Successful implementation of remote video consultations for patients receiving home parenteral nutrition in a national UK Centre

Abstract Rationale Our intestinal failure unit provides care for patients from a wide geographical area. Patients dependent on home parenteral nutrition (HPN) are routinely reviewed in the clinic at 3–6 monthly intervals. Between March 2008 and 2015, we noted a significant rise in the number of patients under our care, with an associated 51% increase in clinic appointments offered. We evaluated whether telemedicine would provide a strategy to reduce patients’ need to travel while maintaining safe clinical standards. Methods Implementation began in December 2015 via patient consultation and small tests of change. Clinical data were obtained from a prospectively maintained database. Remote video consultation discussions were carried out via internet video call service (Skype). An anonymous satisfaction questionnaire was offered to patients for completion following consultation. The number of miles saved by obviating the need to attend hospital was calculated for each patient. Results During the study period, patients receiving HPN rose by 18% to 288. Twenty-five patients used telemedicine for HPN follow-up, three of these for follow-up with the psychologist. By avoiding hospital attendance, this saved a mean travel distance of 56.7 miles with a total of 18 346.6 cumulative miles saved. Sixty-three per cent of patients rated their satisfaction with the system at ≥90%, with a mean satisfaction of 85%. Eight per cent of the telemedicine cohort was admitted with an HPN complication, compared with an admission rate of 24% for the whole HPN cohort. One emergency admission was avoided. Conclusion Telemedicine can obviate the need for clinic attendance in HPN-dependent patients, so reducing the need of individuals with chronic illness to travel while maintaining standards for follow-up.

[1]  D. Vasant,et al.  Poor Social Support and Unemployment Are Associated With Negative Affect in Home Parenteral Nutrition-Dependent Patients With Chronic Intestinal Failure. , 2018, JPEN. Journal of parenteral and enteral nutrition.

[2]  S. Saab,et al.  Patient Satisfaction and Healthcare Utilization Using Telemedicine in Liver Transplant Recipients , 2018, Digestive Diseases and Sciences.

[3]  R. Hurt,et al.  Prevalence of Home Parenteral and Enteral Nutrition in the United States , 2017, Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition.

[4]  S. Tribler,et al.  Home Parenteral Nutrition in Adult Patients With Chronic Intestinal Failure: The Evolution Over 4 Decades in a Tertiary Referral Center , 2017, JPEN. Journal of parenteral and enteral nutrition.

[5]  James E. Sabin,et al.  Ethical practice in Telehealth and Telemedicine , 2017, Journal of General Internal Medicine.

[6]  A. Van Gossum,et al.  ESPEN guidelines on chronic intestinal failure in adults. , 2016, Clinical nutrition.

[7]  Ryan Spaulding,et al.  mHealth Clinic Appointment PC Tablet: Implementation, Challenges and Solutions. , 2015, Journal of mobile technology in medicine.

[8]  A. Forbes,et al.  ESPEN endorsed recommendations. Definition and classification of intestinal failure in adults. , 2015, Clinical nutrition.

[9]  Miguel López-Coronado,et al.  Cost-utility and cost-effectiveness studies of telemedicine, electronic, and mobile health systems in the literature: a systematic review. , 2015, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[10]  R. Gilroy,et al.  Costs of multidisciplinary parenteral nutrition care provided at a distance via mobile tablets. , 2014, JPEN. Journal of parenteral and enteral nutrition.

[11]  J. Wolf Expanding the dialogue on patient experience , 2014 .

[12]  G. Huisman-de Waal,et al.  Screening for psychosocial distress in patients with long-term home parenteral nutrition. , 2013, Clinical nutrition.

[13]  S. Lal,et al.  Review article: the management of long‐term parenteral nutrition , 2013, Alimentary pharmacology & therapeutics.

[14]  M. Winkler,et al.  An exploration of quality of life and the experience of living with home parenteral nutrition. , 2010, JPEN. Journal of parenteral and enteral nutrition.

[15]  T. van Achterberg,et al.  The impact of home parenteral nutrition on daily life-a review. , 2007, Clinical nutrition.

[16]  M. Baun,et al.  Telehealth videoconferencing: improving home parenteral nutrition patient care to rural areas of Ontario, Canada. , 2007, JPEN. Journal of parenteral and enteral nutrition.

[17]  E. Hennessy,et al.  Longitudinal trends in quality of life after starting home parenteral nutrition: a randomised controlled study of telemedicine. , 2006, Clinical nutrition.

[18]  Ronald D. Moen,et al.  The Improvement Guide: A Practical Approach to Enhancing Organizational Performance , 1996 .

[19]  Susan Holmes Nutrition and the surgical patient. , 1991, Nursing standard (Royal College of Nursing (Great Britain) : 1987).

[20]  B. Parry,et al.  Nutrition and the Surgical Patient. , 2019, Journal of the National Medical Association.