Promoting research participation: why not advertise altruism?

Participation rates have a major impact on the quality, cost and timeliness of health research. There is growing evidence that participation rates may be falling and that new research governance structures and procedures may be increasing the likelihood of recruitment bias. It may be possible to encourage public reflection about research participation and enhance recruitment by providing information about the potential benefits of research to others as well as to research participants and by stimulating debate and influencing social expectations about involvement. Publicly funded and charitable bodies use various forms of advertising to encourage altruistic behaviour and generate social expectations about donating money, blood and organs for the benefit of others. Consideration should be given to the use of similar persuasive communications to promote wider participation in health research generally.

[1]  R. Dwyer,et al.  For love or money? An exploratory study of why injecting drug users participate in research. , 2001, Addiction.

[2]  A. Bandura Self-Efficacy: The Exercise of Control , 1997, Journal of Cognitive Psychotherapy.

[3]  D. Sackett Participants in research , 2005, BMJ : British Medical Journal.

[4]  A. Bandura Self-efficacy: toward a unifying theory of behavioral change. , 1977, Psychological review.

[5]  M. Barratt,et al.  Positive and negative aspects of participation in illicit drug research: implications for recruitment and ethical conduct. , 2007, The International journal on drug policy.

[6]  Jenny Donovan,et al.  Quality improvement report , 2002, BMJ : British Medical Journal.

[7]  Robert H. Bradley,et al.  Caregiving and the regulation of child growth and development: describing proximal aspects of caregiving systems , 1995 .

[8]  E McColl,et al.  Design and use of questionnaires: a review of best practice applicable to surveys of health service staff and patients. , 2001, Health technology assessment.

[9]  D. Rutter Predicting health behaviour - Conner,M, Norman,P , 1997 .

[10]  L. Irwig,et al.  Impact of privacy legislation on the number and characteristics of people who are recruited for research: a randomised controlled trial , 2006, Journal of Medical Ethics.

[11]  R. Lilford,et al.  Are randomized clinical trials good for us (in the short term)? Evidence for a "trial effect". , 2001, Journal of clinical epidemiology.

[12]  C. Schwartz,et al.  Altruistic Social Interest Behaviors Are Associated With Better Mental Health , 2003, Psychosomatic medicine.

[13]  C. Grady,et al.  Money for Research Participation: Does It Jeopardize Informed Consent? , 2001, The American journal of bioethics : AJOB.

[14]  S. Holm,et al.  Attitudes towards clinical research amongst participants and nonparticipants , 2002, Journal of internal medicine.

[15]  Gene Feder,et al.  Recruiting patients to medical research: double blind randomised trial of “opt-in” versus “opt-out” strategies , 2005, BMJ : British Medical Journal.

[16]  Brian Williams,et al.  Overcoming barriers to recruitment in health research , 2006 .

[17]  Kristopher J Preacher,et al.  Chronic stress and age-related increases in the proinflammatory cytokine IL-6 , 2003, Proceedings of the National Academy of Sciences of the United States of America.

[18]  W. Hall,et al.  The Ethics of Paying Drug Users Who Participate in Research: A Review and Practical Recommendations , 2006, Journal of empirical research on human research ethics : JERHRE.

[19]  Great Britain. Foreign Office. Guidelines for researchers: patient information sheet and consent form. , 1999, Bulletin of medical ethics.

[20]  J. Frates,et al.  Promoting Organ Donation to Hispanics: The Role of the Media and Medicine , 2006, Journal of health communication.

[21]  M. Mcmurdo,et al.  When "no" might not quite mean "no"; the importance of informed and meaningful non-consent: results from a survey of individuals refusing participation in a health-related research project , 2007, BMC Health Services Research.

[22]  I. Ajzen The theory of planned behavior , 1991 .

[23]  Kristopher J Preacher,et al.  Chronic stress and age-related increases in the proinflammatory cytokine interleukin-6 , 2003 .

[24]  F. Widmann,et al.  The Gift Relationship: From Human Blood to Social Policy , 1971 .

[25]  J. Teasdale Self-efficacy: Toward a unifying theory of behavioural change? , 1978 .

[26]  Marie-Louise Mares,et al.  Positive Effects of Television on Children's Social Interactions: A Meta-Analysis , 2005 .

[27]  UK is losing market share in pharmaceutical research , 2000, BMJ : British Medical Journal.

[28]  Brian Harris-Kojetin,et al.  Exploring the Relation of Economic and Political Conditions with Refusal Rates to a Government Survey , 1999 .

[29]  B. Klapp,et al.  Psychosocial data of potential living donors before living donor liver transplantation , 2002, Clinical transplantation.