The effects of the Health Insurance Portability and Accountability Act privacy rule on influenza research using geographical information systems.

The Health Insurance Portability and Accountability Act (HIPAA) privacy rule was enacted to protect patients' personal health information from undue disclosure. Despite its intention to protect patients, recent reports suggest that HIPAA restrictions may be negatively impacting health research. Quantitative, visual geographical and statistical analysis of zip code geographical information systems (GIS) mapping, comparing 3-digit HIPAA-compliant and 5-digit HIPAA-non-compliant simulated data, was chosen to identify and describe the type of distortion that may result. It was found that unmitigated HIPAA compliance with HIPAA mapping rules distorted the GIS zip code data by 28% leading to erroneous results. Thus, compliance with HIPAA privacy rule when mapping may lead investigators to publish erroneous GIS maps.

[1]  W. Thompson,et al.  Privacy versus public health: the impact of current confidentiality rules. , 2010, American journal of public health.

[2]  L. Radonovich,et al.  Stockpiling Supplies for the Next Influenza Pandemic , 2009, Emerging infectious diseases.

[3]  Lawrence O Gostin,et al.  Reforming the HIPAA Privacy Rule: safeguarding privacy and promoting research. , 2009, JAMA.

[4]  Laura A. Levit,et al.  Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: National Academies Press , 2009 .

[5]  R. Ness.  Influence of the HIPAA Privacy Rule on health research. , 2007, JAMA.

[6]  S. Dark,et al.  The modifiable areal unit problem (MAUP) in physical geography , 2007 .

[7]  Daniel Wartenberg,et al.  Current practices in spatial analysis of cancer data: mapping health statistics to inform policymakers and the public , 2006, International journal of health geographics.

[8]  Kenneth D Mandl,et al.  Privacy protection versus cluster detection in spatial epidemiology. , 2006, American journal of public health.

[9]  Julian Padget,et al.  Using software agents to preserve individual health data confidentiality in micro-scale geographical analyses , 2006, J. Biomed. Informatics.

[10]  Leah K VanWey,et al.  Confidentiality and spatially explicit data: Concerns and challenges , 2005, Proceedings of the National Academy of Sciences of the United States of America.

[11]  S. Waring,et al.  The utility of geographic information systems (GIS) in rapid epidemiological assessments following weather-related disasters: methodological issues based on the Tropical Storm Allison Experience. , 2005, International journal of hygiene and environmental health.

[12]  Martin Kulldorff,et al.  Lumping or splitting: seeking the preferred areal unit for health geography studies , 2005, International journal of health geographics.

[13]  Sarah E. Randolph,et al.  Studying the global distribution of infectious diseases using GIS and RS , 2003, Nature Reviews Microbiology.

[14]  T. Kistemann,et al.  Spatial patterns of tuberculosis incidence in Cologne (Germany). , 2002, Social science & medicine.

[15]  Uriel Kitron,et al.  Predicting the Risk of Lyme Disease: Habitat Suitability for Ixodes scapularis in the North Central United States , 2002, Emerging infectious diseases.

[16]  E J Sondik,et al.  Geographic Information Systems (GIS) in public health practice in the new millennium. , 1999, Journal of public health management and practice : JPHMP.

[17]  G. Rushton,et al.  Geographically masking health data to preserve confidentiality. , 1999, Statistics in medicine.

[18]  M Kulldorff,et al.  Geographic information systems (GIS) and community health: some statistical issues. , 1999, Journal of public health management and practice : JPHMP.

[19]  김경석,et al.  시설 입지 결정에 GIS(Geographic Information System)의 적용 방법에 관한 연구 , 1994 .

[20]  G. Pugliese,et al.  Severe Streptococcus pyogenes Infections, United Kingdom, 2003–2004 , 2008, Emerging infectious diseases.

[21]  Irene Casas,et al.  Protection of Geoprivacy and Accuracy of Spatial Information: How Effective Are Geographical Masks? , 2004, Cartogr. Int. J. Geogr. Inf. Geovisualization.

[22]  J Dangermond,et al.  What is a Geographic Information System(GIS) , 1992 .