Information and decision support needs of parents considering amniocentesis: interviews with pregnant women and health professionals

Objective  Our aim was to clarify and categorize information and decision support needs of pregnant women deciding about amniocentesis.

[1]  R. Thomson,et al.  Decision aids for people facing health treatment or screening decisions. , 2011, The Cochrane database of systematic reviews.

[2]  J. Canick,et al.  Current Methods of Prenatal Screening for Down Syndrome and Other Fetal Abnormalities , 2008, Clinical obstetrics and gynecology.

[3]  F. Goffinet,et al.  Fetal Loss after Amniocentesis in a Series of 5,780 Procedures , 2008, Fetal Diagnosis and Therapy.

[4]  D. Timmermans,et al.  The impact of ethical beliefs on decisions about prenatal screening tests: searching for justification. , 2008, Social science & medicine.

[5]  A. Knippel,et al.  Individual Risk of Fetal Loss Following Routine Second Trimester Amniocentesis: A Controlled Study of 20 460 Cases , 2007, Ultraschall in der Medizin.

[6]  M. Brezis,et al.  [Can we improve the content and quality of information delivered prior to amniocentesis?]. , 2008, Harefuah.

[7]  E. Petek,et al.  Prenatal detection of chromosome aneuploidy by quantitative fluorescence PCR. , 2008, Methods in molecular biology.

[8]  Marci S. DeCaro,et al.  From poor performance to success under stress: working memory, strategy selection, and mathematical problem solving under pressure. , 2007, Journal of experimental psychology. Learning, memory, and cognition.

[9]  A. V. Villa,et al.  Hoyuelos cutneos: una complicacin de la amniocentesis , 2007 .

[10]  L. Smith.  Pregnancy loss rates after midtrimester amniocentesis. , 2007, Obstetrics and gynecology.

[11]  A. Vicente Villa,et al.  [Skin dimpling: a complication of amniocentesis]. , 2007, Anales de pediatria.

[12]  G. van der Wal,et al.  Informed decision making in the context of prenatal screening. , 2006, Patient education and counseling.

[13]  C. Ferrara,et al.  [Fetal and maternal amniocentesis complications]. , 2006, Minerva ginecologica.

[14]  N. Fisk,et al.  Maternal anxiety at amniocentesis and plasma cortisol , 2006, Prenatal diagnosis.

[15]  S. Michie,et al.  Informed choice in antenatal Down syndrome screening: a cluster-randomised trial of combined versus separate visit testing. , 2006, Patient Education and Counseling.

[16]  K. Kukulu,et al.  Psychological effects of amniocentesis on women and their spouses: Importance of the testing period and genetic counseling , 2006, Journal of psychosomatic obstetrics and gynaecology.

[17]  Julie L. Booth,et al.  Developmental and individual differences in pure numerical estimation. , 2006, Developmental psychology.

[18]  L. Hunt,et al.  The routine and the traumatic in prenatal genetic diagnosis: does clinical information inform patient decision-making? , 2005, Patient education and counseling.

[19]  G. Yeo,et al.  Assessment of maternal anxiety levels before and after amniocentesis. , 2004, Singapore medical journal.

[20]  H. Cuckle,et al.  Psychosocial aspects of genetic screening of pregnant women and newborns: a systematic review. , 2004, Health technology assessment.

[21]  J Gabbay,et al.  Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. , 2004, Health technology assessment.

[22]  J. Halliday,et al.  Do women know that prenatal testing detects fetuses with Down syndrome? , 2004, Journal of obstetrics and gynaecology : the journal of the Institute of Obstetrics and Gynaecology.

[23]  S. Michie,et al.  Informed choice: understanding knowledge in the context of screening uptake. , 2003, Patient education and counseling.

[24]  A. Parry.  Handbook of Qualitative Research , 2002 .

[25]  M. Divon,et al.  Maternal pain and anxiety in genetic amniocentesis: expectation versus reality , 2002, Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology.

[26]  T. Marteau,et al.  Prenatal testing: towards realistic expectations of patients, providers and policy makers , 2002, Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology.

[27]  J. Rabinowitz,et al.  Elective amniocentesis in low-risk pregnancies: decision making in the era of information and uncertainty. , 2001, American journal of public health.

[28]  W H Isbister,et al.  Qualitative research in health care , 2000, BMJ : British Medical Journal.

[29]  S. Ziebland,et al.  Analysing qualitative data , 2000, BMJ : British Medical Journal.

[30]  A. Asch,et al.  Prenatal diagnosis and selective abortion: a challenge to practice and policy. , 1999, American journal of public health.

[31]  O. Axelsson,et al.  Women's knowledge, concerns and psychological reactions before undergoing an invasive procedure for prenatal karyotyping , 1999, Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology.

[32]  H. Brown,et al.  Decisions about prenatal testing for chromosomal disorders: perceptions of a diverse group of pregnant women. , 1999, Journal of women's health & gender-based medicine.

[33]  L. Wilkins-Haug,et al.  Genetics in obstetricians' offices: a survey study. , 1999, Obstetrics and gynecology.

[34]  A Hunter,et al.  Physician knowledge and attitudes towards molecular genetic (DNA) testing of their patients , 1998, Clinical genetics.

[35]  Philip Barham,et al.  The validity of general practitioners' self assessment of knowledge: cross sectional study , 1997, BMJ.

[36]  C. Woodward,et al.  Ontario Maternal Serum Screening Program: practices, knowledge and opinions of health care providers. , 1997, CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne.

[37]  M. Sadler.  Serum screening for Down's syndrome: how much do health professionals know? , 1997, British journal of obstetrics and gynaecology.

[38]  T. Marteau.  Towards informed decisions about prenatal testing: A review , 1995, Prenatal diagnosis.

[39]  P. Palo,et al.  Transabdominal chorionic villus sampling and amniocentesis for prenatal diagnosis: 5 years' experience at a University Centre , 1994, Prenatal diagnosis.

[40]  Ann Tabor,et al.  Psychological impact of amniocentesis on low‐risk women , 1987, Prenatal diagnosis.

[41]  Ann Tabor,et al.  RANDOMISED CONTROLLED TRIAL OF GENETIC AMNIOCENTESIS IN 4606 LOW-RISK WOMEN , 1986, The Lancet.

[42]  K. Laurence,et al.  Anxiety during a crisis: emotional effects of screening for neural tube defects. , 1984, Journal of psychosomatic research.

[43]  G. Fava,et al.  Psychological distress and amniocentesis. , 1984, Gynecologic and obstetric investigation.

[44]  F. Hecht,et al.  Chromosomal abnormalities ascertained in the collaborative perinatal survey of 7- and 8-year-old children. , 1979, Birth defects original article series.

[45]  M. Golbus,et al.  Anxiety engendered by amniocentesis. , 1979, Birth defects original article series.