Prospective Personal Health Record Use Among Different User Groups: Results of a Multi-wave Study

Personal health records (PHRs) systems are a subject of intense interest in the move to improve health care through consumer empowerment. Yet, despite a surge of PHR offerings from a variety of providers, little research has been done to learn what prospective users want in a PHR and how they will use these systems. Because managing their personal health care information is a novel undertaking for most people, traditional technology adoption study methods are difficult to employ in researching PHRs. This paper reports on a user-centered design study that combines qualitative and quantitative approaches to investigate how health status may affect user needs for PHR. Preliminary analysis of the results indicates that users with disabilities differ from others in their PHR preferences. The results suggest that a particularly motivating factor for disabled individuals is the way in which a PHR will function when emergency services are required.

[1]  Peter Short,et al.  Connecting for health. , 2008, The British journal of general practice : the journal of the Royal College of General Practitioners.

[2]  Michael A. Shepherd,et al.  Challenges in Health Informatics , 2007, 2007 40th Annual Hawaii International Conference on System Sciences (HICSS'07).

[3]  Paul E. Green,et al.  Conjoint Analysis in Marketing: New Developments with Implications for Research and Practice , 1990 .

[4]  David A. Powner,et al.  Health Information Technology: Early Efforts Initiated but Comprehensive Privacy Approach Needed for National Strategy, Testimony before the Subcommittee on Oversight of Government Management, the Federal Workforce, and the District of Columbia; Committee on Homeland Security and Governmental Affair , 2007 .

[5]  Thomas S. Tullis,et al.  Web Accessibility for Visually Impaired Users: Extending the Technology Acceptance Model (TAM) , 2006, AMCIS.

[6]  Fred D. Davis.  Perceived Usefulness, Perceived Ease of Use, and User Acceptance of Information Technology , 1989, MIS Q..

[7]  Stephanie Coontz.  The Way We Never Were: American Families and the Nostalgia Trap. , 1993 .

[8]  E. Vance,et al.  Predicting Patients' Use of Provider E-Health: Improving on Good Intentions , 2006, AMCIS.

[9]  D. Wolf,et al.  Our "increasingly mobile society"? The curious persistence of a false belief. , 2005, The Gerontologist.

[10]  Sheryl Gay Stolberg.  Health identifier for all Americans runs into hurdles: privacy debate heats up. , 1998, The New York times on the Web.

[11]  Jessie Venegas.  South Carolina Department of Health and Human Services , 2009 .

[12]  M. Leavitt,et al.  Department of Health and Human Services , 2007, Disaster Medicine and Public Health Preparedness.

[13]  Bengisu Tulu,et al.  Information Systems and Health Care X: A User-Driven Approach to Personal Health Records , 2006, Commun. Assoc. Inf. Syst..

[14]  Stolberg Sg.  Health identifier for all Americans runs into hurdles: privacy debate heats up. , 1998 .

[15]  M. Hartman.  Personal Health Records and Electronic Health Records: Navigating the Intersections , 2006 .