Participating in cardiac rehabilitation: a systematic review and meta-synthesis of qualitative data

Background: Participation in cardiac rehabilitation (CR) benefits patients with coronary heart disease (CHD), yet worldwide only some 15–30% of those eligible attend. To improve understanding of the reasons for poor participation we undertook a systematic review and meta-synthesis of the qualitative literature. Methods: Qualitative studies identifying patient barriers and enablers to attendance at CR were identified by searching multiple electronic databases, reference lists, relevant conference lists, grey literature, and keyword searching of the internet (1990–2010). Studies were selected if they included patients with CHD and reviewed experience or understanding about CR. Meta-synthesis was used to review the papers and to synthesize the data. Results: From 1165 papers, 34 unique studies were included after screening. These included 1213 patients from eight countries. Study methodology included interviews (n = 25), focus groups (n = 5), and mixed-methods (n = 4). Key reasons for not attending CR were physical barriers, such as lack of transport, or financial cost, and personal barriers, such as embarrassment about participation, or misunderstanding the reasons for onset of CHD or the purpose of CR. Conclusions: There is a vast amount of qualitative research which investigates patients’ reasons for non-attendance at CR. Key issues include system-level and patient-level barriers, which are potentially modifiable. Future research would best be directed at investigating strategies to overcome these barriers.

[1]  T. Briffa,et al.  High risk‐factor level and low risk‐factor knowledge in patients not accessing cardiac rehabilitation after acute coronary syndrome , 2007, The Medical journal of Australia.

[2]  D. Stewart,et al.  Increasing access to cardiac rehabilitation: automatic referral to the program nearest home. , 2004, Journal of cardiopulmonary rehabilitation.

[3]  P. Sainsbury,et al.  Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. , 2007, International journal for quality in health care : journal of the International Society for Quality in Health Care.

[4]  E. Arnold The stress connection. Women and coronary heart disease. , 1997, Critical care nursing clinics of North America.

[5]  M. Jones Application of systematic review methods to qualitative research: practical issues. , 2004, Journal of advanced nursing.

[6]  Louise A. Jensen,et al.  Meta-Synthesis of Qualitative Findings , 1996 .

[7]  R. Mitchell,et al.  Cardiac rehabilitation: participating in an exercise program in a quest to survive. , 1999, Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses.

[8]  G. Faulkner,et al.  Cultural factors facilitating cardiac rehabilitation participation among Canadian South Asians: a qualitative study. , 2010, Heart & lung : the journal of critical care.

[9]  M. Dempster,et al.  Perceptions of exercise among people who have not attended cardiac rehabilitation following myocardial infarction , 2009, Journal of health psychology.

[10]  Stephen Joseph,et al.  Deciding whether to attend a cardiac rehabilitation programme: an interpretative phenomenological analysis , 2001 .

[11]  Marsha Regenstein,et al.  Barriers to effective self-management in cardiac patients: the patient's experience. , 2010, Patient education and counseling.

[12]  R. Shave,et al.  A National Health Service Hospital's cardiac rehabilitation programme: a qualitative analysis of provision. , 2007, Journal of clinical nursing.

[13]  H. McGee,et al.  Cardiac rehabilitation in Europe: results from the European Cardiac Rehabilitation Inventory Survey , 2010, European journal of cardiovascular prevention and rehabilitation : official journal of the European Society of Cardiology, Working Groups on Epidemiology & Prevention and Cardiac Rehabilitation and Exercise Physiology.

[14]  Lisa Hartling,et al.  Meta-Analysis: Secondary Prevention Programs for Patients with Coronary Artery Disease , 2005, Annals of Internal Medicine.

[15]  J. Schofield Increasing the generalizability of qualitative research. , 1993 .

[16]  H. Arthur,et al.  Determinants of referral to cardiac rehabilitation programs in patients with coronary artery disease: a systematic review. , 2006, American heart journal.

[17]  G. McCarthy,et al.  Lifestyle Changes Following Acute Myocardial Infarction: Patients Perspectives , 2006, European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology.

[18]  P. Davidson,et al.  Barriers to participation in and adherence to cardiac rehabilitation programs: a critical literature review. , 2002, Progress in cardiovascular nursing.

[19]  K. Sweeney,et al.  Listening to Patients: Choice in Cardiac Rehabilitation , 2006, European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology.

[20]  J. McSweeney,et al.  An act of courage: women's decision-making processes regarding outpatient cardiac rehabilitation attendance. , 2001, Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses.

[21]  L. Batten,et al.  Cardiac rehabilitation for women: one size does not fit all. , 2006, The Australian journal of advanced nursing : a quarterly publication of the Royal Australian Nursing Federation.

[22]  W. Miller,et al.  Motivational interviewing: preparing people for change. , 2002 .

[23]  Stephen Rollnick,et al.  Motivational Interviewing: Preparing People for Change, 2nd Edition , 2002 .

[24]  Sharon-Lise T Normand,et al.  Use of Cardiac Rehabilitation by Medicare Beneficiaries After Myocardial Infarction or Coronary Bypass Surgery , 2007, Circulation.

[25]  Claudia Pagliari,et al.  Potential of electronic personal health records , 2007, BMJ : British Medical Journal.

[26]  S. Grace,et al.  Patient‐Provider Communication Regarding Referral to Cardiac Rehabilitation , 2005, Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses.

[27]  G. Lip,et al.  'DNA' may not mean 'did not participate': a qualitative study of reasons for non-adherence at home- and centre-based cardiac rehabilitation. , 2007, Family practice.

[28]  K. Charmaz,et al.  Constructing Grounded Theory: A practical guide through qualitative analysis Kathy Charmaz Constructing Grounded Theory: A practical guide through qualitative analysis Sage 224 £19.99 0761973532 0761973532 [Formula: see text]. , 2006, Nurse researcher.

[29]  Mary A. Dolansky,et al.  Older adults' views of cardiac rehabilitation program: is it time to reinvent? , 2006, Journal of gerontological nursing.

[30]  A. Tod,et al.  'I'm still waiting...': barriers to accessing cardiac rehabilitation services. , 2002, Journal of advanced nursing.

[31]  R. Chesson,et al.  ‘Getting back to normal’: patients’ expectations of cardiac rehabilitation , 2004 .

[32]  L. Jones,et al.  Factors influencing enrollment in a cardiac rehabilitation exercise program. , 2003, Canadian journal of cardiovascular nursing = Journal canadien en soins infirmiers cardio-vasculaires.

[33]  L. Schou,et al.  Women's Experiences with Cardiac Rehabilitation — Participation and Non-Participation , 2008 .

[34]  J. MacInnes,et al.  The Illness Perceptions of Women Following Acute Myocardial Infarction: Implications for Behaviour Change and Attendance at Cardiac Rehabilitation , 2006, Women & health.

[35]  N. Hayman,et al.  Strengthening cardiac rehabilitation and secondary prevention for Aboriginal and Torres Strait Islander peoples , 2006, The Medical journal of Australia.

[36]  M. Schmelzer,et al.  Influences on Women's Participation in Cardiac Rehabilitation , 2004, Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses.

[37]  D. Stewart,et al.  Access to Cardiac Rehabilitation Among South‐Asian Patients by Referral Method: A Qualitative Study , 2010, Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses.

[38]  S. White,et al.  Patients' Perspectives on Cardiac Rehabilitation, Lifestyle Change and Taking Medicines: Implications for Service Development , 2010, Journal of health services research & policy.

[39]  S. Thompson,et al.  “You're always hearing about the stats … death happens so often”: new perspectives on barriers to Aboriginal participation in cardiac rehabilitation , 2010, The Medical journal of Australia.

[40]  L. Neubeck,et al.  Achieving coordinated secondary prevention of coronary heart disease for all in need (SPAN). , 2011, International journal of cardiology.

[41]  S. Ebrahim,et al.  Exercise-based rehabilitation for patients with coronary heart disease: systematic review and meta-analysis of randomized controlled trials. , 2004, The American journal of medicine.

[42]  R. Edwards,et al.  Exploring Uptake of Cardiac Rehabilitation in a Minority Ethnic Population in England: A Qualitative Study , 2010, European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology.

[43]  D. Tolson,et al.  Are older patients’ cardiac rehabilitation needs being met? , 2009, Journal of clinical nursing.

[44]  S. Grogan,et al.  Deciding to attend cardiac rehabilitation: A female perspective , 2009 .

[45]  S. Greenfield,et al.  Patients' Experience of Home and Hospital Based Cardiac Rehabilitation: A Focus Group Study , 2009, European Journal of Cardiovascular Nursing.

[46]  C. Berterö,et al.  You can do it if you set your mind to it: a qualitative study of patients with coronary artery disease. , 2001, Journal of advanced nursing.

[47]  J. Unsworth,et al.  Engaging women from South Asian communities in cardiac rehabilitation. , 2007, British journal of community nursing.

[48]  T. Briffa,et al.  Choice of secondary prevention improves risk factors after acute coronary syndrome: 1-year follow-up of the CHOICE (Choice of Health Options In prevention of Cardiovascular Events) randomised controlled trial , 2008, Heart.

[49]  M. Miles,et al.  The Qualitative Researcher's Companion , 2002 .

[50]  S. Greenfield,et al.  Attendance of ethnic minority patients in cardiac rehabilitation. , 2004, Journal of cardiopulmonary rehabilitation.

[51]  Rosaline Barbour,et al.  A realist study of the mechanisms of cardiac rehabilitation. , 2005, Journal of advanced nursing.

[52]  K. Atkin,et al.  Causal attributions, lifestyle change, and coronary heart disease: illness beliefs of patients of South Asian and European origin living in the United Kingdom. , 2008, Heart & lung : the journal of critical care.

[53]  A. Clark,et al.  Promoting participation in cardiac rehabilitation: patient choices and experiences. , 2004, Journal of advanced nursing.

[54]  E. Brink,et al.  Constructing grounded theory : A practical guide through qualitative analysis , 2006 .

[55]  Karl Atkin,et al.  Family Support and Cardiac Rehabilitation: A Comparative Study of the Experiences of South Asian and White-European Patients and Their Carer's Living in the United Kingdom , 2008, European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology.

[56]  G. Jackson,et al.  A qualitative study investigating patients' beliefs about cardiac rehabilitation , 2005, Clinical rehabilitation.