The role of effective communication with children and their families in fostering adherence to pediatric regimens.

Adherence to pediatric health enhancement, disease prevention, and medical treatment, particularly for chronic disease, can be challenging because of demanding regimens, children's progressing developmental stages, and varying family perspectives and relationships. This review examines adherence in the context of communication among providers, pediatric patients, and their families. The focus is on: the delivery of prevention and treatment information; trust in the therapeutic relationship; beliefs and attitudes in shaping acceptance of health care messages; social and cultural norms; building patient and family commitment to behavior change; family habits; barriers and pressures faced by patients and their families; the role of social networks and social support in fostering adherence, and the effects of family cohesiveness and family conflict. The unique challenges of fostering preventive health care and treatment for chronic disease in the context of transition to adolescence are also considered, and effective clinical solutions are reviewed.

[1]  T. Revenson,et al.  Handbook of Health Psychology , 2001 .

[2]  A. Quittner,et al.  Family adaptation to childhood disability and illness. , 1998 .

[3]  J. Lavigne,et al.  Psychosocial Aspects of Compliance in Children and Adolescents with Asthma , 1989, Journal of developmental and behavioral pediatrics : JDBP.

[4]  C. Candy,et al.  Handbook of Pediatric and Adolescent Health Psychology , 2000 .

[5]  G. Fritz,et al.  PEDIATRIC ASTHMA : PSYCHOSOMATIC INTERACTIONS AND SYMPTOM PERCEPTION , 1998 .

[6]  O. Anson,et al.  Celiac disease: parental knowledge and attitudes of dietary compliance. , 1990, Pediatrics.

[7]  D M D'Alessandro,et al.  Empowering children and families with information technology. , 2001, Archives of pediatrics & adolescent medicine.

[8]  P. Lavori,et al.  Adherence among children and adolescents with insulin-dependent diabetes mellitus over a four-year longitudinal follow-up: II. Immediate and long-term linkages with the family milieu. , 1990, Journal of pediatric psychology.

[9]  P. Ley,et al.  Health beliefs, satisfaction and compliance. , 1987, Patient education and counseling.

[10]  W. Clarke,et al.  Parent-child relationships and the management of insulin-dependent diabetes mellitus. , 1994, Journal of consulting and clinical psychology.

[11]  J. Rodrigue.  Biopsychosocial perspectives on transplantation , 2001 .

[12]  Timothy W. Smith,et al.  Family support, physical impairment, and adherence in hemodialysis: An investigation of main and buffering effects , 1992, Journal of Behavioral Medicine.

[13]  C. Anderson,et al.  Managing Very Poor Adherence to Medication in Children and Adolescents: An Inpatient Intervention , 1999 .

[14]  K. Williams,et al.  Temperament characteristics and clinical outcomes in young children with diabetes mellitus. , 1990, Journal of child psychology and psychiatry, and allied disciplines.

[15]  J. Kamps,et al.  Empirically supported treatments in pediatric psychology: regimen adherence. , 2001, Journal of pediatric psychology.

[16]  L. Stark,et al.  Dietary Recommendations to Prevent and Manage Chronic Pediatric Health Conditions: Adherence, Intervention, and Future Directions , 2001, Journal of developmental and behavioral pediatrics : JDBP.

[17]  R. Resnick,et al.  Health psychology through the life span : practice and research opportunities , 1996 .

[18]  Judith A. Hall,et al.  Effectiveness of interventions to improve patient compliance: a meta-analysis. , 1998, Medical care.

[19]  P. Langenberg,et al.  A Treatment Program for Adolescents With Phenylketonuria , 1992, Clinical pediatrics.

[20]  S. Henggeler,et al.  Social competence and parental support as mediators of the link between stress and metabolic control in adolescents with insulin-dependent diabetes mellitus. , 1987, Journal of consulting and clinical psychology.

[21]  C. Schroeder.  Psychologists and pediatricians in collaborative practice. , 1996 .

[22]  E. Soliday,et al.  Health beliefs and pediatric emergency department after-care adherence , 2000, Annals of behavioral medicine : a publication of the Society of Behavioral Medicine.

[23]  M. Joffe,et al.  Noncompliance with scheduled revisits to a pediatric emergency department. , 1996, Archives of pediatrics & adolescent medicine.

[24]  J. Ellen,et al.  Appointment-keeping behavior in adolescents: factors associated with follow-up appointment-keeping. , 1993, Pediatrics.

[25]  M. Dew,et al.  Adherence to the Medical Regimen in Transplantation , 2001 .

[26]  J. Kulik,et al.  The effect of verbal commitment and treatment choice on medication compliance in a pediatric setting , 1987, Journal of Behavioral Medicine.

[27]  M. Robin DiMatteo,et al.  Patient Adherence and Medical Treatment Outcomes: A Meta-Analysis , 2002, Medical care.

[28]  S. Henggeler,et al.  Contributions of sibling relations to the adaptation of youths with insulin-dependent diabetes mellitus. , 1992, Journal of consulting and clinical psychology.

[29]  W. Fox.  Compliance of patients and physicians: experience and lessons from tuberculosis-I. , 1983, British medical journal.

[30]  A. Visser,et al.  Health communication research. , 1997, Patient education and counseling.

[31]  M. Zevon,et al.  Compliance of pediatric and adolescent cancer patients , 1986, Cancer.

[32]  R. Shaw.  Treatment Adherence in Adolescents: Development and Psychopathology , 2001 .

[33]  S. Johnson,et al.  A longitudinal analysis of adherence and health status in childhood diabetes. , 1992, Journal of pediatric psychology.

[34]  P. Shears.  Compliance of patients and physicians: experience and lessons from tuberculosis. , 1983, British medical journal.

[35]  N. Clark.  MANAGEMENT OF ASTHMA BY PARENTS AND CHILDREN , 1998 .

[36]  C. Boyer,et al.  Social Support and Demographic Factors Influencing Compliance of Hemodialysis Patients1 , 1990 .

[37]  H. Kyngäs.  Compliance with health regimens of adolescents with epilepsy , 2000, Seizure.

[38]  R. Glasgow,et al.  Future directions for research on pediatric chronic disease management: lessons from diabetes. , 1995, Journal of pediatric psychology.

[39]  T. Wysocki,et al.  Diabetes Mellitus in the Transition to Adulthood: Adjustment, Self‐Care, and Health Status , 1992, Journal of developmental and behavioral pediatrics : JDBP.

[40]  A. La Greca,et al.  Parenting styles, regimen adherence, and glycemic control in 4- to 10-year-old children with diabetes. , 2001, Journal of pediatric psychology.

[41]  L. Peterson,et al.  Family variables and disease management in juvenile rheumatoid arthritis. , 1989, Journal of pediatric psychology.

[42]  M. Dimatteo.  Practitioner–family–patient communication in pediatric adherence: Implications for research and clinical practice. , 2000 .

[43]  Harry Kotses,et al.  Self-management of asthma , 1998 .

[44]  M. Hersen,et al.  Handbook of pediatric and adolescent health psychology , 1999 .

[45]  W. Fox.  Compliance of patients and physicians: experience and lessons from tuberculosis-II. , 1983, British medical journal.

[46]  M. Rapoff,et al.  Adherence to Pediatric Medical Regimens , 1999, Issues in Clinical Child Psychology.

[47]  D. Wypij,et al.  Perceptions of Medical Compliance in Children and Adolescents with Cystic Fibrosis , 1991, Journal of developmental and behavioral pediatrics : JDBP.

[48]  Russell E Glasgow,et al.  Adherence to IDDM Regimens: Relationship to Psychosocial Variables and Metabolic Control , 1983, Diabetes Care.

[49]  I M Rosenstock,et al.  Compliance with a medical regimen for asthma: a test of the health belief model. , 1978, Public health reports.

[50]  R. Street.  Physicians' communication and parents' evaluations of pediatric consultations. , 1991, Medical care.

[51]  D. Wilson,et al.  Compliance with blood glucose monitoring in children with type 1 diabetes mellitus. , 1986, The Journal of pediatrics.