Intended and unintended consequences: Ethics, communication, and prognostic disclosure in pediatric oncology

The majority of patients desire all available prognostic information, but some physicians hesitate to discuss prognosis. The objective of the current study was to examine outcomes of prognostic disclosure among the parents of children with cancer.

[1]  R. Epstein,et al.  Patient-Clinician Communication: American Society of Clinical Oncology Consensus Guideline. , 2017, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[2]  J. Mack,et al.  Communication preferences of pediatric cancer patients: talking about prognosis and their future life , 2017, Supportive Care in Cancer.

[3]  A. Shaw,et al.  Challenge of Prognostic Uncertainty in the Modern Era of Cancer Therapeutics. , 2016, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[4]  T. Kang,et al.  Decisional Regret Among Parents of Children With Cancer. , 2016, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[5]  A. Cronin,et al.  Parental preparedness for late effects and long‐term quality of life in survivors of childhood cancer , 2016, Cancer.

[6]  H. Prigerson,et al.  Accuracy of advanced cancer patients' life expectancy estimates: The role of race and source of life expectancy information , 2016, Cancer.

[7]  P. Maciejewski,et al.  Discussions of Life Expectancy and Changes in Illness Understanding in Patients With Advanced Cancer , 2016, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[8]  H. Prigerson,et al.  Outcomes of Prognostic Disclosure: Associations With Prognostic Understanding, Distress, and Relationship With Physician Among Patients With Advanced Cancer. , 2015, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[9]  T. Pawlik,et al.  What are patients' expectations about the effects of chemotherapy for advanced cancer? , 2014, Journal of the American College of Surgeons.

[10]  Ahmedin Jemal,et al.  Childhood and adolescent cancer statistics, 2014 , 2014, CA: a cancer journal for clinicians.

[11]  S. Joffe,et al.  Communicating About Prognosis: Ethical Responsibilities of Pediatricians and Parents , 2014, Pediatrics.

[12]  Alexander K. Smith,et al.  Uncertainty--the other side of prognosis. , 2013, The New England journal of medicine.

[13]  S. Athar Principles of Biomedical Ethics , 2011, The Journal of IMA.

[14]  J. Temel,et al.  Longitudinal perceptions of prognosis and goals of therapy in patients with metastatic non-small-cell lung cancer: results of a randomized study of early palliative care. , 2011, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[15]  Thomas J. Smith,et al.  A pilot trial of decision aids to give truthful prognostic and treatment information to chemotherapy patients with advanced cancer. , 2011, The journal of supportive oncology.

[16]  M. Scanlon,et al.  Alterations in End-of-Life Support in the Pediatric Intensive Care Unit , 2010, Pediatrics.

[17]  C. Daugherty,et al.  What are terminally ill cancer patients told about their expected deaths? A study of cancer physicians' self-reports of prognosis disclosure. , 2008, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[18]  Alexander K. Smith,et al.  Racial and ethnic differences in advance care planning among patients with cancer: impact of terminal illness acknowledgment, religiousness, and treatment preferences. , 2008, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[19]  P. Cleary,et al.  Peace of mind and sense of purpose as core existential issues among parents of children with cancer. , 2008, Archives of pediatrics & adolescent medicine.

[20]  E. Cook,et al.  Hope and prognostic disclosure. , 2007, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[21]  E. Cook,et al.  Understanding of prognosis among parents of children with cancer: parental optimism and the parent-physician interaction. , 2007, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[22]  P. Cleary,et al.  Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. , 2006, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[23]  Christopher L Church,et al.  End-of-life care preferences of pediatric patients with cancer. , 2005, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[24]  P. Butow,et al.  Fostering coping and nurturing hope when discussing the future with terminally ill cancer patients and their caregivers , 2005, Cancer.

[25]  S. Feig,et al.  Guidelines for pediatric cancer centers. , 2004, Pediatrics.

[26]  E. Gordon,et al.  'Hitting You Over the Head': Oncologists' Disclosure of Prognosis to Advanced Cancer Patients , 2003, Bioethics.

[27]  D. Cella,et al.  Measuring spiritual well-being in people with cancer: The functional assessment of chronic illness therapy—spiritual well-being scale (FACIT-Sp) , 2002, Annals of behavioral medicine : a publication of the Society of Behavioral Medicine.

[28]  T. Hak,et al.  Collusion in doctor-patient communication about imminent death: an ethnographic study , 2000, BMJ : British Medical Journal.

[29]  N. Christakis,et al.  Extent and determinants of error in doctors' prognoses in terminally ill patients: prospective cohort study , 2000, BMJ : British Medical Journal.

[30]  E. Cook,et al.  Relationship between cancer patients' predictions of prognosis and their treatment preferences. , 1998, JAMA.

[31]  K C Carriere,et al.  Information needs and decisional preferences in women with breast cancer. , 1997, JAMA.

[32]  William A. Knaus,et al.  A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). The SUPPORT Principal Investigators. , 1995, JAMA.

[33]  Robert F. Dedrick,et al.  Development of the Trust in Physician Scale: A Measure to Assess Interpersonal Trust in Patient-Physician Relationships , 1990, Psychological reports.

[34]  Huston Gj,et al.  The Hospital Anxiety and Depression Scale. , 1987, The Journal of rheumatology.

[35]  A. Tsao Longitudinal Perceptions of Prognosis and Goals of Therapy in Patients With Metastatic Non–Small-Cell Lung Cancer: Results of a Randomized Study of Early Palliative Care , 2012 .