Towards an Accessible Personal Health Record

Patient empowerment frameworks, including personal health records (PHR), actively engage technology empowered citizens in their healthcare. Particularly today, with the current increase of chronic diseases, the high growth rate of the elderly and disabled populations and at the same time the much higher cross-border patient mobility,such systems may prove to be lifesaving, cost effective and time saving. Currently, there are many different online applications promoted as being functional, user-friendly and detailed enough to provide a complete and accurate summary of an individual’s medical history. However, it seems that most of the Web services available do not fully adhere to well known accessibility standards, such as those promoted by the W3C, thus turning them away from people with disability and elderly people, who most probably need them most. Additionally, support for mobile devices introduces additional obstacles to users with disability when trying to operate such services. This paper presents fundamental (design for all) guidelines for the successful implementation of an accessible ePHR service that can be operated by any patient including people with disabilities irrespective of the device they use to access this service.

[1]  Constantine Stephanidis,et al.  Designing Universally Accessible Networking Services for a Mobile Personal Assistant , 2009, HCI.

[2]  Constantine Stephanidis,et al.  User Interfaces for All: New Perspectives into Human- Computer Interaction , 2001 .

[3]  Helen Hoenig,et al.  Access to health care services for the disabled elderly. , 2006, Health services research.

[4]  Melinda T. Neri,et al.  The organization and financing of health services for persons with disabilities. , 2002, The Milbank quarterly.

[5]  Manfred Tscheligi,et al.  Depth and breadth away from the desktop: the optimal information hierarchy for mobile use , 2006, Mobile HCI.

[6]  William B. Lober,et al.  Barriers to the use of a Personal Health Record by an Elderly Population , 2006, AMIA.

[7]  Manolis Tsiknakis,et al.  Adoption of innovative eHealth services in prehospital emergency management: a case study , 2010, Proceedings of the 10th IEEE International Conference on Information Technology and Applications in Biomedicine.

[8]  George Buchanan,et al.  Improving mobile internet usability , 2001, WWW '01.

[9]  Melinda T. Neri,et al.  Understanding the consequences of access barriers to health care: experiences of adults with disabilities , 2003, Disability and rehabilitation.

[10]  Constantine Stephanidis,et al.  Web User Interface Design Strategy: Designing for Device Independence , 2009, HCI.

[11]  Constantine Stephanidis,et al.  An overview of web accessibility in Greece: a comparative study 2004–2008 , 2010, Universal Access in the Information Society.

[12]  Darrell M. West,et al.  The Digital Divide in Public E-Health: Barriers to Accessibility and Privacy in State Health Department Websites , 2006, Journal of health care for the poor and underserved.