Sharing Medical Data for Health Research: The Early Personal Health Record Experience
暂无分享,去创建一个
[1] K. Kendler,et al. Assessing the heritability of anorexia nervosa symptoms using a marginal maximal likelihood approach , 2008, Psychological Medicine.
[2] Data protection and the promotion of health research: if the laws are not the problem, then what is? , 2007, Healthcare policy = Politiques de sante.
[3] G. Eysenbach,et al. Patient Accessible Electronic Health Records: Exploring Recommendations for Successful Implementation Strategies , 2008, Journal of medical Internet research.
[4] Kenneth D. Mandl,et al. Indivo: a personally controlled health record for health information exchange and communication , 2007, BMC Medical Informatics Decis. Mak..
[5] J. Kaprio,et al. The Genetic Liability to Disability Retirement: A 30-Year Follow-Up Study of 24,000 Finnish Twins , 2008, PloS one.
[6] Russ B Altman,et al. Health-information altruists--a potentially critical resource. , 2005, The New England journal of medicine.
[7] Lehana Thabane,et al. Alternatives to project-specific consent for access to personal information for health research: Insights from a public dialogue , 2008, BMC medical ethics.
[8] M C Neale,et al. A review and meta-analysis of the genetic epidemiology of anxiety disorders. , 2001, The American journal of psychiatry.
[9] Richard J. Whiddett,et al. Patients' attitudes towards sharing their health information , 2006, Int. J. Medical Informatics.
[10] Lehana Thabane,et al. Consent for use of personal information for health research: Do people with potentially stigmatizing health conditions and the general public differ in their opinions? , 2009, BMC medical ethics.
[11] Patrick L. Taylor,et al. Research sharing, ethics and public benefit , 2007, Nature Biotechnology.
[12] F. Douglas,et al. Clinical governance and research ethics as barriers to UK low-risk population-based health research? , 2008, BMC public health.
[13] Rules of engagement , 2007, Nature.
[14] F. Miller. Research on Medical Records without Informed Consent , 2008, Journal of Law, Medicine & Ethics.
[15] J. Hopper,et al. Sex differences in genetic and environmental determinants of pulse pressure , 2006, Genetic epidemiology.
[16] Isaac S Kohane,et al. Tectonic shifts in the health information economy. , 2008, The New England journal of medicine.
[17] Jeana Frost,et al. How the Social Web Supports Patient Experimentation with a New Therapy: The demand for patient-controlled and patient-centered informatics , 2008, AMIA.
[18] J Zajicek,et al. Holding personal information in a disease-specific register: the perspectives of people with multiple sclerosis and professionals on consent and access , 2009, Journal of Medical Ethics.
[19] Kenneth D Mandl,et al. Acceptability of a Personally Controlled Health Record in a Community-Based Setting: Implications for Policy and Design , 2009, Journal of medical Internet research.
[20] Isaac S Kohane,et al. Integration of the personally controlled electronic medical record into regional inter-regional data exchanges: a national demonstration. , 2006, AMIA ... Annual Symposium proceedings. AMIA Symposium.
[21] Ken Terry,et al. Will PHRs rule the waves or roll out with the tide? , 2008, Hospitals & health networks.
[22] M. Coleman,et al. National survey of British public's views on use of identifiable medical data by the National Cancer Registry , 2006, BMJ : British Medical Journal.
[23] K. Brazil,et al. Access to medical records for research purposes: varying perceptions across research ethics boards , 2008, Journal of Medical Ethics.
[24] Paul C. Tang,et al. Integrated Personal Health Records: Transformative Tools for Consumer-Centric Care , 2008, BMC Medical Informatics Decis. Mak..
[25] Robert Navarro. An ethical framework for sharing patient data without consent. , 2008, Informatics in primary care.
[26] J. Frost,et al. Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data , 2008, Journal of medical Internet research.