Navigating Poorly Charted Territory

American health care is complex, fragmented, and arcane rather than being patient centered. Many patients have considerable difficulty navigating this system. As a result, care is less timely, safe, effective, and efficient. Since navigation problems are more likely for those who are sicker and less educated, they contribute to inequity. Early solutions proposed for this problem focused on the use of yet another specialized professional, the “navigator,” to help individuals find their way through the system so they get the care they need. The author defines the patient navigation problem and its probable consequences and argues that research and action are needed to (a) document the problem empirically, (b) identify underlying organizational structures and behaviors that can make navigation easy or difficult, and (c) assess whether and how policies, regulations, and improvement strategies can influence these structures and behaviors.

[1]  B. Xie,et al.  Patient navigation and case management following an abnormal mammogram: a randomized clinical trial. , 2007, Preventive medicine.

[2]  R M Kaplan,et al.  Shared decision making in clinical medicine: past research and future directions. , 1999, American journal of preventive medicine.

[3]  C. Clancy,et al.  Consumer Assessment of Health Providers and Systems (CAHPS): Evolving to Meet Stakeholder Needs , 2006, American journal of medical quality : the official journal of the American College of Medical Quality.

[4]  C. Darby,et al.  Consumer Assessment of Health Plans Study (CAHPS). Foreword. , 1999, Medical care.

[5]  C. Hardy Organizations: Rational, Natural and Open Systems , 1983 .

[6]  C. Clancy,et al.  The CAHPS Hospital Survey: development, testing, and use. , 2005, Joint Commission Journal on Quality and Patient Safety.

[7]  B. Starfield,et al.  Continuity and Coordination in Primary Care: Their Achievement and Utility , 1976, Medical care.

[8]  J. Fleishman,et al.  Rural‐Urban Differences in Usual Source of Care and Ambulatory Service Use: Analyses of National Data Using Urban Influence Codes , 2003, Medical care.

[9]  J. Baggs,et al.  The dying patient in the ICU: role of the interdisciplinary team. , 2004, Critical care clinics.

[10]  David W. Bates,et al.  Supporting Patient Care Beyond the Clinical Encounter: Three Informatics Innovations from Partners Health Care , 2003, AMIA.

[11]  Hoangmai H Pham,et al.  Growth of single-specialty medical groups. , 2004, Health affairs.

[12]  L. Rubenstein,et al.  Impacts of Geriatric Evaluation and Management Programs on Defined Outcomes: Overview of the Evidence , 1991, Journal of the American Geriatrics Society.

[13]  M. Rosenthal,et al.  Beyond competition: the normative implications of consumer-driven health plans. , 2006, Journal of health politics, policy and law.

[14]  J. Hibbard,et al.  Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. , 2004, Health services research.

[15]  R. Toseland,et al.  HEALTH SERVICES RESEARCH: The Effectiveness and Efficiency of Outpatient Geriatric Evaluation and Management , 1996, Journal of the American Geriatrics Society.

[16]  J. Christianson,et al.  Employee choice of consumer-driven health insurance in a multiplan, multiproduct setting. , 2004, Health services research.

[17]  A. Kellermann Coverage matters: insurance and health care. , 2002, Annals of emergency medicine.

[18]  R Herzlinger Retooling healthcare. 'Focused factory' model can help build a patient-friendly, service-driven system. , 1997, Modern healthcare.

[19]  K. Mazor,et al.  Patients’ Beliefs and Preferences Regarding Doctors’ Medication Recommendations , 2008, Journal of General Internal Medicine.

[20]  L. Meredith,et al.  Knowledge of Health Care Benefits Among Patients With Depression , 2002, Medical care.

[21]  Herschel Knapp,et al.  Lay patient navigator program implementation for equal access to cancer care and clinical trials , 2006, Cancer.

[22]  Michaël Lauer,et al.  Book Review Redefining Health Care: Creating Value-Based Competition on Results By Michael E. Porter and Elizabeth Olmsted Teisberg. 506 pp. Boston, Harvard Business School Press, 2006. $35. 978-1-59139-778-6 , 2006 .

[23]  S. Sofaer Informing and protecting consumers under managed competition. , 1993, Health affairs.

[24]  C. Normand,et al.  Changing organisations: a study of the context and processes of mergers of health care providers in England. , 2005, Social science & medicine.

[25]  J. López,et al.  Use of a patient navigator to increase colorectal cancer screening in an urban neighborhood health clinic , 2005, Journal of Urban Health.

[26]  K. Weick The social psychology of organizing , 1969 .

[27]  H. Freeman,et al.  Expanding access to cancer screening and clinical follow-up among the medically underserved. , 1995, Cancer practice.

[28]  J. Uhrig,et al.  Beneficiary Knowledge of Original Medicare and Medicare Managed Care , 2006, Medical care.

[29]  Cathy Schoen,et al.  Toward higher-performance health systems: adults' health care experiences in seven countries, 2007. , 2007, Health affairs.

[30]  J. Stuber,et al.  Barriers to Medicaid enrollment: who is at risk? , 2005, American journal of public health.

[31]  K. Freund,et al.  Abstract CN03-04: Improving follow-up to abnormal breast cancer screening in an urban population: A patient navigation intervention , 2010 .

[32]  G. Kenney,et al.  Low-Income Uninsured Children With Special Health Care Needs: Why Aren't They Enrolled in Public Health Insurance Programs? , 2007, Pediatrics.

[33]  Joann Elmore,et al.  Coordinating Care across Diseases, Settings, and Clinicians: A Key Role for the Generalist in Practice , 2005, Annals of Internal Medicine.

[34]  Brian T. Austin,et al.  Improving chronic illness care: translating evidence into action. , 2001, Health affairs.

[35]  C. Eng,et al.  Program of All‐inclusive Care for the Elderly (PACE): An Innovative Model of Integrated Geriatric Care and Financing , 1997, Journal of the American Geriatrics Society.

[36]  J. Schaefer,et al.  Collaborative Management of Chronic Illness , 1997, Annals of Internal Medicine.

[37]  K. Freund,et al.  Improving follow‐up to abnormal breast cancer screening in an urban population , 2007, Cancer.

[38]  B. Bloom Crossing the Quality Chasm: A New Health System for the 21st Century , 2002 .

[39]  D. Schrag,et al.  Using navigators to improve care of underserved patients , 2005, Cancer.

[40]  Kenneth L Evans,et al.  The Future of Family Medicine: A Collaborative Project of the Family Medicine Community , 2004, The Annals of Family Medicine.

[41]  Derick R. Peterson,et al.  Team performance and risk-adjusted health outcomes in the Program of All-Inclusive Care for the Elderly (PACE). , 2006, The Gerontologist.

[42]  Greg Scandlen Consumer-driven health care: just a tweak or a revolution? , 2005, Health affairs.

[43]  James D. Thompson Organizations in Action , 1967 .

[44]  T. Bodenheimer Long-term care for frail elderly people--the On Lok model. , 1999, The New England journal of medicine.

[45]  T. Bodenheimer Coordinating care--a perilous journey through the health care system. , 2008, The New England journal of medicine.