Technology and the Politics of Mobility: Evidence Generation in Accessible Transport Activism

Digital technologies offer the possibility of community empowerment via the reconfiguration of public services. This potential relies on actively involved citizens engaging with decision makers to pursue civic goals. In this paper we study one such group of involved citizens, examining the evidencing practices of a rare disease charity campaigning for accessible public transport. Through fieldwork and interviews, we highlight the ways in which staff and volunteers assembled and presented different forms of evidence, in doing so reframing what is conceived as 'valid knowledge'. We note the challenges this group faced in capturing experiential knowledge around the accessibility barriers of public transport, and the trade-offs that are made when presenting evidence to policy and decision makers. We offer a number of design considerations for future HCI research, focusing on how digital technology might be configured more appropriately to support campaigning around the politics of mobility.

[1]  Steven Epstein,et al.  The Construction of Lay Expertise: AIDS Activism and the Forging of Credibility in the Reform of Clinical Trials , 1995, Science, technology & human values.

[2]  Jason Nolan,et al.  Sousveillance: Inventing and Using Wearable Computing Devices for Data Collection in Surveillance Environments. , 2002 .

[3]  Patrick Carrington,et al.  Wearables and chairables: inclusive design of mobile input and output techniques for power wheelchair users , 2014, CHI.

[4]  Audubon Dougherty,et al.  Live-streaming mobile video: production as civic engagement , 2011, Mobile HCI.

[5]  M. Akrich,et al.  Practising childbirth activism: A politics of evidence , 2014 .

[6]  Ricardo Herrmann,et al.  Citizen sensing for collaborative construction of accessibility maps , 2013, W4A.

[7]  Per-Anders Hillgren,et al.  Participatory design and "democratizing innovation" , 2010, PDC '10.

[8]  M. Callon,et al.  From ‘politics of numbers’ to ‘politics of singularisation’: Patients’ activism and engagement in research on rare diseases in France and Portugal , 2014 .

[9]  Katie A. Siek,et al.  Rare World: Towards Technology for Rare Diseases , 2015, CHI.

[10]  Ricardo Herrmann,et al.  A crowdsourcing platform for the construction of accessibility maps , 2013, W4A.

[11]  Tom Jenkins,et al.  Making public things: how HCI design can express matters of concern , 2014, CHI.

[12]  Paul Dourish,et al.  HCI and environmental sustainability: the politics of design and the design of politics , 2010, Conference on Designing Interactive Systems.

[13]  E. Howlett,et al.  Assembling dementia care: Patient organisations and social research , 2014 .

[14]  Allison Woodruff,et al.  A vehicle for research: using street sweepers to explore the landscape of environmental community action , 2009, CHI.

[15]  Karim Ladha,et al.  PosterVote: expanding the action repertoire for local political activism , 2014, Conference on Designing Interactive Systems.

[16]  Patrick Olivier,et al.  Finding "real people": trust and diversity in the interface between professional and citizen journalists , 2014, CHI.

[17]  Christopher A. Le Dantec,et al.  Illegitimate Civic Participation: Supporting Community Activists on the Ground , 2015, CSCW.

[18]  M. Callon,et al.  The Growing Engagement of Emergent Concerned Groups in Political and Economic Life , 2008 .

[19]  John Paulin Hansen,et al.  Noise tolerant selection by gaze-controlled pan and zoom in 3D , 2008, ETRA.

[20]  Marcus Foth,et al.  Digital soapboxes: towards an interaction design agenda for situated civic innovation , 2013, UbiComp.

[21]  Philip Constantinou,et al.  Designing human-computer interfaces for quadriplegic people , 2003, TCHI.

[22]  Libby Hemphill,et al.  Tweet acts: how constituents lobby congress via Twitter , 2014, CSCW.

[23]  David Sweeney,et al.  Data-in-Place: Thinking through the Relations Between Data and Community , 2015, CHI.

[24]  Timo Ojala,et al.  UbiOpticon: Participatory Sousveillance with Urban Screens and Mobile Phone Cameras , 2014, PerDis.

[25]  Patrick Olivier,et al.  A pool of dreams: facebook, politics and the emergence of a social movement , 2014, CHI.

[26]  Erika Reponen,et al.  MobiMundi: exploring the impact of user-generated mobile content -- the participatory panopticon , 2008, Mobile HCI.

[27]  Ségolène Aymé,et al.  Empowerment of patients: lessons from the rare diseases community , 2008, The Lancet.

[28]  Melissa Dawe,et al.  Desperately seeking simplicity: how young adults with cognitive disabilities and their families adopt assistive technologies , 2006, CHI.

[29]  Tiago Moreira,et al.  Evidence-based activism: Patients’, users’ and activists’ groups in knowledge society , 2013 .

[30]  Deepak Fulwani,et al.  Design and Implementation of a Smart Wheelchair , 2013, AIR '13.

[31]  T. Shakespeare Disabled people's self-organisation: a new social movement? , 1993 .

[32]  Krzysztof Z. Gajos,et al.  Ability-Based Design: Concept, Principles and Examples , 2011, TACC.

[33]  Joel C. Perry,et al.  Improving patient motivation in game development for motor deficit rehabilitation , 2008, ACE '08.

[34]  Christopher A. Le Dantec,et al.  Planning with Crowdsourced Data: Rhetoric and Representation in Transportation Planning , 2015, CSCW.

[35]  Allison Woodruff,et al.  Common Sense Community: Scaffolding Mobile Sensing and Analysis for Novice Users , 2010, Pervasive.

[36]  Patrick Olivier,et al.  Digital civics , 2015, Interactions.

[37]  John Paulin Hansen,et al.  Gaze typing compared with input by head and hand , 2004, ETRA.

[38]  L. Montini Health 2.0: The Power of the Internet to Raise Awareness of Rare Diseases , 2014 .

[39]  Jeanne Hayes,et al.  The Road to Empowerment: A Historical Perspective on the Medicalization of Disability , 2007, Journal of health and human services administration.

[40]  R. Kitchin,et al.  'Out of Place', 'Knowing One's Place': Space, power and the exclusion of disabled people , 1998 .

[41]  Allison Woodruff,et al.  Common Sense: participatory urban sensing using a network of handheld air quality monitors , 2009, SenSys '09.

[42]  Eric Paulos,et al.  Participatory sensing in public spaces: activating urban surfaces with sensor probes , 2010, Conference on Designing Interactive Systems.

[43]  Carol Thomas Developing the social relational in the social model of disability: a theoretical agenda. [Invited speaker] , 2002 .

[44]  Yvonne Rogers,et al.  "Everyone Is Talking about It!": A Distributed Approach to Urban Voting Technology and Visualisations , 2015, CHI.

[45]  V. Braun,et al.  Using thematic analysis in psychology , 2006 .

[46]  Rob Comber,et al.  FeedFinder: A Location-Mapping Mobile Application for Breastfeeding Women , 2015, CHI.

[47]  Ann Light,et al.  HCI, communities and politics , 2010, CHI Extended Abstracts.

[48]  Peter C. Wright,et al.  Viewpoint: empowering communities with situated voting devices , 2012, CHI.

[49]  Peter C. Wright,et al.  Contesting the City: Enacting the Political Through Digitally Supported Urban Walks , 2015, CHI.

[50]  Stephan Rinderknecht,et al.  Experiences of Someone with a Neuromuscular Disease in Operating a PC (and Ways to Successfully Overcome Challenges) , 2015, ACM Trans. Access. Comput..

[51]  Maria M. Klawe,et al.  The participatory design of a sound and image enhanced daily planner for people with aphasia , 2004, CHI.