Exploring Psychosocial Support Online: A Content Analysis of Messages in an Adolescent and Young Adult Cancer Community

The increased usage of online cancer support groups as a resource for health-related information and social support has sparked numerous discussions about the role of online support in healthcare. However, little is known about the role of social-networking groups focused on supporting adolescents and young adults (AYAs) dealing with cancer. The current investigation report findings from a content analysis designed to explore how AYAs use an online support group to meet their psychosocial needs. Overall, members of the community focused on exchanging emotional and informational support, coping with difficult emotions through expression, describing experiences of being an AYA dealing with cancer through language (metaphors), enacting identity through evaluations of the new normal (life with and after cancer), and communicating membership as an AYA with cancer. This study highlights the unique needs of the AYA cancer community and offers a preliminary roadmap for practitioners, and network members, such as family and friends, to attempt to meet the needs of this unique community.

[1]  Muriel Saville-Troike,et al.  The ethnography of communication : an introduction , 1991 .

[2]  C. Phillips,et al.  The Adolescent/Young Adult Experience , 2004, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.

[3]  Christopher E. Beaudoin,et al.  Benefiting from Social Capital in Online Support Groups: An Empirical Study of Cancer Patients , 2007, Cyberpsychology Behav. Soc. Netw..

[4]  Qimei Chen,et al.  Internet Community Group Participation: Psychosocial Benefits for Women with Breast Cancer , 2005, J. Comput. Mediat. Commun..

[5]  E. Im.  Online support of patients and survivors of cancer. , 2011, Seminars in oncology nursing.

[6]  Brent Schacter,et al.  Principles and Recommendations for the Provision of Healthcare in Canada to Adolescent and Young Adult-Aged Cancer Patients and Survivors. , 2011, Journal of adolescent and young adult oncology.

[7]  Scott Keeter,et al.  How young people view their lives, futures and politics : A portrait of Generation Next , 2007 .

[8]  Kai Gu,et al.  Quality of life after breast cancer diagnosis and survival. , 2011, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[9]  B. Zebrack.  Information and service needs for young adult cancer survivors , 2009, Supportive Care in Cancer.

[10]  C. V. van Uden-Kraan,et al.  Participation in online patient support groups endorses patients' empowerment. , 2009, Patient education and counseling.

[11]  James Price Dillard,et al.  Types of Influence Goals in Personal Relationships , 1989 .

[12]  J. Grimshaw,et al.  What is an adequate sample size? Operationalising data saturation for theory-based interview studies , 2010, Psychology & health.

[13]  R. Dellavalle,et al.  Social internet sites as a source of public health information. , 2009, Dermatologic clinics.

[14]  Brent Schacter,et al.  Active therapy and models of care for adolescents and young adults with cancer , 2011, Cancer.

[15]  Bret R. Shaw,et al.  Use and Impact of eHealth System by Low-income Women With Breast Cancer , 2005, Journal of health communication.

[16]  Steven R. Wilson.  Seeking and Resisting Compliance: Why People Say What They Do When Trying to Influence Others , 2002 .

[17]  Suzanne Pingree,et al.  How Underserved Breast Cancer Patients Use and Benefit From eHealth Programs , 2006 .

[18]  Heidi Adams.  Planet Cancer: A Community of Young Adults With Cancer. , 2008, Journal of oncology practice.

[19]  Sally Murray,et al.  Medical research and social media: Can wikis be used as a publishing platform in medicine? , 2009, Open medicine : a peer-reviewed, independent, open-access journal.

[20]  A. Bleyer,et al.  Latest Estimates of Survival Rates of the 24 Most Common Cancers in Adolescent and Young Adult Americans. , 2011, Journal of adolescent and young adult oncology.

[21]  M. Ory,et al.  Outcomes of online support and resources for cancer survivors: a systematic literature review. , 2012, Patient education and counseling.

[22]  B. Zebrack.  Psychological, social, and behavioral issues for young adults with cancer , 2011, Cancer.

[23]  Thomas R. Lindlof.  Qualitative Communication Research Methods , 1994 .

[24]  M. Bulmer.  Concepts in the Analysis of Qualitative Data , 1979 .

[25]  Leslie A. Baxter,et al.  Constituting Relationships in Talk A Taxonomy of Speech Events in Social and Personal Relationships , 1996 .

[26]  Richard Crespo.  Virtual Community Health Promotion , 2007, Preventing chronic disease.

[27]  P. Watzlawick,et al.  Pragmatics of human communication , 1975 .