Stress and Service Use Among Minority Caregivers to Elders with Dementia

Abstract Research indicates that minority caregivers use fewer outside social and medical services than white, European-American caregivers. Qualitative research has shown non-caregiving stressors stemming from family and community environments as affecting burden and service use among minority caregivers. Yet few studies of caregiver service use include multiple groups of minority caregivers, or quantitatively evaluate the influence of non-caregiving stress. Using Pearlin, Mullan, Semple and Skaff's (1990) model of caregiver stress, we examined the relationship of ethnicity, non-caregiving stressors, and other stress-associated variables to service use by African-American, Chinese, and Latino caregivers. A group of white, European-American caregivers served as a reference group. Results show ethnicity, non-caregiving stress, and the dementia-affected elder's impairment level to predict unmet service need. The results also point to the usefulness of a new measure of non-caregiving stress in evaluating service use among minority caregivers.

[1]  S. Katz,et al.  STUDIES OF ILLNESS IN THE AGED. THE INDEX OF ADL: A STANDARDIZED MEASURE OF BIOLOGICAL AND PSYCHOSOCIAL FUNCTION. , 1963, JAMA.

[2]  K. Liu,et al.  Risk of Entering Nursing Homes for Long Versus Short Stays , 1994, Medical care.

[3]  S. Folstein,et al.  "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. , 1975, Journal of psychiatric research.

[4]  A M Jette,et al.  The Framingham Disability Study: II. Physical disability among the aging. , 1981, American journal of public health.

[5]  G. D. Gibson,et al.  Racial, ethnic, and cultural differences in dementia caregiving: review and analysis. , 1997, The Gerontologist.

[6]  Acsw Richard K. Morycz,et al.  Racial Differences in Family Burden , 1987 .

[7]  L. Dorfman,et al.  Service utilization by wife caregivers of frail older veterans. , 1997, Social work in health care.

[8]  C. Cox,et al.  Minority Caregivers of Dementia Victims: A Comparison of Black and Hispanic Families , 1990 .

[9]  M. Lawton,et al.  The dynamics of caregiving for a demented elder among black and white families. , 1992, Journal of gerontology.

[10]  K. Schaie,et al.  Caregiving Systems , 1993 .

[11]  D. Lund,et al.  Caregivers to dementia patients: the utilization of community services. , 1987, The Gerontologist.

[12]  D. Roth,et al.  Psychological, social, and health impact of caregiving: a comparison of black and white dementia family caregivers and noncaregivers. , 1995, Psychology and aging.

[13]  S. Levkoff,et al.  The role of religion and ethnicity in the help seeking of family caregivers of elders with Alzheimer's disease and related disorders , 1999, Journal of cross-cultural gerontology.

[14]  J. Greenberg,et al.  The differential effects of social support on the psychological well-being of aging mothers of adults with mental illness or mental retardation. , 1997 .

[15]  R. Brislin The wording and translation of research instruments. , 1986 .

[16]  L. Noelker,et al.  The influence of family caregivers on elder's use of in-home services: an expanded conceptual framework. , 1987, Journal of health and social behavior.

[17]  S. E. Levkoff,et al.  The power of labels: Recruiting dementia-affected Chinese American elders and their caregivers , 2000 .

[18]  Barriers to the Use of Formal Services Among Alzheimer’s Caregivers , 2019, Caregiving Systems.

[19]  F. Wolinsky,et al.  A Different Perspective on Health and Health Services Utilization , 1988, Annual Review of Gerontology and Geriatrics.

[20]  L. Dorfman,et al.  Attitudes toward service use among wife caregivers of frail older veterans. , 1998, Social work in health care.

[21]  C. Cox Service needs and interests: A comparison of African American and white caregivers seeking Alzheimer assistance , 1993 .

[22]  L. Radloff The CES-D Scale , 1977 .

[23]  D. Drachman,et al.  The Caretaker Obstreperous‐Behavior Rating Assessment (COBRA) Scale , 1992, Journal of the American Geriatrics Society.

[24]  R. Andersen,et al.  Societal and individual determinants of medical care utilization in the United States. , 1973, The Milbank Memorial Fund quarterly. Health and society.

[25]  G. Hinrichsen,et al.  Black and white dementia caregivers: a comparison of their adaptation, adjustment, and service utilization. , 1992, The gerontologist.

[26]  J. Wood,et al.  Coping With Perceived Burden: Ethnic and Cultural Issues in Alzheimer's Family Caregiving , 1990 .

[27]  R. Campbell,et al.  Race, control, mastery, and caregiver distress. , 1995, The journals of gerontology. Series B, Psychological sciences and social sciences.

[28]  R. Valle Culture‐Fair Behavioral Symptom Differential Assessment and Intervention in Dementing Illness , 1994, Alzheimer disease and associated disorders.

[29]  S. López,et al.  Contributions to depression in Latina mothers with and without children with retardation: Implications for caregiving , 1997 .

[30]  M. Wykle,et al.  A comparison of black and white family caregivers experience with dementia. , 1991, Journal of National Black Nurses' Association : JNBNA.

[31]  R. Schulz,et al.  Preventive health behaviors among spousal caregivers. , 1997, Preventive medicine.

[32]  C. Whitlatch,et al.  Caregiving and its social support. , 1996 .

[33]  J. Morris The Clinical Dementia Rating (CDR) , 1993, Neurology.

[34]  L G Branch,et al.  Short‐Term Variability of Measures of Physical Function in Older People , 1990, Journal of the American Geriatrics Society.

[35]  Annual Meeting of the Gerontological Society , 1977 .

[36]  M. Skaff,et al.  Caregiving and the stress process: an overview of concepts and their measures. , 1990, The Gerontologist.