Resiliência familiar no contexto dos cuidados paliativos pediátricos

This paper aims to highlight the importance of studying family resilience in the context of pediatric palliative care as a response that aims to ensure the best possible quality of life, to the child and his family, while coping with a disease that involves a high risk of dying before the child reaches adulthood. It also aims to present a reflection on the challenges for research in this context. As far as we know, the most of the studies addressing the palliative pediatric disease had assigned greater emphasis to the negative impact of psychosocial factors than to the ability to promote resilience. The socio-ecological model suggests that the interactive nature of systems in which the family is part, contribute significantly to its adjustment, considering the approach to risk or protection. Dynamic resilience processes inferred through indicators such as positive adaptation and adversity seem to be associated with characteristics such as flexibility in the management of adaptation experiences and the attribution of meaning to adversity. Therefore, when the family faces prolonged processes of successive crises, it may be assumed, lastly, that those may establish themselves as a development opportunity of its elements and their relationships, for what becomes crucial to invest in research in this context, despite the various challenges that are often placed at this level.