Direct to consumer genetic testing: a systematic review of position statements, policies and recommendations

Skirton H, Goldsmith L, Jackson L, O’Connor A. Direct to consumer genetic testing: a systematic review of position statements, policies and recommendations.

[1]  Gail Javitt,et al.  ASHG Statement* on Direct-to-Consumer Genetic Testing in the United States , 2007, Obstetrics and gynecology.

[2]  Kimberly A Kaphingst,et al.  Informational content, literacy demands, and usability of websites offering health-related genetic tests directly to consumers , 2010, Genetics in Medicine.

[3]  Pascal Borry,et al.  Users’ motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories , 2011, Journal of Community Genetics.

[4]  Pascal Borry,et al.  Statement of the ESHG on direct-to-consumer genetic testing for health-related purposes , 2010, European Journal of Human Genetics.

[5]  L. Hennen,et al.  Direct to Consumer genetic Testing - Study , 2008 .

[6]  Peter J. Roberts,et al.  Accessed from , 2022 .

[7]  Sivan Tamir.  Direct-to-consumer genetic testing: ethical-legal perspectives and practical considerations. , 2010, Medical law review.

[8]  Gail Javitt,et al.  ASHG Statement* on Direct-to-Consumer Genetic Testing in the United States , 2007, Obstetrics and gynecology.

[9]  Michelle L. McGowan,et al.  Personal genomics and individual identities: motivations and moral imperatives of early users , 2010, New genetics and society.

[10]  Gynecologists.  ACOG Committee Opinion No. 409: Direct-to-consumer marketing of genetic testing. , 2008, Obstetrics and gynecology.

[11]  V. Braun,et al.  Using thematic analysis in psychology , 2006 .

[12]  N. Krivoy,et al.  Direct‐to‐Consumer/Patient Advertising of Genetic Testing: A Position Statement of the American College of Clinical Pharmacology , 2009, Journal of clinical pharmacology.

[13]  R. Green,et al.  Direct to consumer genetic testing: Avoiding a culture war , 2009, Genetics in Medicine.

[14]  H. Skirton,et al.  Are health professionals ready for direct-to-consumer genetic and genomic testing? , 2013, Personalized medicine.

[15]  Additional protocol to the convention on human rights and biomedicine, concerning genetic testing for health purposes. , 2008, Revista de derecho y genoma humano = Law and the human genome review.

[16]  M. Kirsch‐Volders,et al.  Direct-to-consumer genetic testing services , 2012 .

[17]  M. Rothstein,et al.  Genetic testing in adoption. The American Society of Human Genetics Social Issues Committee and The American College of Medical Genetics Social, Ethical, and Legal Issues Committee. , 2000, American journal of human genetics.

[18]  C. Shuman,et al.  Direct‐to‐consumer genetic testing: good, bad or benign? , 2010, Clinical genetics.

[19]  L. Hennen,et al.  Direct to consumer genetic testing: insights from an internet scan , 2010 .

[20]  B. Wilfond,et al.  Ethical and clinical practice considerations for genetic counselors related to direct‐to‐consumer marketing of genetic tests , 2006, American journal of medical genetics. Part C, Seminars in medical genetics.

[21]  Heather Skirton,et al.  Direct-to-consumer genomic testing: systematic review of the literature on user perspectives , 2012, European Journal of Human Genetics.

[22]  Caroline F Wright,et al.  Regulating direct-to-consumer genetic tests: What is all the fuss about? , 2011, Genetics in Medicine.