Health‐related quality of life in children and adolescents with stroke, self‐reports, and parent/proxies reports: Cross‐sectional investigation

Limited data are available on health‐related quality of life (HR‐QoL) in pediatric stroke survivors. The aim of the present study was to assess HR‐QoL by self‐assessment and parent/proxy‐assessment in children and adolescents who survived a first stroke episode.

[1]  M. Bullinger,et al.  Generic Health-Related Quality-of-Life Assessment in Children and Adolescents , 2012, PharmacoEconomics.

[2]  E. Steyerberg,et al.  Paediatric arterial ischaemic stroke: functional outcome and risk factors , 2010, Developmental medicine and child neurology.

[3]  T. Schenk,et al.  Which Variables Help Explain the Poor Health‐Related Quality of Life After Subarachnoid Hemorrhage? A Meta‐analysis , 2010, Neurosurgery.

[4]  J. Jeng,et al.  Quality-Adjusted Life Expectancy (QALE) and Loss of QALE for Patients With Ischemic Stroke and Intracerebral Hemorrhage: A 13-Year Follow-Up , 2010, Stroke.

[5]  J. Saver,et al.  Years of Disability-Adjusted Life Gained as a Result of Thrombolytic Therapy for Acute Ischemic Stroke , 2010, Stroke.

[6]  Y. Hsieh,et al.  Psychometric comparisons of the Stroke Impact Scale 3.0 and Stroke-Specific Quality of Life Scale , 2010, Quality of Life Research.

[7]  M. Owolabi What Are the Consistent Predictors of Generic and Specific Post-Stroke Health-Related Quality of Life? , 2009, Cerebrovascular Diseases.

[8]  M. Bullinger,et al.  Health-related quality of life in children and adolescents in Germany: results of the BELLA study , 2008, European Child & Adolescent Psychiatry.

[9]  M. Bullinger,et al.  Psychometric properties of the KINDL-R questionnaire: results of the BELLA study , 2008, European Child & Adolescent Psychiatry.

[10]  F. Petermann,et al.  Psychische Auffälligkeiten und psychosoziale Folgen nach Schlaganfällen im Kindesalter , 2008, Fortschritte der Neurologie-Psychiatrie.

[11]  U. Ellert,et al.  Gesundheitsbezogene Lebensqualität von Kindern und Jugendlichen in Deutschland , 2007, Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz.

[12]  U. Ellert,et al.  [Health-related quality of life of children and adolescents in Germany. Norm data from the German Health Interview and Examination Survey (KiGGS)]. , 2007, Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz.

[13]  M. Bullinger,et al.  [Quality of life and chronic conditions: the perspective of children and adolescents in rehabilitation]. , 2006, Praxis der Kinderpsychologie und Kinderpsychiatrie.

[14]  S. Willich,et al.  The Use of the 12-Item Short-Form Health Status Instrument in a Longitudinal Study of Patients with Stroke and Transient Ischaemic Attack , 2005, Neuroepidemiology.

[15]  A. Colver,et al.  Subjective quality of life in children with intellectual impairment ‐ how can it be assessed? , 2005, Developmental medicine and child neurology.

[16]  V. Ganesan,et al.  Thrombophilia and first arterial ischaemic stroke: a systematic review , 2005, Archives of Disease in Childhood.

[17]  J. Cramer,et al.  Agreement between self reports and proxy reports of quality of life in epilepsy patients , 1995, Quality of Life Research.

[18]  G. deVeber,et al.  Health-Related Quality of Life and Its Relationship to Neurological Outcome in Child Survivors of Stroke , 2004, CNS Spectrums.

[19]  D. Dougherty,et al.  Quality measures for children's health care. , 2004, Pediatrics.

[20]  M. Bullinger,et al.  Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results , 1998, Quality of Life Research.

[21]  L. Matza,et al.  Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. , 2004, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.

[22]  Wilma M Hopman,et al.  Quality of Life During and After Inpatient Stroke Rehabilitation , 2003, Stroke.

[23]  W. Oertel,et al.  Timecourse of health-related quality of life as determined 3, 6 and 12 months after stroke , 2002, Journal of Neurology.

[24]  F. Kirkham,et al.  Functional Outcome Following Stroke in Children , 2002, Journal of child neurology.

[25]  M. Bullinger,et al.  Quality of life after multiple trauma--summary and recommendations of the consensus conference. , 2002, Restorative neurology and neuroscience.

[26]  C. Camfield,et al.  Cerebral sinovenous thrombosis in children. , 2001, The New England journal of medicine.

[27]  C. Eiser,et al.  A review of measures of quality of life for children with chronic illness , 2001, Archives of disease in childhood.

[28]  M. Wiznitzer,et al.  Stroke in children: recognition, treatment, and future directions. , 2000, Seminars in pediatric neurology.

[29]  José Luis González,et al.  Quality of Life Among Stroke Survivors Evaluated 1 Year After Stroke: Experience of a Stroke Unit , 2000, Stroke.

[30]  E. Isaacs,et al.  Outcome after ischaemic stroke in childhood , 2000, Developmental medicine and child neurology.

[31]  G. deVeber,et al.  Neurologic Outcome in Survivors of Childhood Arterial Ischemic Stroke and Sinovenous Thrombosis , 2000, Journal of child neurology.

[32]  F. Kirkham,et al.  Risk Factors for Arterial Ischemic Stroke in Children , 2000, Journal of child neurology.

[33]  H. Stolzenberg,et al.  [Social class index in the Federal Health Survey]. , 1999, Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)).

[34]  N. Theunissen Health related quality of life in children , 1999 .

[35]  R. Macko,et al.  Stroke in children and sickle-cell disease , 1998, Neurology.

[36]  P. Duncan,et al.  Health status of individuals with mild stroke. , 1997, Stroke.

[37]  Judith A. Hall,et al.  Using Proxies to Evaluate Quality of Life: Can They Provide Valid Information About Patients' Health Status and Satisfaction with Medical Care? , 1989, Medical care.

[38]  A. Eagger Rehabilitation , 1960 .