Transfemoral amputation and prosthesis provision in Tanzania: Patient and provider perspectives

Background The burden of disability because of traumatic limb amputation, particularly transfemoral amputation (TFA) is disproportionately carried by low- and middle-income countries. The need for improved access to prosthesis services in these settings is well-documented, but perspectives on the burden imposed by TFA and the challenges associated with subsequent prosthesis provision vary among patients, caregivers and healthcare providers. Objectives To examine the burden of TFA and barriers to prosthesis provision as perceived by patient, caregiver and healthcare professional, at a single tertiary referral hospital in Tanzania. Method Data were collected from five patients with TFA and four caregivers recruited via convenience sampling, in addition to 11 purposively sampled healthcare providers. All participants participated in in-depth interviews regarding their perceptions of amputation, prostheses and underlying barriers to improving care for persons with TFA in Tanzania. A coding schema and thematic framework were established from interviews using inductive thematic analysis. Results All participants noted financial and psychosocial burdens of amputation, and perceived prostheses as an opportunity for return to normality and independence. Patients worried about prosthesis longevity. Healthcare providers noted significant obstacles to prosthesis provision, including infrastructural and environmental barriers, limited access to prosthetic services, mismatched patient expectations and inadequate coordination of care. Conclusion This qualitative analysis identifies factors influencing prosthesis-related care for patients with TFA in Tanzania which are lacking in the literature. Persons with TFA and their caregivers experience numerous hardships exacerbated by limited financial, social and institutional support. Contribution This qualitative analysis informs future directions for research into improving prosthesis-related care for patients with TFA in Tanzania.

[1]  S. Morshed,et al.  Cost-effectiveness analysis of prosthesis provision for patients with transfemoral amputation in Tanzania , 2022, Prosthetics and orthotics international.

[2]  S. Morshed,et al.  Impact of prostheses on quality of life and functional status of transfemoral amputees in Tanzania , 2021, African journal of disability.

[3]  S. Morshed,et al.  Cost-Analyses of Prosthetic Devices: A Systematic Review. , 2021, Archives of physical medicine and rehabilitation.

[4]  Cody L McDonald,et al.  Global prevalence of traumatic non-fatal limb amputation. , 2020, Prosthetics and orthotics international.

[5]  D. Jayne,et al.  Barriers to accessing and providing rehabilitation after a lower limb amputation in Sierra Leone – a multidisciplinary patient and service provider perspective , 2020, Disability and rehabilitation.

[6]  G. Santangelo,et al.  The Psychological Impact of COVID-19 Pandemic and Lockdown on Caregivers of People With Dementia , 2020, The American Journal of Geriatric Psychiatry.

[7]  B. Cairns,et al.  Etiology of major limb amputations at a tertiary care centre in Malawi , 2019, Malawi medical journal : the journal of Medical Association of Malawi.

[8]  H. Hoenig,et al.  Crossing the Global Quality Chasm in Health Care: Where Does Rehabilitation Stand? , 2019, Archives of physical medicine and rehabilitation.

[9]  M. Harris,et al.  What matters to people with chronic conditions when accessing care in Australian general practice? A qualitative study of patient, carer, and provider perspectives , 2019, BMC Family Practice.

[10]  M. Polikandrioti,et al.  Association of State and Trait Anxiety Between Patients Who Had Undergone Traumatic Amputation and Their Family Caregivers , 2019, The international journal of lower extremity wounds.

[11]  D. Shearer,et al.  Barriers to prosthetic devices at a Tanzanian hospital , 2019 .

[12]  E. Lemaire,et al.  GLOBAL STANDARDS FOR PROSTHETICS AND ORTHOTICS , 2018, Canadian Prosthetics & Orthotics Journal.

[13]  B. Trojak,et al.  [Biopsychosocial approach to caregiving burden: Why should we care about caregivers' health?] , 2018, Presse medicale.

[14]  A. Johannesson,et al.  A qualitative study of the challenges of providing pre-prosthetic rehabilitation in rural South Africa , 2018, Prosthetics and orthotics international.

[15]  Jeremy D. Shaw,et al.  Quality of life and complications in lower limb amputees in Tanzania: results from a pilot study , 2018 .

[16]  S. Mulroy,et al.  The impact a surgeon has on primary amputee prosthetic rehabilitation: A survey of residual lower limb quality , 2018, Prosthetics and orthotics international.

[17]  Kibrom Gebreselassie,et al.  Patterns and Causes of Amputation in Ayder Referral Hospital, Mekelle, Ethiopia: A Three-Year Experience , 2018, Ethiopian journal of health sciences.

[18]  Lina Magnusson,et al.  Experiences of attitudes in Sierra Leone from the perspective of people with poliomyelitis and amputations using orthotics and prosthetics , 2017, Disability and rehabilitation.

[19]  B. Cairns,et al.  The Effect of a Surgery Residency Program and Enhanced Educational Activities on Trauma Mortality in Sub-Saharan Africa , 2017, World Journal of Surgery.

[20]  T. Agu,et al.  The indications for major limb amputations: 8 years retrospective study in a private orthopaedic and trauma centre in the south-east Nigeria. , 2016, Journal of clinical orthopaedics and trauma.

[21]  Khanjan Mehta,et al.  Access to prosthetic devices in developing countries: Pathways and challenges , 2015, 2015 IEEE Global Humanitarian Technology Conference (GHTC).

[22]  J. Andrysek,et al.  The influence of environmental and personal factors on participation of lower-limb prosthetic users in low-income countries: prosthetists’ perspectives , 2015, Disability and rehabilitation. Assistive technology.

[23]  A. Hyder,et al.  The neglected burden of caregiving in low- and middle-income countries. , 2014, Disability and health journal.

[24]  Arjan Buis,et al.  Provision of prosthetic and orthotic services in low-income countries: A review of the literature , 2013, Prosthetics and orthotics international.

[25]  J. Gilyoma,et al.  Major limb amputations: A tertiary hospital experience in northwestern Tanzania , 2012, Journal of Orthopaedic Surgery and Research.

[26]  P. Gajraj-Singh Psychological impact and the burden of caregiving for persons with spinal cord injury (SCI) living in the community in Fiji , 2011, Spinal Cord.

[27]  E. Mackenzie,et al.  Effects of paediatric limb loss on healthcare utilisation, schooling and parental labour supply , 2010, Disability and rehabilitation.

[28]  J. Ogeng’o,et al.  Pattern of limb amputation in a Kenyan rural hospital , 2009, International Orthopaedics.

[29]  L. Thanni,et al.  Extremity amputation in Nigeria--a review of indications and mortality. , 2007, The surgeon : journal of the Royal Colleges of Surgeons of Edinburgh and Ireland.

[30]  David R. Thomas,et al.  A General Inductive Approach for Analyzing Qualitative Evaluation Data , 2006 .

[31]  D. Wilkins,et al.  Surgical experience and supervision may influence the quality of lower limb amputation. , 2002, Annals of the Royal College of Surgeons of England.

[32]  J. Czerniecki,et al.  Rehabilitation in limb deficiency. 1. Gait and motion analysis. , 1996, Archives of physical medicine and rehabilitation.

[33]  S Meanley,et al.  Different approaches and cultural considerations in third world prosthetics , 1995, Prosthetics and orthotics international.

[34]  R. Schulz,et al.  Psychiatric and physical morbidity effects of caregiving. , 1990, Journal of gerontology.

[35]  B. Trojak,et al.  [Biopsychosocial approach to caregiving burden: Why should we care about caregivers' health?] , 2018, Presse medicale.

[36]  P. Garg The Surgeon, Journal of the Royal Colleges of Surgeons of Edinburgh and Ireland , 2010 .