Searching for cochlear implant information on the internet maze: implications for parents and professionals.

The present study has three purposes: (a) to determine who disseminates information on cochlear implants on the Web; (b) to describe a representative sample of Web sites that disseminate information on cochlear implants, with a focus on the content topics and their relevance to parents of deaf children; and (c) to discuss the practical issues of Web-based information and its implications for professionals working with parents of deaf children. Using the terms "cochlear implants" and "children," the first 10 sites generated by the four most popular search engines (Google, Yahoo, Microsoft's MSN, and America Online) at two points in time were selected for analysis, resulting in a sample of 31 Web sites. The majority of Web sites represented medically oriented academic departments and government organizations, although a wide variety of other sources containing information about cochlear implants were also located. Qualitative analysis revealed that the content tended to fall into eight categories; however, the important issues of educational concerns, habilitation following surgery, and communication methods were either addressed minimally or neglected completely. Using analytical tools that had been developed to evaluate "user friendliness" in other domains, each Web site was assessed for its stability, service/design features and ease of use. In general, wide variability was noted across the Web sites for each of these factors. The strong recommendation is made that professionals understand and enhance their knowledge of both the advantages and limitations of incorporating the new technology into their work with parents.

[1]  C. Fraser,et al.  Internet use in families with children requiring cardiac surgery for congenital heart disease. , 2002, Pediatrics.

[2]  J. Shonkoff,et al.  Development of infants with disabilities and their families: implications for theory and service delivery. , 1992, Monographs of the Society for Research in Child Development.

[3]  G. Pugh,et al.  The needs of parents , 1984 .

[4]  E. Dromi,et al.  Israeli mothers' expectations from early intervention with their preschool deaf children. , 1999, Journal of deaf studies and deaf education.

[5]  T. Most,et al.  The Needs of Parents of Children with Cochlear Implants. , 2001 .

[6]  J. Roush,et al.  Families' Perceptions of Early Intervention Services for Children With Hearing Loss , 1996 .

[7]  J C Wyatt,et al.  Commentary: measuring quality and impact of the world wide web , 1997, BMJ.

[8]  A. Quittner,et al.  Cochlear implants in children: a study of parental stress and adjustment. , 1991, The American journal of otology.

[9]  Douglas W. Oard,et al.  The State of the Art in Text Filtering , 1997, User Modeling and User-Adapted Interaction.

[10]  W. McKellin Hearing impaired families: the social ecology of hearing loss. , 1995, Social science & medicine.

[11]  E. Bruera,et al.  The Internet as a resource for palliative care and hospice: a review and proposals. , 1998, Journal of Pain and Symptom Management.

[12]  M. Sass-Lehrer,et al.  Support Services for Families with Children Who Are Deaf , 1995 .

[13]  Nancy Ellen Fitzgerald Martland Expert criteria for evaluating the quality of web-based child development information , 2001 .

[14]  J. Perold An investigation into the expectations of mothers of children with cochlear implants , 2001, Cochlear implants international.

[15]  M. Bernstein,et al.  What Do Parents Want in Parent Education? , 2013, American annals of the deaf.

[16]  M Pallen,et al.  Guide to the Internet: The world wide web , 1995, BMJ.

[17]  J. Willinsky If Only We Knew: Increasing The Public Value of Social Science Research , 2001 .

[18]  Carol M. Trivette,et al.  Assessment of social support in early intervention programs. , 1990 .

[19]  E. Wood,et al.  Parental Perceptions of the Impact upon the Family of Cochlear Implantation in Children , 2000, The Annals of otology, rhinology & laryngology. Supplement.

[20]  T. Feher-Prout,et al.  Stress and coping in families with deaf children. , 1996, Journal of deaf studies and deaf education.

[21]  B. Gerber,et al.  The Patient-Physician Relationship in the Internet Age: Future Prospects and the Research Agenda , 2001, Journal of medical Internet research.

[22]  W. House,et al.  Cochlear implants in deaf children. , 1987, Current problems in pediatrics.

[23]  S. K. Wyman User and System-Based Quality Criteria for Evaluating Information Resources and Services Available from Federal Websites: Final Report. , 1997 .

[24]  Irene W. Leigh,et al.  Cochlear Implants in Children: Ethics and Choices , 2002 .