Community Networks: Infrastructure and Models for Therapeutic Support

The authors present a socio-technical design that illustrates how a community network health intervention can mobilize human resources across social boundaries and enhance health and well-being for people on both sides of the boundary. They specifically address how to reduce the barriers to social engagement experienced by autistic individuals who want more supportive life opportunities. The authors focus on the social milieu of an American college town, on traditional town-gown boundaries, and on possibilities for integrating social resources within this context. Their design adopts community networking to not only connect autistic persons living within an existing social milieu (university undergraduates; local autistic children and their families), but also to integrate individuals across milieus. The key design idea is that facilitating cross-milieu interactions can initiate and sustain a virtuous cycle of being helped by helping others.

[1]  G. B. Markus,et al.  Notes: Integrating Community Service and Classroom Instruction Enhances Learning: Results From an Experiment , 1993 .

[2]  Janet Eyler,et al.  The Theoretical Roots of Service-Learning in John Dewey: Toward a Theory of Service Learning , 1994 .

[3]  E. Rogers,et al.  The PEN Project in Santa Monica: Interactive Communication, Equality, and Political Action , 1994, J. Am. Soc. Inf. Sci..

[4]  Mary Beth Rosson,et al.  Building a history of the Blacksburg Electronic Village , 1995, Symposium on Designing Interactive Systems.

[5]  Mary Beth Rosson,et al.  Developing the Blacksburg electronic village , 1996, CACM.

[6]  Mary Beth Rosson,et al.  A Web StoryBase , 1996, BCS HCI.

[7]  R. Kessler,et al.  Patterns and correlates of self-help group membership in the United States , 1997 .

[8]  Mary Beth Rosson,et al.  Requirements Development in Scenario-Based Design , 1998, IEEE Trans. Software Eng..

[9]  H. Pain Coping with a child with disabilities from the parents' perspective: the function of information. , 1999, Child: care, health and development.

[10]  Mary Beth Rosson,et al.  Blacksburg Nostalgia: A Community History Archive , 1999, INTERACT.

[11]  J. Finn,et al.  An exploration of helping processes in an online self-help group focusing on issues of disability. , 1999, Health & social work.

[12]  John M. Carroll,et al.  Multi-faceted evaluation for complex, distributed activities , 1999, CSCL.

[13]  Mary Beth Rosson,et al.  Classroom , 2019, Keywords in Radical Geography: Antipode at 50.

[14]  Wendy A. Kellogg,et al.  Social translucence: an approach to designing systems that support social processes , 2000, TCHI.

[15]  S. Kerr,et al.  Coping when a child has a disability: exploring the impact of parent-to-parent support. , 2000, Child: care, health and development.

[16]  H. Lewis,et al.  Debunking the pathological model--the functions of an Internet discussion group. , 2001, Down's syndrome, research and practice : the journal of the Sarah Duffen Centre.

[17]  Mary Beth Rosson,et al.  Designing our town: MOOsburg , 2001, Int. J. Hum. Comput. Stud..

[18]  John M. Carroll,et al.  Community computing as human ‐ computer interaction , 2001, Behav. Inf. Technol..

[19]  Mary Beth Rosson,et al.  MOOsburg: multi-user domain support for a community network , 2001, Internet Res..

[20]  Mary Beth Rosson,et al.  Supporting interactive collaboration on the Web with CORK , 2001, Interact. Comput..

[21]  D. Ingledew,et al.  Parents of Children with Autism using an Email Group: A Grounded Theory Study , 2001, Journal of health psychology.

[22]  W. Mitchell,et al.  Information that informs rather than alienates families with disabled children: developing a model of good practice. , 2002, Health & social care in the community.

[23]  Jun Zheng,et al.  Trust without touch: jumpstarting long-distance trust with initial social activities , 2002, CHI.

[24]  B. E. Hogan,et al.  Social support interventions: do they work? , 2002, Clinical psychology review.

[25]  H. Corman,et al.  Students With Developmental Disabilities Go to College: Description of a Collaborative Transition Project , 2002 .

[26]  Mary Beth Rosson,et al.  A Trajectory for Community Networks Special Issue: ICTs and Community Networking , 2003, Inf. Soc..

[27]  John M. Carroll,et al.  The Blacksburg Electronic Village: A Study in Community Computing , 2003, Digital Cities.

[28]  Stephen T. Kerr,et al.  Knowledge management support for teachers , 2003 .

[29]  John M. Carroll,et al.  Community collective efficacy: structure and consequences of perceived capacities in the Blacksburg Electronic Village , 2003, 36th Annual Hawaii International Conference on System Sciences, 2003. Proceedings of the.

[30]  Mary Beth Rosson,et al.  Classroom BRIDGE: using collaborative public and desktop timelines to support activity awareness , 2003, UIST '03.

[31]  D. Stehlik,et al.  Implications of social capital for the inclusion of people with disabilities and families in community life , 2004 .

[32]  L. S. Baum Internet parent support groups for primary caregivers of a child with special health care needs. , 2004, Pediatric nursing.

[33]  Mary Beth Rosson,et al.  Evaluating computer-supported cooperative work: models and frameworks , 2004, CSCW.

[34]  John M. Carroll,et al.  The Collaborative Critical Incident Tool: Supporting Reflection and Evaluation in a Web Community , 2004 .

[35]  S. Davies,et al.  “Contact A Family”: professionals and parents in partnership , 2005, Archives of Disease in Childhood.

[36]  Mary Beth Rosson,et al.  Collective efficacy as a measure of community , 2005, CHI.

[37]  Susannah Fox Finding Answers Online in Sickness and in Health , 2006 .

[38]  Janet R. Jamieson,et al.  Providing Web‐based Support for Families of Infants and Young Children With Established Disabilities , 2007 .

[39]  Assimina Tsibidaki,et al.  Support networks for the Greek family with preschool or school-age disabled children , 2007 .

[40]  R. Pain,et al.  Participatory Action Research Approaches and Methods: Connecting People, Participation and Place , 2007 .

[41]  M. Salzer,et al.  Who joins support groups among parents of children with autism? , 2007, Autism : the international journal of research and practice.

[42]  Mary Beth Rosson,et al.  Making Use of Scenarios for Achieving Effective Use in Community Computing Contexts , 2007, J. Community Informatics.

[43]  Mary Beth Rosson,et al.  Supporting community-based learning: case study of a geographical community organization designing its website , 2007, Behav. Inf. Technol..

[44]  D. Zager,et al.  Addressing Communication Needs of Young Adults with Autism in a College-Based Inclusion Program , 2007 .

[45]  T. Page,et al.  Creativity in Technology Education Facilitated through Virtual Reality Learning Environments: A Case Study. , 2007 .

[46]  Mary Beth Rosson,et al.  Teacher Bridge: Creating a Community of Teacher Developers , 2007, 2007 40th Annual Hawaii International Conference on System Sciences (HICSS'07).

[47]  Diane Adreon,et al.  Evaluating the College Transition Needs of Individuals With High-Functioning Autism Spectrum Disorders , 2007 .

[48]  Mary Beth Rosson,et al.  Cultivating a Landscape of Online Places for a Developmental Learning Community , 2008, 2008 Eighth IEEE International Conference on Advanced Learning Technologies.

[49]  Mary Beth Rosson,et al.  Theorizing mobility in community networks , 2008, Int. J. Hum. Comput. Stud..

[50]  John M. Carroll,et al.  Logging home use of the internet in the Blacksburg Electronic Village , 2009, Int. J. Adv. Media Commun..

[51]  John Millar Carroll Learning in Communities - Interdisciplinary Perspectives on Human Centered Information Technology , 2009, Human-Computer Interaction Series.

[52]  Mary Beth Rosson,et al.  Developmental Learning Communities , 2006, J. Community Informatics.

[53]  Mary Beth Rosson,et al.  Offering Early Success Experiences in Software Construction: Experiences Teaching Dynamic Website Development to High School Girls , 2010, 2010 10th IEEE International Conference on Advanced Learning Technologies.

[54]  Mary Beth Rosson,et al.  Participatory design of an autism community network to enhance community participation, health, and well-being , 2010, IHI.

[55]  Mary Beth Rosson,et al.  Developing an Online Community for Women in Computer and Information Sciences: A Design Rationale Analysis , 2011, 2011 44th Hawaii International Conference on System Sciences.

[56]  M. Ferrando,et al.  Intelligence and Scientific-Creative Thinking: Their Convergence in the Explanation of Students' Academic Performance. , 2014 .