Bereaved parents involvement in maternity hospital perinatal death review processes: ‘Nobody even thought to ask us anything’

The death of a baby is devastating for parents, families and staff involved. Involving bereaved parents in their baby's care and in the maternity hospital perinatal death review can help parents manage their bereavement and plan for the future. In Ireland, bereaved parents generally have not been involved in this review process. The aim of our study was to assess parents' perception of how they may be appropriately involved in the maternity hospital perinatal death review in ways that benefit them and the review process itself.

[1]  R. Greene,et al.  Governance of maternity services: Effects on the management of perinatal deaths and bereavement services. , 2021, Midwifery.

[2]  K. O'Donoghue,et al.  Development and evaluation of TEARDROP - a perinatal bereavement care training programme for healthcare professionals. , 2021, Midwifery.

[3]  D. Siassakos,et al.  Parents’ Active Role and ENgagement in The review of their Stillbirth/perinatal death 2 (PARENTS 2) study: a mixed-methods study of implementation , 2021, BMJ Open.

[4]  D. Siassakos,et al.  Parent engagement in perinatal mortality reviews: an online survey of clinicians from six high‐income countries , 2020, BJOG : an international journal of obstetrics and gynaecology.

[5]  R. Greene,et al.  Impact of bereavement care and pregnancy loss services on families: Findings and recommendations from Irish inquiry reports. , 2020, Midwifery.

[6]  J. Zeitlin,et al.  Investigating the benefits and challenges of including bereaved women in research: a multifaceted perinatal audit in a socially disadvantaged French district , 2020, BMJ Open.

[7]  Virginia Braun,et al.  One size fits all? What counts as quality practice in (reflexive) thematic analysis? , 2020, Qualitative Research in Psychology.

[8]  R. Greene,et al.  Irish Inquiry Reports Relating to Perinatal Deaths and Pregnancy Loss Services. , 2020, Irish medical journal.

[9]  D. Siassakos,et al.  PARENTS 2 study: consensus report for parental engagement in the perinatal mortality review process , 2019, Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology.

[10]  H. Hall,et al.  Bereaved parents’ experiences of research participation , 2018, BMC Palliative Care.

[11]  D. Siassakos,et al.  PARENTS 2 Study: a qualitative study of the views of healthcare professionals and stakeholders on parental engagement in the perinatal mortality review—from ‘bottom of the pile’ to joint learning , 2018, BMJ Open.

[12]  S. Meaney,et al.  The impact of stillbirth on bereaved parents: A qualitative study , 2018, PloS one.

[13]  D. Siassakos,et al.  PARENTS 2 study protocol: pilot of Parents’ Active Role and ENgagement in the review of Their Stillbirth/perinatal death , 2018, BMJ Open.

[14]  D. Siassakos,et al.  Learning from deaths: Parents’ Active Role and ENgagement in The review of their Stillbirth/perinatal death (the PARENTS 1 study) , 2017, BMC Pregnancy and Childbirth.

[15]  K. Davison,et al.  Fathers’ Perceived Reasons for Their Underrepresentation in Child Health Research and Strategies to Increase Their Involvement , 2017, Maternal and Child Health Journal.

[16]  S. Gallagher,et al.  Parents’ concerns about future pregnancy after stillbirth: a qualitative study , 2016, Health expectations : an international journal of public participation in health care and health policy.

[17]  S. Meaney,et al.  Caring for parents at the time of stillbirth: How can we do better? , 2016, Women and birth : journal of the Australian College of Midwives.

[18]  A. Heazell,et al.  Bereaved parents’ experience of stillbirth in UK hospitals: a qualitative interview study , 2013, BMJ Open.

[19]  V. Braun,et al.  Using thematic analysis in psychology , 2006 .