) 36:2090–2093 DOI 10.1007/s00134-010-1979-1 ORIGINAL , 2010 .

[16]  D. Wild,et al.  Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: report of the ISPOR Task Force for Translation and Cultural Adaptation. , 2005, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.