Patient generated health data and electronic health record integration, governance and socio-technical issues: A narrative review

[1]  Abigail C. Durrant,et al.  Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review , 2021, Frontiers in Public Health.

[2]  S. Thun,et al.  Towards FAIR Patient Reported Outcome: Application of the Interoperability Principle for Mobile Pandemic Apps , 2021, EFMI-STC.

[3]  K. Jordan,et al.  338Modelling the population distribution of patient-reported outcomes using electronic health records: a UK study , 2021, International Journal of Epidemiology.

[4]  W. Dixon,et al.  Using patient-generated health data in clinical practice: How timing influences its function in rheumatology outpatient consultations. , 2021, Patient education and counseling.

[5]  Rik Crutzen,et al.  Patient-Generated Health Data (PGHD) Interoperability: An Integrative Perspective , 2021, MIE.

[6]  Francisca Onaolapo Oladipo,et al.  Design of a FAIR digital data health infrastructure in Africa for COVID‐19 reporting and research , 2021, Advanced genetics.

[7]  Jiancheng Ye,et al.  The impact of electronic health record-integrated patient-generated health data on clinician burnout , 2021, J. Am. Medical Informatics Assoc..

[8]  G. Del Fiol,et al.  Patient-Generated Health Data in Pediatric Asthma: Exploratory Study of Providers' Information Needs , 2021, JMIR pediatrics and parenting.

[9]  P. Bloom,et al.  A Smartphone App to Manage Cirrhotic Ascites Among Outpatients: Feasibility Study , 2020, JMIR medical informatics.

[10]  Sean A Munson,et al.  How patient-generated health data and patient-reported outcomes affect patient–clinician relationships: A systematic review , 2020, Health Informatics J..

[11]  Nirusha Jeevanandan,et al.  Patient-Generated Health Data in the Clinic , 2020, MIE.

[12]  T. Kiuchi,et al.  Patient-generated health data collection using a wearable activity tracker in cancer patients—a feasibility study , 2020, Supportive Care in Cancer.

[13]  S. Bradley.  Use of Mobile Health and Patient-Generated Data-Making Health Care Better by Making Health Care Different. , 2020, JAMA network open.

[14]  K. Mandl,et al.  SMART Markers: collecting patient-generated health data as a standardized property of health information technology , 2020, npj Digital Medicine.

[15]  Cristiana Larizza,et al.  Patient-Generated Health Data Integration and Advanced Analytics for Diabetes Management: The AID-GM Platform , 2019, Sensors.

[16]  G. Del Fiol,et al.  Patient-generated health data and electronic health record integration: protocol for a scoping review , 2019, BMJ Open.

[17]  Sean A Munson,et al.  Use of patient-generated health data across healthcare settings: implications for health systems , 2019, JAMIA open.

[18]  Madhu Reddy,et al.  Provider Perspectives on Integrating Sensor-Captured Patient-Generated Data in Mental Health Care , 2019, Proc. ACM Hum. Comput. Interact..

[19]  A. Dicker,et al.  Big Data From Small Devices: The Future of Smartphones in Oncology. , 2019, Seminars in radiation oncology.

[20]  Frédéric Ehrler,et al.  Electronic Patient-Generated Health Data to Facilitate Disease Prevention and Health Promotion: Scoping Review , 2019, Journal of medical Internet research.

[21]  Julia Adler-Milstein,et al.  Early experiences with patient generated health data: health system and patient perspectives , 2019, J. Am. Medical Informatics Assoc..

[22]  Ann Borda,et al.  Patient-generated health data management and quality challenges in remote patient monitoring , 2019, JAMIA open.

[23]  Matthew Machin,et al.  Providing ‘the bigger picture’: benefits and feasibility of integrating remote monitoring from smartphones into the electronic health record , 2019, Rheumatology.

[24]  G. Demiris,et al.  Patient generated health data use in clinical practice: A systematic review. , 2019, Nursing outlook.

[25]  Kevin O. Hwang,et al.  Connecting Home-Based Self-Monitoring of Blood Pressure Data Into Electronic Health Records for Hypertension Care: A Qualitative Inquiry With Primary Care Providers , 2019, JMIR formative research.

[26]  Abdeltawab M. Hendawi,et al.  A mobile health monitoring-and-treatment system based on integration of the SSN sensor ontology and the HL7 FHIR standard , 2019, BMC Medical Informatics and Decision Making.

[27]  Sooyoung Yoo,et al.  Development of Comprehensive Personal Health Records Integrating Patient-Generated Health Data Directly From Samsung S-Health and Apple Health Apps: Retrospective Cross-Sectional Observational Study , 2019, JMIR mHealth and uHealth.

[28]  S. Mertens,et al.  SANRA—a scale for the quality assessment of narrative review articles , 2019, Research integrity and peer review.

[29]  Johan Lundin,et al.  Shift in translations: Data work with patient-generated health data in clinical practice , 2019, Health Informatics J..

[30]  S. Bini,et al.  Changes in prospectively collected longitudinal patient-generated health data are associated with short-term patient-reported outcomes after total joint arthroplasty: a pilot study , 2019, Arthroplasty today.

[31]  Jessica S. Ancker,et al.  Early Adopters of Patient-Generated Health Data Upload in an Electronic Patient Portal , 2019, Applied Clinical Informatics.

[32]  Panagiotis Plastiras,et al.  Exchanging personal health data with electronic health records: A standardized information model for patient generated health data and observations of daily living , 2018, Int. J. Medical Informatics.

[33]  Abdullah Alamri,et al.  Ontology Middleware for Integration of IoT Healthcare Information Systems in EHR Systems , 2018, Comput..

[34]  Aziz Sheikh,et al.  Five key strategic priorities of integrating patient generated health data into United Kingdom electronic health records , 2018, BMJ Health & Care Informatics.

[35]  Christine A. Caligtan,et al.  Validating a Framework for Coding Patient-Reported Health Information to the Medical Dictionary for Regulatory Activities Terminology: An Evaluative Study , 2018, JMIR medical informatics.

[36]  Yu Rang Park,et al.  Managing Patient-Generated Health Data Through Mobile Personal Health Records: Analysis of Usage Data , 2018, JMIR mHealth and uHealth.

[37]  Jacqueline Merrill,et al.  Converging and diverging needs between patients and providers who are collecting and using patient-generated health data: an integrative review , 2018, J. Am. Medical Informatics Assoc..

[38]  V. Tiase.  Navigating the patient-generated health data deluge. , 2017, Nursing management.

[39]  Gillian Dobbie,et al.  A Review of Privacy and Consent Management in Healthcare: A Focus on Emerging Data Sources , 2017, 2017 IEEE 13th International Conference on e-Science (e-Science).

[40]  N. Lv,et al.  Personalized Hypertension Management Using Patient-Generated Health Data Integrated With Electronic Health Records (EMPOWER-H): Six-Month Pre-Post Study , 2017, Journal of medical Internet research.

[41]  A. Lai,et al.  Present and Future Trends in Consumer Health Informatics and Patient-Generated Health Data , 2017, Yearbook of Medical Informatics.

[42]  Gillian R. Hayes,et al.  Integrating Patient-Generated Health Data Into Clinical Care Settings or Clinical Decision-Making: Lessons Learned From Project HealthDesign , 2016, JMIR human factors.

[43]  E. Topol,et al.  A framework for smartphone-enabled, patient-generated health data analysis , 2016, PeerJ.

[44]  Edward H. Wagner,et al.  "It just seems outside my health": How Patients with Chronic Conditions Perceive Communication Boundaries with Providers , 2016, Conference on Designing Interactive Systems.

[45]  Neil C. Evans,et al.  Integrating patient voices into health information for self-care and patient-clinician partnerships: Veterans Affairs design recommendations for patient-generated data applications , 2016, J. Am. Medical Informatics Assoc..

[46]  William B. Lober,et al.  A patient-centered system in a provider-centered world: challenges of incorporating post-discharge wound data into practice , 2016, J. Am. Medical Informatics Assoc..

[47]  Erik Schultes,et al.  The FAIR Guiding Principles for scientific data management and stewardship , 2016, Scientific Data.

[48]  William A Wood,et al.  The Value of Patient Reported Outcomes and Other Patient-Generated Health Data in Clinical Hematology , 2015, Current Hematologic Malignancy Reports.

[49]  J. Ancker,et al.  The Invisible Work of Personal Health Information Management Among People With Multiple Chronic Conditions: Qualitative Interview Study Among Patients and Providers , 2015, Journal of medical Internet research.

[50]  E. Basch,et al.  Emerging uses of patient generated health data in clinical research , 2015, Molecular oncology.

[51]  Arlene E. Chung,et al.  Potential and challenges of patient-generated health data for high-quality cancer care. , 2015, Journal of oncology practice.

[52]  C. Petersen,et al.  Legal and Regulatory Considerations Associated with Use of Patient-Generated Health Data from Social Media and Mobile Health (mHealth) Devices , 2015, Applied Clinical Informatics.

[53]  Vernessa Fountain,et al.  Using data provenance to manage patient-generated health data. , 2014, Journal of AHIMA.

[54]  Albert W Wu,et al.  When using patient-reported outcomes in clinical practice, the measure matters: a randomized controlled trial. , 2014, Journal of oncology practice.

[55]  Gregory N. Connolly,et al.  Concern about security and privacy, and perceived control over collection and use of health information are related to withholding of health information from healthcare providers , 2014, J. Am. Medical Informatics Assoc..

[56]  S. Nundy,et al.  Using Patient-Generated Health Data From Mobile Technologies for Diabetes Self-Management Support , 2014, Journal of diabetes science and technology.

[57]  Alessandro Acquisti,et al.  Silent Listeners: The Evolution of Privacy and Disclosure on Facebook , 2013, J. Priv. Confidentiality.

[58]  Yan Zhang,et al.  Designing Patient-Centered Personal Health Records (PHRs): Health Care Professionals’ Perspective on Patient-Generated Data , 2012, Journal of Medical Systems.

[59]  R. McCabe,et al.  Patient-reported outcome data generated in a clinical intervention in community mental health care - psychometric properties , 2012, BMC Psychiatry.

[60]  Subhash Bhalla,et al.  Semantic interoperability in standardized electronic health record databases , 2012, JDIQ.

[61]  Suzanne Bakken,et al.  Model development for EHR interdisciplinary information exchange of ICU common goals , 2011, Int. J. Medical Informatics.

[62]  Peter Gordon,et al.  HIV patients' willingness to share personal health information electronically. , 2011, Patient education and counseling.

[63]  Kitty S. Chan,et al.  Review: Electronic Health Records and the Reliability and Validity of Quality Measures: A Review of the Literature , 2010, Medical care research and review : MCRR.

[64]  D. Moher,et al.  Preferred reporting items for systematic reviews and meta-analyses: the PRISMA Statement , 2009, BMJ : British Medical Journal.

[65]  Rishi Saripalle,et al.  Fast Health Interoperability Resources (FHIR): Current Status in the Healthcare System , 2019, Int. J. E Health Medical Commun..

[66]  Katherine K. Kim,et al.  Improving Self-Management and Care Coordination with Person-Generated Health Data and Mobile Health , 2019, Consumer Informatics and Digital Health.

[67]  Ching-Hua Chen,et al.  Data quality challenges for person-generated health and wellness data , 2018, IBM J. Res. Dev..

[68]  Erwan Le Covec,et al.  Patient-generated Health Data (Social Media) is a Potential Source for ADR Reporting , 2017 .

[69]  Pierluigi D'Antrassi,et al.  Point of Care Research: Integrating patient-generated data into electronic health records for clinical trials , 2017, AMIA.

[70]  Catalina Danis,et al.  Incorporating Patient Generated Health Data into Chronic Disease Management: A Human Factors Approach , 2016 .

[71]  D. Z. Sandsa,et al.  Transforming Health Care Delivery Through Consumer Engagement, Health Data Transparency, and Patient-Generated Health Information , 2014, Yearbook of Medical Informatics.