What influenced people with chronic or refractory breathlessness and advanced disease to take part and remain in a drug trial? A qualitative study

[1]  K. Gillies,et al.  Exploring non-retention in clinical trials: a meta-ethnographic synthesis of studies reporting participant reasons for drop out , 2019, BMJ Open.

[2]  D. Torgerson,et al.  What are the most important unanswered research questions in trial retention? A James Lind Alliance Priority Setting Partnership: the PRioRiTy II (Prioritising Retention in Randomised Trials) study , 2019, Trials.

[3]  S. Guillot,et al.  Women and COPD: do we need more evidence? , 2019, European Respiratory Review.

[4]  Sian Rees,et al.  Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis , 2018, British Medical Journal.

[5]  I. Higginson,et al.  Developing an integrated rehabilitation model for thoracic cancer services: views of patients, informal carers and clinicians , 2018, Pilot and Feasibility Studies.

[6]  A. Abernethy,et al.  Sertraline in symptomatic chronic breathlessness: a double blind, randomised trial , 2018, European Respiratory Journal.

[7]  J. Kim,et al.  Patient-centered recruitment and retention for a randomized controlled study , 2018, Trials.

[8]  M. Sydes,et al.  Global health trials methodological research agenda: results from a priority setting exercise , 2018, Trials.

[9]  C. Gamble,et al.  ‘Recruitment, recruitment, recruitment’ – the need for more focus on retention: a qualitative study of five trials , 2018, Trials.

[10]  Mary T. Fox,et al.  Towards Patient-Centered Clinical Trial Designs , 2017 .

[11]  C. Gamble,et al.  Identifying research priorities for effective retention strategies in clinical trials , 2017, Trials.

[12]  P. Fayers,et al.  A randomized phase II feasibility trial of a multimodal intervention for the management of cachexia in lung and pancreatic cancer , 2017, Journal of cachexia, sarcopenia and muscle.

[13]  David C. Currow,et al.  Quality of missing data reporting and handling in palliative care trials demonstrates that further development of the CONSORT statement is required: a systematic review , 2017, Journal of clinical epidemiology.

[14]  M. Ryan,et al.  The value of different aspects of person-centred care: a series of discrete choice experiments in people with long-term conditions , 2017, BMJ Open.

[15]  Daniel Hind,et al.  Recruitment and retention of participants in randomised controlled trials: a review of trials funded and published by the United Kingdom Health Technology Assessment Programme , 2017, BMJ Open.

[16]  J. Ferreira,et al.  Clinical trials in palliative care: a systematic review of their methodological characteristics and of the quality of their reporting , 2017, BMC Palliative Care.

[17]  Miriam J. Johnson,et al.  Missing data in randomized controlled trials testing palliative interventions pose a significant risk of bias and loss of power: a systematic review and meta-analyses , 2016, Journal of clinical epidemiology.

[18]  Paula R. Williamson,et al.  A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials – a work in progress , 2016, Research Involvement and Engagement.

[19]  P. Barnes Sex Differences in Chronic Obstructive Pulmonary Disease Mechanisms. , 2016, American journal of respiratory and critical care medicine.

[20]  I. Higginson Research challenges in palliative and end of life care , 2016, BMJ Supportive & Palliative Care.

[21]  C. Grady,et al.  Cancer clinical trial participants' assessment of risk and benefit , 2016, AJOB empirical bioethics.

[22]  G. Murray,et al.  Randomized Double-Blind Trial of Pregabalin Versus Placebo in Conjunction With Palliative Radiotherapy for Cancer-Induced Bone Pain , 2015, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[23]  I. Higginson,et al.  The gap between policy and practice: a systematic review of patient-centred care interventions in chronic heart failure , 2015, Heart Failure Reviews.

[24]  G. Hadley,et al.  Reality of evidence-based practice in palliative care , 2015, Cancer biology & medicine.

[25]  Miriam J. Johnson,et al.  A systematic review of strategies used to increase recruitment of people with cancer or organ failure into clinical trials: implications for palliative care research. , 2015, Journal of pain and symptom management.

[26]  A. Abernethy,et al.  Strategies to support recruitment of patients with life-limiting illness for research: the Palliative Care Research Cooperative Group. , 2014, Journal of pain and symptom management.

[27]  P. Bower,et al.  Interventions to improve recruitment and retention in clinical trials: a survey and workshop to assess current practice and future priorities , 2014, Trials.

[28]  Zhiyuan Zheng,et al.  Patient-centeredness in the design of clinical trials. , 2014, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.

[29]  H. Brodaty,et al.  PerCEN: a cluster randomized controlled trial of person-centered residential care and environment for people with dementia , 2014, International Psychogeriatrics.

[30]  P. Williamson,et al.  The trials methodological research agenda: results from a priority setting exercise , 2014, Trials.

[31]  E. Bruera,et al.  Attrition rates, reasons, and predictive factors in supportive care and palliative oncology clinical trials , 2013, Cancer.

[32]  P. Stone,et al.  Factors affecting recruitment to an observational multicentre palliative care study , 2013, BMJ Supportive & Palliative Care.

[33]  I. Higginson,et al.  Interventions to improve symptoms and quality of life of patients with fibrotic interstitial lung disease: a systematic review of the literature , 2012, Thorax.

[34]  I. Higginson,et al.  Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature , 2012, BMC Medical Research Methodology.

[35]  B. Biedrzycki Factors and outcomes of decision making for cancer clinical trial participation. , 2011, Oncology nursing forum.

[36]  B. Biedrzycki Decision making for cancer clinical trial participation: a systematic review. , 2010, Oncology nursing forum.

[37]  J. Hardy,et al.  Randomised controlled trials of palliative care - a survey of the views of advanced cancer patients and their relatives. , 2008, European journal of cancer.

[38]  Marjolein Gysels,et al.  "I will do it if it will help others:" motivations among patients taking part in qualitative studies in palliative care. , 2008, Journal of pain and symptom management.

[39]  P. Sainsbury,et al.  Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. , 2007, International journal for quality in health care : journal of the International Society for Quality in Health Care.

[40]  A D Oxman,et al.  Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. , 2006, The Cochrane database of systematic reviews.

[41]  Lorraine N. Smith,et al.  Nurses' and patients' perceptions of expert palliative nursing care. , 2006, Journal of advanced nursing.

[42]  Margaret Rogers,et al.  Recruiting patients into a primary care based study of palliative care: why is it so difficult? , 2004, Palliative medicine.

[43]  D. Saunders Social Work and Palliative Care—The Early History , 2001 .

[44]  A Bowling,et al.  Measuring patients' preferences for treatment and perceptions of risk , 2001, Quality in health care : QHC.

[45]  S. Kaasa,et al.  Challenges in palliative care research; recruitment, attrition and compliance: experience from a randomized controlled trial , 1999, Palliative medicine.

[46]  J. Kleijnen,et al.  Methodologic issues in effectiveness research on palliative cancer care: a systematic review. , 1997, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[47]  A. Donner,et al.  Evaluation of a palliative care service: problems and pitfalls , 1994, BMJ.

[48]  Kathryn Zeitz,et al.  What are the core elements of patient-centred care? A narrative review and synthesis of the literature from health policy, medicine and nursing. , 2013, Journal of advanced nursing.

[49]  Hilde van der Togt,et al.  Publisher's Note , 2003, J. Netw. Comput. Appl..