An integrated approach to breast diseases and breast cancer registry and research: BDRS as a web-based multi-institutional model

Accurate, complete, and timely health data sources are essential for progress in health care. Registry and research systems are foundations for conducting clinical and epidemiological research. Developing countries lack these systems due to the scarcity of the resources allocated for health information systems. In this study, we provide an integrated model for Turkey in order to optimize the utilization of resources. The Breast Diseases Registry system (BDRS) is implemented as an integrated disease-specific system for breast diseases in order to obtain a comprehensive use of patient health data for research and Breast Cancer Registry as well as an ancillary clinical tool.

[1]  Yasushi Matsumura,et al.  Architecture for networked electronic patient record systems , 2000, Int. J. Medical Informatics.

[2]  Selvakumar Manickam,et al.  Leveraging XML-based electronic medical records to extract experiential clinical knowledge: An automated approach to generate cases for medical case-based reasoning systems , 2002, Int. J. Medical Informatics.

[3]  Stephen Chu,et al.  A three-tier clinical information systems design model , 2000, Int. J. Medical Informatics.

[4]  P. Silcocks,et al.  Effect of improved data collection on breast cancer incidence and survival: reconciliation of a registry with a clinical database , 2000, BMJ : British Medical Journal.

[5]  J. Tenenbaum.  Cancer Informatics: Lessons from the World of e-Business , 2002 .

[6]  Ivar Jacobson,et al.  Object-Oriented Software Engineering , 1991, TOOLS.

[7]  Yu-Chuan Li,et al.  Sharing patient care records over the World Wide Web , 2001, Int. J. Medical Informatics.

[8]  R. Van de Velde,et al.  Framework for a clinical information system , 2000, Int. J. Medical Informatics.

[9]  M. Silbermann,et al.  Middle East Cancer Consortium (MECC) International Pediatric Oncology Meeting Abstracts: Istanbul, Turkey, November 2006 , 2007 .

[10]  Mario Stefanelli,et al.  The role of methodologies to improve efficiency and effectiveness of care delivery processes for the year 2013 , 2002, Int. J. Medical Informatics.

[11]  P McCulloch,et al.  Completeness of data entry in three cancer surgery databases. , 2002, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

[12]  Y Satomura,et al.  Standard Method for Describing an Electronic Patient Record Template: Application of XML to Share Domain Knowledge , 2000, Methods of Information in Medicine.

[13]  D. Parkin,et al.  The evolution of the population-based cancer registry , 2006, Nature Reviews Cancer.

[14]  Charles Safran,et al.  Electronic patient records and the impact of the Internet , 2000, Int. J. Medical Informatics.

[15]  Charles Safran,et al.  Health care in the information society , 2002, Int. J. Medical Informatics.

[16]  S. Eser,et al.  Incidence in Izmir in 1993-1994: first results from Izmir Cancer Registry. , 2001, European journal of cancer.

[17]  André Kushniruk,et al.  Evaluation in the design of health information systems: application of approaches emerging from usability engineering , 2002, Comput. Biol. Medicine.

[18]  Ivar Jacobson,et al.  The Unified Modeling Language User Guide , 1998, J. Database Manag..

[19]  Prakash M. Nadkarni,et al.  Model Formulation: Integrating Query of Relational and Textual Data in Clinical Databases: A Case Study , 2003, J. Am. Medical Informatics Assoc..

[20]  Astrid M. van Ginneken,et al.  The computerized patient record: balancing effort and benefit , 2002, Int. J. Medical Informatics.

[21]  Carolyn J. Green,et al.  Beyond effectiveness: the evaluation of information systems using a comprehensive health technology assessment framework , 2002, Comput. Biol. Medicine.

[22]  Frank Castro,et al.  A computer model for the study of breast cancer , 2003, Comput. Biol. Medicine.

[23]  Marion J. Ball,et al.  The Cancer Informatics Infrastructure (CII): An Architecture for Translating Clinical Research into Patient Care , 2001, MedInfo.

[24]  Pascal Staccini,et al.  Towards health care process description framework: an XML DTD design , 2001, AMIA.

[25]  T. Key,et al.  Epidemiology of breast cancer. , 2001, The Lancet. Oncology.

[26]  K Canfield.  Improving interorganizational data interchange for drug development. , 1999, Computers in biology and medicine.

[27]  K. Stajduhar,et al.  The uses of provincial administrative health databases for research on palliative care: Insights from British Columbia, Canada , 2005, BMC palliative care.

[28]  R. de Beer,et al.  Java-based graphical user interface for MRUI, a software package for quantitation of in vivo/medical magnetic resonance spectroscopy signals , 2001, Comput. Biol. Medicine.

[29]  J. Coebergh,et al.  Cancer incidence in The Netherlands in 1989 and 1990: first results of the nationwide Netherlands cancer registry. Coordinating Committee for Regional Cancer Registries. , 1995, European journal of cancer.

[30]  William Edward Hammond,et al.  Standards for the electronic health record, emerging from health care's Tower of Babel , 2001, AMIA.

[31]  Elske Ammenwerth,et al.  Health care in the information society. A prognosis for the year 2013 , 2002, Int. J. Medical Informatics.

[32]  Dimitris Koutsouris,et al.  Medical support system for continuation of care based on XML web technology , 2001, Int. J. Medical Informatics.

[33]  Joachim Dudeck,et al.  XML-based application interface services - a method to enhance integrability of disease specific systems , 2002, Int. J. Medical Informatics.

[34]  Frank Castro,et al.  The relation of breast cancer staging to screening protocol compliance: a computer simulation study , 2005, Comput. Biol. Medicine.

[35]  Ivar Jacobson,et al.  Object-oriented software engineering - a use case driven approach , 1993, TOOLS.

[36]  Serdar Müldür,et al.  A model approach to sharing electronic medical records between and within the state hospitals in Turkey , 2001, Comput. Biol. Medicine.

[37]  Perry L. Miller,et al.  Application of Information Technology: Achieving Evolvable Web-Database Bioscience Applications Using the EAV/CR Framework: Recent Advances , 2003, J. Am. Medical Informatics Assoc..

[38]  M H Gail,et al.  Weighing the risks and benefits of tamoxifen treatment for preventing breast cancer. , 1999, Journal of the National Cancer Institute.

[39]  B. Curtis,et al.  Towards the creation of a health information system for cancer in KwaZulu-Natal, South Africa. , 2002, Health & place.